Arthritis Life

Rheumatologist Dr. Buckner emphasizes the importance of early diagnosis and reassures patients that, although there might not be a cure yet, advancements in treatments have significantly improved the quality of life for individuals with autoimmune diseases. She highlights the crucial role of patients in research partnerships, where their input and participation are highly valued, leading to better understanding and management of these conditions.

Dr. Mikacenic emphasizes the importance of viewing the patient-researcher relationship as a partnership. She discusses the potential benefits of participating in research studies, not only in drug trials but also through donating samples and providing clinical information.

Both doctors express optimism about the future, believing that a cure for autoimmune diseases is possible with the rapid growth of knowledge about the immune system and targeted treatments on the horizon. They emphasize the significance of teamwork between patients, caregivers, and researchers, fostering hope and improving the lives of those affected by autoimmune conditions.

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now at  https://arthritislifeschool.thinkific.com/

See the episode page on the Arthritis Life Website. 

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Nikita shares her personal journey of acceptance, self-compassion, and finding her center while navigating multiple conditions, including endometriosis, fibromyalgia, and Hashimoto’s. Their conversation delves into the power of mindset in managing chronic pain, the significance of self-love, and the need to let go of self-blame. 

Cheryl and Nikita highlight the importance of community, finding joy in everyday moments, and the role of pets in providing companionship and comfort. Nikita's journey is characterized by embracing her authentic self and recognizing that, while challenges persist, she has the tools to thrive despite them. Her favorite mantra, "Do what you can when you can," encapsulates the empowerment of choices and resources.

 Nikita invites listeners to connect with her on Thrive With Nikita and explore her podcast, Crafted to Thrive, which focuses on the experiences of entrepreneurs with chronic illnesses. For a supportive community and to hone skills for living well despite chronic illness, Cheryl also welcomes listeners to her Rheum to THRIVE program.

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

Go to the episode page on the Arthritis Life Website for full details and hyperlinks.

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• Navigating Diagnosis and Treatment: Stella shares her journey of being diagnosed with axial spondyloarthritis at a young age and the challenges of finding effective treatments. Cheryl emphasizes the importance of advocating for oneself and seeking alternatives if a treatment is not the right fit.
• Using Mobility Aids and Devices: Stella and Cheryl discuss the use of mobility aids to help manage the impact that symptoms have on daily life. Stella highlights how using a cane helped her receive better care and awareness, while Cheryl mentions the benefit of finding tools that reduce the impact on joints and make tasks easier.
• Reclaiming Identity and Self-Expression: Personalizing mobility aids and turning them into accessories can help them feel more comfortable and reduce the stigma associated with them.
• Internalized Ableism: Their conversation brings up the topic of internalized ableism and emphasizes the importance of challenging these perceptions.
• Self-Advocacy and Communication: Stella and Cheryl discuss the necessity for advocacy when interacting with healthcare professionals. They encourage being thorough about symptoms, side effects, and concerns. Additionally, they recommend taking notes, bringing a friend or support person, and having a list of questions ready during appointments.
• Knowing Your Rights and Accommodations: Stella talks about obtaining a letter from her doctor to protect her rights in the workplace. Knowing legal protections for people with disabilities can be essential in navigating work environments and seeking proper accommodations.
• Finding joy despite limitations: Despite the challenges of chronic illness, Stella and Cheryl emphasize the importance of seeking joy, pursuing passions, and participating in activities that bring happiness, including using adaptations and coping strategies when needed.
• Community and Support: Stella and Cheryl discuss the value of being involved in a supportive community, such as Rheum to THRIVE where individuals with chronic illnesses can share experiences, insights, and mutual understanding.

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

See the episode page on the Arthritis Life website.

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• Relation to autoimmune arthritis: Dr. Furlan is a physician at a pain clinic, a scientist at the rehab institute, and assistant faculty at the University of Toronto. She is a physiatrist who specializes in pain.
• Understanding Pain: Dr. Furlan explains how pain science is continually advancing and more information about how the brain processes pain is being discovered. There are different types of pain, and multiple systems in the body involved with the sensation/perception of pain.
• Your pain is valid: Some people might not see your pain, and you may be stigmatized, but what you say is pain, IS pain. If other people say you’re not in pain, it’s because they don’t understand the pain system.
• Language around pain: The words we use about pain can make a difference too. Cheryl and Dr. Furlan discusses different ways of approaching words like “conquer” or “defeat” in the context of living with a painful autoimmune condition.
• 8 steps for living better with pain: Dr Furlan explains strategies for exercise, sleep and more. For example, she recommends breaking up exercise into smaller “snacks” or movement breaks. She also shares the importance of quality sleep is important too, since it gives you energy for other lifestyle factors. Investigate if you have a treatable sleep condition (like sleep apnea), and then address your sleep hygiene/routines - including making sure you’re not sleeping too little or too much. Lifestyle factors are often interconnected, and taking care of your mental health and nutrition can also support sleep and exercise.
• Dr. Furlan’s best advice for newly diagnosed: Doing it alone is HARD. Find support, someone knowledgeable who’s climbed their mountain or helped others do it, who’ve traveled this road before - they can be your guide.

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, an online course and group support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

Please go to the episode page on the Arthritis Life website for all the details! 

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🛑Trigger warning: discussion of eating disorders (I did not have one but was accused of lying about causing my weight loss and hiding an ED) 🛑

In this episode, my parents and I share our memories of my diagnosis story, which covers roughly 2001-2004.This includes a discussion about the profound confusion we all experienced when I went from a healthy, robust student athlete to having a  “mystery illness” that doctors keep insinuating is “just anxiety” (or an eating disorder).  We also share how we lost faith and trust in some doctors after experiencing medical gaslighting, yet we also found hope in the competency and empathetic care of other doctors (particularly in rheumatology).  

We share our mixed reactions to the diagnosis of rheumatoid arthritis, and my parents open up about what it’s like to have a child get sick who’s a young adult - not a kid anymore but not a fully independent adult either.

My parents also share their advice to other parents of children or young adults who are sick but not yet diagnosed, as well as their best advice for newly diagnosed people with rheumatic diseases. This is a must listen!

• Introduction to my parents and discussion about my early life (healthy, active lifestyle, no drugs or risky behaviors).
• Cheryl’s Early diagnosis story (2001-3): Going down the gastroenterology path. We initially addressed systemic symptoms (stomach issues, eye issues and fatigue). The gastroenterologist did many procedures (including an endoscopy, barium swallow and pH manometry) then said nothing was wrong other than “the relationship between mom and daughter” (insinuating we were too close or perhaps both “too anxious”). He then did a gastric emptying scan and diagnosed me with gastroparesis (slow motility - a form of dysautonomia) but still said nothing else was wrong.
• Medical Gaslighting: My parents dilemma of whether to believe me or the gastroenterologist and others who accused me of having “nothing wrong” and just being a hypochondriac: how they chose to believe me despite the medical gaslighting from docs; how it was confusing that i could just get sick out of seemingly nowhere, it just didn’t make sense. My dad knew I didn’t have an eating disorder.
• 2003: Hiring a concierge doctor who initially thought it was just anxiety, but eventually in summer 2003 once my joints were hurting more she ran more bloodwork and preliminarily diagnosed me with RA.
• Immediately after diagnosis - memories of the first trip to the rheumatologist and starting meds: relief, confusion, a whiplash from feeling not believed to feeling believed and that this is very serious; discussions about whether to start medications or not; my mom opened up about realizing she could advocate for me but wasn’t the expert in the medications;
• Cheryl returns to New York for final year of undergrad and experiences medicated remission for 6 years - end of “phase 1” of her RA journey, which became more bumpy and complex after that first remission ended.
• My parents advice to others: My parents share their best advice to other parents who may be in the position of advocating for their children

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

Go to the Arthritis Life Website for full episode details.

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You are not alone. In this episode, host Cheryl Crow and Rheum to THRIVE Graduate Katie Searfross discuss how to find a realistic sense of hope when coping with multiple fluctuating, complex chronic illnesses that are sometimes out of our control. 

Katie shares how she copes and finds ways to hold on to moments of joy even when her symptoms of Reflex Sympathetic Dystrophy (RSD or complex regional pain syndrome), Migraine and Rheumatoid Arthritis remain. Katie and Cheryl share how they’ve learned to be gentle with themselves and patient in those tough moments when you do “everything right” and your symptoms remain.  They also discuss the complexity of moments where you have to decide whether to push past your pain and when to slow down and listen to your body. 

Katie and Cheryl also discuss the value of group support and a sense of community, which Katie found in Rheum to THRIVE.  Katie also shares lessons she learned as a children’s pastor specializing in grief, which can apply to people with chronic illness as well.

• Diagnosis story: Prior to her rheumatoid arthritis (RA) diagnosis, Katie knew she had other diagnoses including Reflex Sympathetic Dystrophy (RSD or complex regional pain syndrome) and Migraine. As a result, it was difficult for her to recognize “normal” symptoms for RSD compared to out of the ordinary symptoms which pointed to a new diagnosis of rheumatoid arthritis.
• Pain and dissociating: Katie shares how she found herself dissociating from pain / distracting herself from pain, and needing to learn to reconnect with her body.
• Katie’s coping toolbox: At first, adjusting to RA diagnosis felt like losing everything. It’s frustrating to have days when you do everything right and still have pain. Katie shares how in Rheum to THRIVE, being provided with evidence-based tools to manage pain and fatigue while having acknowledgement of the reality that sometimes your symptoms will remain despite doing everything right was empowering. It’s a reminder that we can still focus on ways to find joy and thrive. Katie found freedom in knowing her diagnosis is not her fault, and learned to be gentle with herself.
• Social support: Katie shares how important it was for her to find a sense of authenticity, understanding, valid information and connection and how she found that in Rheum to THRIVE. Having expert guidance and an ability to ask questions helps to make sense of diagnosis, experiences, and lifestyle considerations.
• Lessons learned from Katie’s work in grief: Katie shares lessons she has learned in her work as children’s pastor with adults and children who are grieving; many of these lessons can also help people with chronic illness, including learning to be gentle with yourself.
• Katie’s best advice for newly diagnosed: Find a safe community - don’t try to do this as an island, because it’s too much for one person to hold all on their own. All suffering is valid, it’s never helpful to say it could be worse.
• What it means to Katie to thrive with rheumatic disease: Using the “and” - this is hard and I want to laugh and make memories. It is embracing that and not putting life on hold. I remind myself that I’m doing my best.

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

Go to to the episode page on the Arthritis Life website for full episode details including a transcript and video!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Jenni shares how her symptoms were initially dismissed before she got diagnosed with rheumatoid arthritis. She then got her diagnosis and experienced a rare medication side effect: medically induced pustular psoriasis. Through it all, she also balanced being a mom, wife and friend. In this episode Jenni shares how she learned the importance of social-support, self-advocacy, humor and an unashamed embracing of her “new normal.”

• Diagnosis and treatment Saga: After experiencing knee pain, fatigue, and fevers, Jenni is first diagnosed with an “infection in her knee” and then told she needs to “just lose weight; after advocating for herself Jenni gets a second opinion and a preliminary RA diagnosis, then has many complications with treatments including medically induced pustular psoriasis.
• Learning Self-Advocacy: Jenni talks about the importance of finding a doctor who is the right fit for you, listens to your story, and explains their treatment clearly - while avoiding medical gaslighting and weight blame
• The importance of social support: Jenni shares how she lost some friendships, but also found amazing people to keep her going. Jenni started “My Spoonie Sisters” to help others feel less alone.
• Jenni’s Coping Tools: She works to lean hard into the mindset of embracing her reality and not feeling shame about her health.
• Finding a “New Normal:” Be honest with the people in your life - including finding ways to talk about it to your children if you have any. Don’t be afraid to ask for help and be specific! Be open to trying new things and sharing/connecting with others.
• Best Advice for Newly Diagnosed Patients: When things feel out of control - you matter, you’re enough, your life matters; use what you’re going through to help others.
• Favorite Mantra: Don’t forget your spoon - save one for yourself!
• Thriving with Rheumatic Disease: Thriving with rheumatic disease means not giving up! Have hope that you will still live a wonderful life, even if it’s not exactly how you may have once envisioned it.

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. 

See all the details and join the program or waitlist now!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

• What is a naturopathic doctor? Naturopathic doctors use a holistic approach to patient care. They often include nutrition, mind-body medicine, exercise, and natural approaches to their treatment. Naturopathic doctors must take professional board exams in order to be licensed to practice.
• Mymee: Mymee aims for personalized care for people with autoimmune rheumatic disease and symptoms resulting from long-COVID, aiming to track variables that may make symptoms better or worse.
• Symptom Tracking 101: With Mymee, tracking pain focuses on quality vs quantity - so it’s not just the average 1-10 pain scale. The importance of context and ability to participate in activities is taken into consideration.
• Coping with unpredictability: Part of being human is dealing with the unknown. Control can also be a double-edged sword: it can be empowering, but also overwhelming if obsessed over and freeing to let go over.
• Tips for exercise & fatigue: Overexertion can be trigger, so pace your movement! Incorporating snacks with your exercise may help with fatigue, and calisthenic exercise can be beneficial for strength training with the bonus of having minimal equipment requirements.
• Words of wisdom: Some things aren’t modifiable / controllable, but be open to possibilities for the things that can be controlled. Practice self-compassion and take care of yourself, first! You don’t have to know it all.

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

Go to the Arthritis Life Website at: https://arthritis.theenthusiasticlife.com/ 

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode, host Cheryl Crow and psychotherapist Timothy Weymann delve deep into the existential, philosophical questions that chronic illness poses. Is there hope without healing? Is it possible to “make peace with loss and change?”  How on earth can you “access a sense of peace in the midst of ambiguity,” particularly when that ambiguity has to do with your own health and wellbeing?  

Timothy reflects on gender, sexual orientation, disability, acceptance and more, sharing how he used “minority survival skills” he learned as a gay man to help him navigate his newfound identity as a person with rheumatoid arthritis. He and Cheryl also discuss how gratitude, forgiveness, self-acceptance, compassion, and social connection help them and others face health difficulties with meaning and purpose.

• Diagnosis story: Timothy advocated for himself as his symptoms worsened despite experiencing medical gaslighting. Eventually he was tested for and diagnosed with Mixed Connective Tissue Disorder and Rheumatoid Arthritis - which came with feeling crushed and wondering: “Is this going to be my new life?”. 
• Impact of gender and chronic illness: Men are a minority in the rheumatoid arthritis community, and Timothy shared how his gender has affected his experiences of healthcare and belonging in the chronic illness community. He reflects on how our culture has often given the message that men should tough things out and not ask for help, which can be challenging for mental health.
• Sexual identity: Timothy shares lessons he learned while navigating being a minority as a gay man. Gaining protective skills through this experience helped prepare him for the considerations of sharing disability-related information.
• Mental health: Early on in Timothy’s diagnosis he felt like he was in a “crisis phase”, which led to self-blame, shame, and an urge to keep it hidden. Cheryl shares that many people aim to ‘conquer” the diagnosis in an effort to feel like they can control it, but in time inevitably reach limits. Tim reflects on the wisdom of turning away from control and learning ways to “access a sense of peace in the midst of ambiguity”.
• Coping Toolbox: Timothy explores existential psychology, which is rooted in existential philosophy and is a non-religious examination of the human condition. The 4 ultimate concerns of this are captivity versus freedom, meaning versus meaninglessness (we get to define what is meaningful to us as individuals), connection versus isolation (we’re independent but also need support), and life versus death / ambiguous loss (experiencing limitations and losses). These 4 ultimate concerns can ground one in building a fulfilling life despite chronic illness.
• Best advice for newly diagnosed: Know that it’s ok to not be ok, and it’s ok to let everything unfold. Build a good team, be patient with yourself and others, get connected through support, and utilize collective wisdom.
• What it means to Timothy to thrive with rheumatic disease: Reframing life purpose to mean that a rich life includes both difficulties and happy moments.

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

Go to the episode page on the Arthritis Life Website. 

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Kelly shares the long and winding road trialing medications and building her coping toolbox as she navigates an undetermined form of autoimmune arthritis. She shares what it’s like to work as a Speech-Language Pathologist while balancing her health needs, and reflects on the pros and cons of disclosing health information to coworkers. 

With advocacy and education in mind, Kelly has also co-founded The International Foundation for Autoimmune and Autoinflammatory Arthritis and is the author of the blog As My Joints Turn: My Autoimmune Soap Opera. Cheryl and Kelly talk about the benefits of spending time with pets, along with the importance of prioritizing mental health, practicing mindfulness, and getting connected with a supportive community.

• Diagnosis story: Kelly has learned to cope with a changing diagnosis under the umbrella of “autoimmune arthritis,” along with Grave’s Disease. She has tried a variety of treatments to manage symptoms and help determine the underlying diagnosis.
• Balancing Work and Chronic Illness: Kelly works as a Speech-Language Pathologist, and is also the co-founder of The International Foundation for Autoimmune and Autoinflammatory Arthritis and author of the blog As My Joints Turn: My Autoimmune Soap Opera. In the workplace, she navigates disclosing her health to her coworkers and being aware of accommodation options.
• A look inside Kelly’s Arthritis Toolbox: Practicing mindfulness, spending time with pets, getting support, and taking care of mental health.
• Advice for Newly Diagnosed Patients: You’ll be invited to a lot of arguments but don’t have to engage.

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

Go to the show page on the Arthritis Life website! www.MyArthritisLife.Net

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