Sickboy

A Softball Size Tumor But Still Batting 1000: Neurofibromatosis type 2 And Many Other Health Conditions


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May is NF (Neurofibromatosis) Awareness Month! In this episode, we chat with Kevin MacDonald, a man who has faced more medical challenges than the entire cast of Grey's Anatomy combined. He's got esophageal atresia, a hole in the heart, and NF2 — and no, that's not a fancy new Netflix series. We're talking about Neurofibromatosis type 2, which causes brain and spinal tumours, deafness, paralysis, and loss of vision. But don't worry folks! Kevin's not here to bring us down — he's got a great sense of humour. He'll share stories about pretending to understand what people are saying when they yell at him (because apparently, that's the solution to hearing loss?), talking to mannequins at clothing stores, and accidentally putting his foot in his mouth — though to be fair, that's probably the only body part that isn't causing him any trouble. And if that's not enough, he'll even show us his impressive new talent: controlling the left side of his face with his tongue. Get your head out of the gutter. Tune in for some laughs and inspiration as Kevin shows us that even in the toughest of times, humour can be a powerful tool for healing and resilience.
Join the post-episode conversation over on Discord! https://discord.gg/expeUDN
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