Dementia Matters

Being Patient Translates Alzheimer’s Disease Science for the General Public

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Being Patient is an online news source dedicated to providing research news, caregiver information and resources related to Alzheimer's disease. Being Patient founder Deborah Kan discusses how her personal experiences led her to develop the website, as well as how online resources and communities can help empower individuals affected by memory loss. Guest: Deborah Kan, journalist, founder of beingpatient.com

Episode Topics:

  • What inspired you to leave a career in journalism and launch Being Patient? 0:58
  • How do you decide on the topics you cover? 4:18
  • How does social media help build a community through connection? 9:14
  • Have you found a certain communication platform that has better reach? 11:25
  • What have you learned from caregivers through your work? 13:49
  • Can you offer recommendations for finding reliable online sources for health information? 18:58
  • Why is it important for the scientific community to have a separate organization that discusses the research? 23:34
  • What topics in Alzheimer's disease research have been the most impactful? 27:35

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    Dementia MattersBy Wisconsin Alzheimer‘s Disease Research Center
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