No More Perfect Podcast with Jill Savage

Becoming Your Own Health Advocate (Plus My Recent Diagnosis) with Jaclyn Lanthier | Episode 219


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Just a heads up that in this episode we are going to be talking openly about genital body parts that you may not want your kiddos to hear. If needed, feel free to put in your earbuds for this one or save it for a time when you can listen in private.

After 10 years of experiencing painful symptoms without answers, I was diagnosed with vulvar lichen sclerosus. Multiple doctors had missed the diagnosis and couldn’t provide a reason for my pain.

What do you do when you have a condition that doctors can’t figure out? How can you advocate for your own health? Where can you turn to learn about your diagnosis and find answers?

Joining me for this important conversation is Jaclyn Lanthier. Jaclyn has a Ph.D. in philosophy of neuroscience, is on the board of the Lichen Sclerosus Support Network and the steering committee of Core Outcomes for Research in Lichen Sclerosus (CORALS), and is the founder of The Lost Labia Chronicles, which is a content hub for lichen sclerosus information and support.

Jaclyn had a similar journey as me and decided to use what she went through to help others. She shares openly about this topic online and I found her posts extremely helpful after my own diagnosis.

In this episode, you'll hear:

  • How to educate yourself about lichen sclerosus and lichen planus
  • Tips for advocating for your own health
  • Why a gynecologist may not always be the best option for diagnosis
  • And so much more!

Jaclyn has been such an encouragement to me both through our conversation and her online content. I hope this has been helpful for you and your health journey!

Find resources mentioned and more in the show notes: jillsavage.org/jaclyn-lanthier-219

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No More Perfect Podcast with Jill SavageBy Jill Savage

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