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BloodStream Stories Presents - The Factor Revolution: The Last 60 Years of Hemophilia Treatment - Episode 3: Safety, Vigilance and New Frontiers
BloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at the history of factor treatment from the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project."
Exclusive Sponsor for The Factor Revolution: Shire
LINKS:
- ISHIM.NET - “Who Discovered Hemophilia” (Abdul Nasser Kaadan MD, PhD*, Mahmud Angrini MD**)
- JOURNAL OF CLINICAL INVESTIGATION - “HEMOPHILIA. II. SOME PROPERTIES OF A SUBSTANCE OBTAINED FROM NORMAL HUMAN PLASMA EFFECTIVE IN ACCELERATING THE COAGULATION OF HEMOPHILIC BLOOD”
- HEMOPHILIA FEDERATION OF AMERICA (HFA):
“1970s: Living with Hemophilia”
“Medical Bullentin #7 Chapter Advisory #8”
“1982—AIDS Discovered Among Patients with Hemophilia”
“1980’s: Hemophilia, HIV/AIDS, and Hepatitis C”
- HEMOPHILIA NEWS TODAY - “A Brief History of Hemophilia Treatment”
- AMERICAN SOCIETY OF HEMATOLOGY - “Hemophilia: From Plasma to Recombinant Factor”
- NATIONAL HEMOPHILIA FOUNDATION (NHF) - “History of Bleeding Disorders”
- NBC's Earliest Report on AIDS 1982
- ABC News Nightline AIDS - 12/17/1982
- 1982 - 1992 News Clips On HIV/AIDS (The First Ten Years)
- BLOODJOURNAL - “Recombinant factor VIII products and inhibitor development in previously untreated boys with severe hemophilia A”
- WORLD FEDERATION OF HEMOPHILIA (WFH)
“The Tragic History of AIDS in the Hemophilia Population, 1982-1984”
“Recombinant FVIII product associated with higher risk of inhibitor development in newly diagnosed, previously untreated patients with severe hemophilia A”
- THE NATIONAL CENTER FOR BIOTECHNOLOGY INFORMATION - “HIV And The Blood Supply: An Analysis Of Crisis Decision Making”
- CENTER FOR DISEASE CONTROL (CDC) - “Current Trends Prevention of Acquired Immune Deficiency Syndrome (AIDS): Report of Inter-Agency Recommendations”
- HEALTH RESOURCES & SERVICES ADMINISTRATION - “Who Was Ryan White”
- LINKEDIN - “Hemophilia market is boiling- new players, new products and drug wars.”
- GENETIC ENGINEERING & BIOTECHNOLOGY NEWS - “Phase III Study Shows Roche’s Hemophilia Drug Emicizumab Prevents Bleeding in Children”
- PBS (PUBLIC BROADCAST SYSTEM) - “Bad Blood - A Cautionary Tale” Directed by Marilyn Ness, Written by Marilyn Ness and Sheila Curran Bernard
INTERVIEWS:
Bobby Wiseman (via the HIV Story Project) - Board Member of Hemophilia Council of California
Carl Weixler (via the HIV Story Project) - Board of Directors for and President of the Committee of Ten Thousand
Dana Francis (via the HIV Story Project) - The clinical social worker with the Adult Hemophilia Treatment Team at UCSF
Glenn Pierce (via the HIV Story Project) - Medical and Scientific Advisory Council (MASAC) for NHF; Previously served as president of the Board of NHF
Jeanne White-Ginder (via the HIV Story Project) - Serves on the advisory board of The AIDS Institute; Advocate & Mother of Ryan White
Louise & Clifford Ray (via the HIV Story Project) - Advocates & Parents of Ricky Ray
Mark Skinner - Former President of NHF and WFH; Current member of the Federal Advisory Committee on Blood Safety
Michelle Rice - Senior VP of external affairs for the National Hemophilia Foundation
Randy Curtis - President of the Hemophilia Council of California
Val Bias (via the HIV Story Project) - CEO of NHF
Dana Kuhn - President and founder of Patient Services Incorporated
Sue Geraghty - Nurse Coordinator at the University of Colorado Denver Hemophilia and Thrombosis Center
Various interviews from the film Bad Blood.
LINKS ON THE LGBT COMMUNITY & THE HIV/AIDS PANDEMIC
US Federal Govt Statistics & Timeline, HIV.Gov
National Institutes of Health (NIH)
Huffington Post Top Books on HIV AIDS
Ryan White Care Act
Connect with BloodStream:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
BloodFeed: https://www.bloodfeed.com
Powering Through Podcast: http://poweringthrough.org/podcast
Ask The Expert Podcast: http://bloodstreamexpert.com
Email [email protected]
BloodStream Facebook Page
BloodStream Twitter Account
Subscribe to BloodStream:
iTunes: http://bit.ly/bloodstreamitunes
Stitcher: http://bit.ly/bloodstreamstitcher
LibSyn: http://bit.ly/bloodstreamlibsyn
SoundCloud: http://bit.ly/bloodstreamSC
TuneIn: http://bit.ly/bloodstreamtunein
Google Play: http://bit.ly/bloodstreamPlay
View all episodes
By BloodStream Media
4.9
4242 ratings
BloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at the history of factor treatment from the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project."
Exclusive Sponsor for The Factor Revolution: Shire
LINKS:
- ISHIM.NET - “Who Discovered Hemophilia” (Abdul Nasser Kaadan MD, PhD*, Mahmud Angrini MD**)
- JOURNAL OF CLINICAL INVESTIGATION - “HEMOPHILIA. II. SOME PROPERTIES OF A SUBSTANCE OBTAINED FROM NORMAL HUMAN PLASMA EFFECTIVE IN ACCELERATING THE COAGULATION OF HEMOPHILIC BLOOD”
- HEMOPHILIA FEDERATION OF AMERICA (HFA):
“1970s: Living with Hemophilia”
“Medical Bullentin #7 Chapter Advisory #8”
“1982—AIDS Discovered Among Patients with Hemophilia”
“1980’s: Hemophilia, HIV/AIDS, and Hepatitis C”
- HEMOPHILIA NEWS TODAY - “A Brief History of Hemophilia Treatment”
- AMERICAN SOCIETY OF HEMATOLOGY - “Hemophilia: From Plasma to Recombinant Factor”
- NATIONAL HEMOPHILIA FOUNDATION (NHF) - “History of Bleeding Disorders”
- NBC's Earliest Report on AIDS 1982
- ABC News Nightline AIDS - 12/17/1982
- 1982 - 1992 News Clips On HIV/AIDS (The First Ten Years)
- BLOODJOURNAL - “Recombinant factor VIII products and inhibitor development in previously untreated boys with severe hemophilia A”
- WORLD FEDERATION OF HEMOPHILIA (WFH)
“The Tragic History of AIDS in the Hemophilia Population, 1982-1984”
“Recombinant FVIII product associated with higher risk of inhibitor development in newly diagnosed, previously untreated patients with severe hemophilia A”
- THE NATIONAL CENTER FOR BIOTECHNOLOGY INFORMATION - “HIV And The Blood Supply: An Analysis Of Crisis Decision Making”
- CENTER FOR DISEASE CONTROL (CDC) - “Current Trends Prevention of Acquired Immune Deficiency Syndrome (AIDS): Report of Inter-Agency Recommendations”
- HEALTH RESOURCES & SERVICES ADMINISTRATION - “Who Was Ryan White”
- LINKEDIN - “Hemophilia market is boiling- new players, new products and drug wars.”
- GENETIC ENGINEERING & BIOTECHNOLOGY NEWS - “Phase III Study Shows Roche’s Hemophilia Drug Emicizumab Prevents Bleeding in Children”
- PBS (PUBLIC BROADCAST SYSTEM) - “Bad Blood - A Cautionary Tale” Directed by Marilyn Ness, Written by Marilyn Ness and Sheila Curran Bernard
INTERVIEWS:
Bobby Wiseman (via the HIV Story Project) - Board Member of Hemophilia Council of California
Carl Weixler (via the HIV Story Project) - Board of Directors for and President of the Committee of Ten Thousand
Dana Francis (via the HIV Story Project) - The clinical social worker with the Adult Hemophilia Treatment Team at UCSF
Glenn Pierce (via the HIV Story Project) - Medical and Scientific Advisory Council (MASAC) for NHF; Previously served as president of the Board of NHF
Jeanne White-Ginder (via the HIV Story Project) - Serves on the advisory board of The AIDS Institute; Advocate & Mother of Ryan White
Louise & Clifford Ray (via the HIV Story Project) - Advocates & Parents of Ricky Ray
Mark Skinner - Former President of NHF and WFH; Current member of the Federal Advisory Committee on Blood Safety
Michelle Rice - Senior VP of external affairs for the National Hemophilia Foundation
Randy Curtis - President of the Hemophilia Council of California
Val Bias (via the HIV Story Project) - CEO of NHF
Dana Kuhn - President and founder of Patient Services Incorporated
Sue Geraghty - Nurse Coordinator at the University of Colorado Denver Hemophilia and Thrombosis Center
Various interviews from the film Bad Blood.
LINKS ON THE LGBT COMMUNITY & THE HIV/AIDS PANDEMIC
US Federal Govt Statistics & Timeline, HIV.Gov
National Institutes of Health (NIH)
Huffington Post Top Books on HIV AIDS
Ryan White Care Act
Connect with BloodStream:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
BloodFeed: https://www.bloodfeed.com
Powering Through Podcast: http://poweringthrough.org/podcast
Ask The Expert Podcast: http://bloodstreamexpert.com
Email [email protected]
BloodStream Facebook Page
BloodStream Twitter Account
Subscribe to BloodStream:
iTunes: http://bit.ly/bloodstreamitunes
Stitcher: http://bit.ly/bloodstreamstitcher
LibSyn: http://bit.ly/bloodstreamlibsyn
SoundCloud: http://bit.ly/bloodstreamSC
TuneIn: http://bit.ly/bloodstreamtunein
Google Play: http://bit.ly/bloodstreamPlay
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