When the systems your child depends on are under threat, it doesn’t feel political—it feels personal.

In this episode, Madeline and Alyssa unpack the deep unfairness of having to constantly justify your child’s worth while watching essential supports unravel in real time. They also discuss the fury that bubbles up when people call your fear “political,” the heartbreak of realizing who around you doesn’t care, and the exhaustion of never being allowed to rest.

This isn’t about debates or party lines—it’s about fear, frustration, and the deep grief of feeling unsupported by those in your community.

If you’re feeling angry, bitter, or broken-hearted, this episode is for you.

Links:

Follow @margot_thebrave for more information on the situation at NIH.

Listen to Ep 81: Health Anxiety.

Listen to Ep 185: Medical Parent Trauma.

Hear Alyssa’s other episodes: 180: Does it get easier?, 179: Exhaustion, 174: Silencing, 171: Financial Strain, 170: Hospitalizations, 140: Alyssa’s Story, 125: Travel w/ Disabled Kids

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Access the transcript on the website here.

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