This week on Calling in Sick, I'm sitting down with someone who lives this chronic illness life from both sides of the equation. Cortney Gensemer, PhD is a scientist at ChronicleBio, a patient with hypermobile Ehlers-Danlos Syndrome, MCAS, POTS, and adrenal insufficiency, and the creator behind @CortDoesScience, and she is not holding back.

This week we're diving into:

🔬 What it's actually like to study your own disease

🩺 The challenges of specialized care and diagnosis for the chronic illness population

🧬 How "omics" research is what’s connecting the dots across chronic illnesses to move beyond labels and actually find answers

💊 Our hot takes on if: diagnostic labels 100% helpful, wellness culture is actually toxic, patients are more informed than their providers, and so much more

xx, 

Alex

💬 Comment: What's one thing you wish your doctor actually understood about your condition?

TIMESTAMPS

Intro:

00:00:00 Welcome back to Calling in Sick!

00:04:48 Alex’s Picks of the Week (Abercrombie, Rag & Bone, MOTHER Denim)

My chat with Cortney Gensemer:

00:02:50 Cortney's journey: From athlete to patient to scientist

00:09:36 What researching her own disease did for her identity and diagnosis journey

00:23:25 What being a patient and scientist is like

00:26:23 Starting @CortDoesScience" on social media

00:30:34 Developing patient-science training and lab accessibility

00:37:07 Transitioning to biotech at ChronicleBio

Chronic Illness Hot Takes:

00:47:04 Are diagnostic labels meaningless?

00:49:51 Should patients read primary literature?

00:54:41 Is it the doctor's fault if they don't understand your condition?

00:56:47 Is social media harmful or helpful for our community?

01:01:51 How should we be evaluating the wellness industry?

Conclusion:

01:14:04 One Brain Cell Show: Love is Blind, Working Moms, I'm Sorry

01:18:20 Where to connect with Cortney Gensemer

01:20:01 Thank you for listening!

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Connect with our guest: Cortney Gensemer!

• Instagram - https://www.instagram.com/cortdoesscience/

• Substack - https://cortneygensemer.substack.com/

• Website - cortneygensemer.com

🔗 If you have a complex chronic illness, check out Chronicle Connect and patient participation opportunities at chroniclebio.com 

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Produced by: Alexandra Wildeson — https://www.instagram.com/alexandrawildeson/

Alex’s Picks of the Week:

Things that have been helping my chronic illness — and now my first trimester too!!

✨Salonpas Lidocaine Pain Patches — https://amzn.to/3P6rAON

✨Momcozy Pregnancy Pillow — https://amzn.to/4nEIlgZ

#ChronicIllnessResearch #hEDS #EhlersDanlosSyndrome #POTS #MCAS #MastCellActivation #ChronicIllness #SpoonieLife #InvisibleIllness #AutoimmuneDisease #PatientAdvocacy #CortDoesScience #ChronicleBio #ChronicIllnessCommunity #MedicalGaslighting #PatientScientist #Omics #ChronicPain #CallingInSickPodcast #AlexWildeson

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GET YOUR TISSUES READY!!!! Because this week, on Calling in Sick, I’m sharing the biggest news yet… after 7 years of praying, delayed timelines, a miscarriage and so many set backs. We. Are. FINALLY. PREGNANT!!!!!! 

And today I'm getting into ALL of it:

🌍 How we found out in Amsterdam

❤️ What telling our families was like 

🤰 How I’m feeling at 6 weeks

🤯 What my autoimmune symptoms have been like 

🍼 Why we decided to share this news early 

For anyone in their own motherhood journey right now, whether you’re deep in TTC or just curious about what motherhood could like like for you… I see you, I love you, and I hope this episode gives you a little hope. 🤍

xx,

💬 Comment: Do you think we’re having a BOY or a GIRL?!?!

TIMESTAMP: 

Intro:

00:00:00 Welcome back to Calling in Sick!

00:01:00 Alex’s Picks of the Week (Kroma 24K Chicken Bone Broth, Wow Butter)

We’re Pregnant!:

00:02:44 How we found out (and why we were SHOCKED!!)

00:09:23 How we told our families

00:21:31 Why we shared the news so early

00:23:37 How my autoimmune diseases are doing, and thoughts on a chronic illness pregnancy

00:26:36 My thoughts on being pregnant with a chronic illness

00:30:57 What sex ed didn't teach us about pregnancy….

00:34:10 Current symptoms and cravings

Conclusion:

00:38:46 One Brain Cell Show: Running Point (Netflix)

00:40:37 Thank you for listening!

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Alex’s Picks of the Week:

I’m in my first trimester, which means I’m fighting pregnancy nausea. But!!! I think I’ve found a hack. PROTEIN! Here’s my on-the-go anti-nausea snacks I keep on my person, all the time:

✨Kroma Bone Broth — go.shopmy.us/p-56202425

ALEXANDRA20 for 20% off

✨WOW!Butter — https://amzn.to/4elhC6k

#ChronicIllnessPregnancy #PregnancyAnnouncement #AutoimmunePregnancy #ChronicIllness #SpoonieLife #InvisibleIllness #AutoimmuneDisease #PregnancyWithChronicIllness #ChronicPain #TTC #TTCCommunity #ChronicIllnessMom #Spoonie #MotherhoodJourney #Progesterone #HighRiskPregnancy #MFM #PregnancySymptoms #CallingInSickPodcast #AlexWildeson

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If you've been following me on socials, you already know this, and if you don’t, then sit down for this new….

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If you've been following me on socials, you already know this, and if you don’t, then sit down for this new….

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In this Calling in Sick x Ask Alex, I’m joined by Mickey Trescott to talk about one of the most confusing parts of living with chronic illness: figuring out what’s actually helping… and what might be making things worse. From “food as medicine” discourse to the overuse of words like remission, this conversation gets into the nuance that’s so often missing online.

We cover:

💊 Diet vs. medication: when it makes sense to explore nutrition changes… and when delaying treatment can come at a real cost

🌀 The “remission” conversation: why that word can be misleading in the chronic illness space and how it can create false hope

🥬 Wellness trends under the microscope: mushroom coffee, greens powders, carnivore diets, nootropics, cold plunging, low-histamine diets, and more

⚠️ Supplement overload: why “natural” doesn’t always mean safe, especially for people with autoimmune disease

🧰 Building your toolbox: how to stay open-minded without falling into the trap of extreme protocols or one-size-fits-all advice

If you’ve ever felt overwhelmed by conflicting health advice online, or wondered why something that helped one person made you feel worse, this episode is such an important reminder that chronic illness is never one-size-fits-all. Mickey brings so much clarity to the conversation around management, experimentation, and finding the approach that actually works for your body.

xx,

Alex

💬 Comment: What’s one wellness trend or supplement you tried that didn’t help the way people said it would?

----------------------------------------------------------------

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• TikTok - https://www.tiktok.com/@callinginsickpod

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• Substack - https://substack.com/@callinginsickpod?

Connect with our guest, Mickey Trescott!

• Instagram - https://www.instagram.com/mickeytrescott

• Pre-order The New Autoimmune Protocol - https://theautoimmuneprotocol.com/preorder/

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This week on Calling in Sick, I’m sitting down with Mickey Trescott (@mickeytrescott), one of the original voices behind the Autoimmune Protocol (AIP), to talk about what AIP actually is, who it’s for, and how to approach food when you’re living with chronic illness without spiraling into overwhelm.

Mickey shares the story of her own autoimmune diagnosis journey, how changing the way she ate became one of the first tools that actually helped her feel better, and how that experience eventually led her to help build what became the AIP community. We also get into the evolution of AIP itself, why it’s not meant to be a forever diet, how to think about elimination and reintroductions in a realistic way, and the foods and habits that can make eating feel more supportive instead of more stressful.

We’re diving into:

If food has ever felt confusing, restrictive, or emotionally loaded in the context of chronic illness, this episode is such a grounding reminder that you do not need to do everything perfectly. You just need information, a little structure, and a way of eating that supports your body.

xx,

💬 Comment: Mickey talked about learning your personal food triggers instead of chasing one perfect diet. Have you ever had a food or eating habit make a bigger difference in your symptoms than you expected?

Timestamps: 

00:00:00 Welcome Back to Calling in Sick

00:02:02 Alex’s Picks of the Week: Kroma & Brodo Bone Broth

00:03:55 Mickey Trescott on AIP: What the Autoimmune Protocol Really Is

00:05:09 Mickey Trescott’s Autoimmune Diagnosis Story

00:11:05 From Chronic Illness to Cooking, Nutrition & AIP

00:13:20 Mickey’s First Food & Nutrition “Aha” Moment

00:15:38 Starting AIP and Writing the First Autoimmune Protocol Cookbook

00:20:00 Where to Start with AIP: Elimination, Tracking & Prep

00:26:30 Rapid Fire: Are These Foods Actually Anti-Inflammatory?

00:35:20 Nutrient Density: What Makes Food Support Autoimmune Health?

00:38:26 Mickey Trescott’s Top 3 Most Nutrient-Dense Foods

00:40:58 How Long Should You Stay on AIP?

00:43:28 Symptom Tracking Apps, Wearables & Food Logs

00:44:42 How to Reintroduce Foods After AIP Elimination

00:47:03 The Biggest Misconception About AIP

00:51:33 The 3-Meal Safety Net for Flare Days & Low-Energy Cooking

01:00:35 What to Eat During a Flare When You Have No Energy

01:05:15 One Brain Cell Show: Palm Royale & Love Story

01:05:48 Where to Find Mickey Trescott + Her New AIP Book

01:07:00 Thank you for listening! 

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• Instagram - https://www.instagram.com/callinginsickpod/

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• Facebook - https://www.facebook.com/profile.php?id=61558234607568

• Substack - https://substack.com/@callinginsickpod?

Connect with our guest, Mickey Trescott! 

• Instagram - https://www.instagram.com/mickeytrescott

• Pre-order The New Autoimmune Protocol - https://theautoimmuneprotocol.com/preorder/

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Alex’s Picks of the Week:

This week’s picks are two bone broths I genuinely love. One is perfect for on the go, one is my at-home favorite, and both have become staples in my routine!! 

✨Kroma — https://go.shopmy.us/p-51567197

ALEXANDRA20 for 20% off!! 

✨Brodo — https://amzn.to/4dWnLFZ

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In this Calling in Sick x Ask Alex, I’m joined by Shamekka Marty to discuss the deeply personal and often invisible impact of living with chronic illnesses… how the diagnosis and disease ripples through every aspect of life and relationships. From the way your children see you to the difficult conversations you have with your employer regarding your health.

We cover:

💜 Parenting with chronic illness: how to educate your children without passing on trauma or fear

🤝 The "Village" Effect: how the diagnosis hits the patient and the entire support system

👨‍👧 Chronic Illness Guilt: navigating complex family dynamics and the heavy emotional toll on parents of sick children

🛑 Stop the Flake: how to communicate with friends when your body and mind aren't in sync

🏢 Chronic Illness in the Workplace: the urgent need for empathy training and why you shouldn't be afraid to ask for accommodations

Living with a chronic illness means balancing the roles of parent, professional, and patient all at once. Whether you're struggling with "the guilt of being sick" or trying to build a workplace that understands your value, this conversation offers the validation and tools you need to lead a "big life" while managing a disease

xx,

💬 Comment: What was the hardest "village" conversation you’ve had to have regarding your health?

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• Instagram - https://www.instagram.com/callinginsickpod/

• TikTok - https://www.tiktok.com/@callinginsickpod

• Facebook - https://www.facebook.com/profile.php?id=61558234607568

• Substack - https://substack.com/@callinginsickpod?

Connect with our guest, Shamekka Marty!

• Instagram - https://www.instagram.com/prettysicklupuschick/

• Book her for an event - https://www.shamekkamarty.com/

----------------------------------------------------------------

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Produced by: Alexandra Wildeson — https://www.instagram.com/alexandrawildeson/

Alex’s Picks of the Week:

We talk about some unthinkable medical traumas this week. And TBH, the only thing I’ve found that “helps” is sometimes a GOOD cozy set. Here are some of my FAVES!

✨Mayfair — https://go.shopmy.us/p-21675540

ALEXANDRA15 for 15% off!!

✨Organic Basics — https://go.shopmy.us/p-52216380

ALEXANDRA10 for 10% off!

AND! Ever since Coop and I jumped into our TTC era, I’ve been looking to add new tools to my toolbox for managing chronic illness symptoms and chronic pain. After researching what platforms were out there for this, I decided to partner with Healthnix, the only platform that is built BY chronic pain patients, FOR chronic pain patients! If you’d like to join me for the next 12-weeks in dialing in my nutrition in the name of pain relief… be sure to use the below link AND use my $100-off discount code!!

✨Healthnix — https://healthnix.io/

✨CODE: ALEX100 for $100 off the annual membership (typically $299)… FSA / HSA eligibile

#CallingInSickPodcast #AlexWildeson #LupusAwareness #ChronicIllness #AutoimmuneDisease #LupusWarrior #PatientAdvocacy #KidneyTransplant #OrganDonation #MedicalGaslighting #MaternalHealth #HealthcareDisparities #MekkaMarty #shamekkamarty #PrettySickLupusChick #CallingInSickPod #SpoonieCommunity #InvisibleIllness #HealthEquity #EmpoweredPatient #MedicalRecordAudit #ChronicPainWarriors #LupusSupport  #SpoonieSupport #racialbias 

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This week on Calling in Sick, we are honored to sit down with one of the most resilient and powerful voices in the chronic illness community: Shamekka Marty, better known as Mika or the “Pretty Sick Lupus Chick”. Mika’s journey is a masterclass in turning medical trauma into advocacy, having navigated a life shaped by caregiving, a life-saving kidney transplant, medical trauma and the complexities of being a Black woman navigating the Western medical system with an invisible illness.

We’re diving into:

⭐ Advocacy as a Purpose: How Mika transitioned from her role as a caregiver throughout her childhood to becoming a nationally recognized advocate who uses her story to drive legislative and systemic change

⚠️ Navigating the Unthinkable: Mika opens up about the mental torture of losing her mom at a young age, undergoing seven miscarriages, her surgery complications, and how she held onto hope through it all

🏥 The Reality of Transplantation: An inside look at the organ exchange swap program, the grueling post-transplant medication regimen, and the importance of building a "village" to support your recovery

💊 Taking Power Back: Practical strategies for auditing your health records, overcoming medical gaslighting, and the "smackdown" approach to ensuring your pain is believed and your care is prioritized

If you have ever felt small in a doctor’s office or overwhelmed by a daunting diagnosis, this episode is a reminder that you are the "end user" of your medical practice and you have power to demand better.

xx,

💬 Comment: Mika mentioned that she "focuses on what she can do, not what she can't". What is one thing you’ve accomplished this week, big or small, that made you feel powerful in your own body?

TIMESTAMP

Intro:

00:00:00 Welcome back to Calling in Sick!

00:01:56 Alex’s Picks of the Week (Mayfair, Organic Basics, Healthnix)

Shamekka’s Story:

00:04:59 Intro to Shamekka (Mika) Marty

00:09:20 Caregiving for her mother and grandmother

00:11:15 Mika’s diagnosis journey

00:14:04 Mika’s journey with pregnancy, miscarriage and medical trauma

00:18:40 How Mika turned sorrow into advocacy

Mika’s Kidney Transplant Journey:

00:30:55 Navigating a kidney transplant

00:41:33 Mika’s transplant surgery, post-transplant recovery and medication regiment

00:44:52 How Mika’s family & friends supported her journey

Advocacy & Navigating the Medical System:

00:47:03 Navigating the current medical system & medical gaslighting

00:53:49 A dive into racial bias and maternal health disparities

01:00:21 Mika’s top three tips for chronic illness patients (health records, asking for help and finding community)

Conclusion:

01:12:24 Connect with Mika!

01:14:24 One Brain Cell Show: Law & Order SVU and Scrubs

01:16:54 Thank you!!!!

----------------------------------------------------------------

Stay connected and follow us on socials for more!

• Instagram - https://www.instagram.com/callinginsickpod/

• TikTok - https://www.tiktok.com/@callinginsickpod

• Facebook - https://www.facebook.com/profile.php?id=61558234607568

• Substack - https://substack.com/@callinginsickpod?

Connect with our guest, Shamekka Marty!

• Instagram - https://www.instagram.com/prettysicklupuschick/

• Book her for an event - https://www.shamekkamarty.com/

----------------------------------------------------------------

Powered by: Just Media House -- https://www.justmediahouse.com/

Produced by: Alexandra Wildeson — https://www.instagram.com/alexandrawildeson/

Alex’s Picks of the Week:

We talk about some unthinkable medical traumas this week. And TBH, the only thing I’ve found that “helps” is sometimes a GOOD cozy set. Here are some of my FAVES!

✨Mayfair — https://go.shopmy.us/p-21675540

ALEXANDRA15 for 15% off!!

✨Organic Basics — https://go.shopmy.us/p-52216380

ALEXANDRA10 for 10% off!

AND! Ever since Coop and I jumped into our TTC era, I’ve been looking to add new tools to my toolbox for managing chronic illness symptoms and chronic pain. After researching what platforms were out there for this, I decided to partner with Healthnix, the only platform that is built BY chronic pain patients, FOR chronic pain patients! If you’d like to join me for the next 12-weeks in dialing in my nutrition in the name of pain relief… be sure to use the below link AND use my $100-off discount code!!

✨Healthnix — https://healthnix.io/

✨CODE: ALEX100 for $100 off the annual membership (typically $299)… FSA / HSA eligibile

#CallingInSickPodcast #AlexWildeson #LupusAwareness #ChronicIllness #AutoimmuneDisease #LupusWarrior #PatientAdvocacy #KidneyTransplant #OrganDonation #MedicalGaslighting #MaternalHealth #HealthcareDisparities #MikaMarty #shamekkamarty #PrettySickLupusChick #CallingInSickPod #SpoonieCommunity #InvisibleIllness #HealthEquity #EmpoweredPatient #MedicalRecordAudit #ChronicPainWarriors #LupusSupport  #SpoonieSupport #racialbias 

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In this Calling in Sick x Ask Alex, Dr. Natalie Crawford and I are diving into a rapid-fire round of fertility "hot takes" and essential pregnancy "no-gos". We cut through the noise of social media trends to bring you the data-backed truth about what really matters when you're trying to conceive or expecting.

We cover:

💊 The Wild West of Prenatals

🧬 Folic Acid vs. Methylated Folate

🍵 The truth about those Instagram-famous fertility trends

🍱 Rapid fire on your BIGGEST questions… pregnancy safe or no?!

🤝 Why 50% of infertility cases involve men

🥗 Why anti-inflammatory diets are a "modifiable factor" for success

Navigating the journey to parenthood, especially with a chronic illness, means filtering out misinformation and focusing on what truly sets the stage for success. Whether you're curious about CBD, IVF strategies, or the nutrients missing from your daily vitamin, this episode provides the clarity you need.

xx,

💬 Comment: What is one pregnancy or fertility "rule" that has always confused you?

----------------------------------------------------------------

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• Instagram - https://www.instagram.com/callinginsickpod/

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• Substack - https://substack.com/@callinginsickpod?

Connect with our guest: Dr. Natalie Crawford

• Instagram - https://www.instagram.com/nataliecrawfordmd/

• Website - https://www.nataliecrawfordmd.com/

• Her Fertility Clinic, Fora Fertility - https://www.forafertility.com/

And order her book, the Fertility Formula, here!!

 https://amzn.to/4skCMoh

----------------------------------------------------------------

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Produced by: Alexandra Wildeson — https://www.instagram.com/alexandrawildeson/

Alex’s Picks of the Week:

Since we’re talking about all things fertility, I’m sharing my top picks for replacing your morning and evening beverages…

✨Proper Wild Gummies — https://upf.ai/wjr1keah

✨De Soi — https://go.shopmy.us/p-11007282

#FertilityAndChronicIllness #TryingToConceive #ChronicIllnessAndPregnancy #SpooniePregnancy #FertilityJourney #AutoimmuneAndFertility #ChronicIllness #SpoonieLife #InvisibleIllness #AutoimmuneDisease #FertilityDoctor #ReproductiveHealth #EndometriosisAwareness #IVFJourney #EggFreezing #PregnancyWithChronicIllness #PostpartumHealth #WomensHealth #MedicalAdvocacy #CallingInSickPodcast #AlexWildeson #NatalieCrawford

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This week on Calling in Sick, I'm sitting down with Dr. Natalie Crawford, fertility specialist, reproductive endocrinologist, and someone who gets it on a whole different level because she's been on her own chronic illness fertility journey too.

We're diving into:

🍼 The fear of getting pregnant with chronic illness

💊 Medications, flares & fertility

🔬 Mythbusting fertility misconceptions for women with chronic illness

📋 How to actually start TTC: the tests to ask for, the doctors to see, and how to advocate when you're dismissed

🤰 What TTC really looks like whether you’re trying the old fashioned way, or with the help of a fertility clinic

🧬 Your rabbit hole TTC and pregnancy questions, answered!

So if you've dreamed of starting a family, but have been nervous about that because of your chronic illness, I promise you that this episode will give you real information, real support, and a doctor who actually sees you. 

xx,

Alex

💬 Comment: What's  one question about fertility and chronic illness you've been too scared to ask?

TIMESTAMP:

Intro:

00:00:00 Welcome back to Calling in Sick!

00:03:00 Alex’s Picks of the Week (Proper Wild, De Soi)

Fertility and Chronic Illness with Dr. Crawford:

00:05:04 Intro to the complex world of fertility with a chronic illness

00:14:44 Fear, loss of trust in your body, and the "stolen" joy of pregnancy

00:20:12 How and why the chronic illness fertility journey looks different

00:26:08 Essential things to do for fertility if you have a chronic illness

00:34:00 Debunking myths around chronic illness, fertility and pregnancy

00:46:58 Deep dive into the IVF process: Suppression and Stimulation

01:04:44 Frozen Embryo Transfer (FET) procedure and preparation (and myths)

01:21:59 Living in the "gray" of autoimmunity and medical decisions

Conclusion:

01:27:45 One Brain Cell Show: Bridgerton and Queen Charlotte (Netflix)

01:29:06 Connect with Dr. Crawford & her new book: The Fertility Formula

01:30:31 Thank you for listening!

----------------------------------------------------------------

Stay connected and follow us on socials for more!

• Instagram - https://www.instagram.com/callinginsickpod/

• TikTok - https://www.tiktok.com/@callinginsickpod

• Facebook - https://www.facebook.com/profile.php?id=61558234607568

• Substack - https://substack.com/@callinginsickpod?

Connect with our guest: Dr. Natalie Crawford

• Instagram - https://www.instagram.com/nataliecrawfordmd/

• Website - https://www.nataliecrawfordmd.com/

• Her Fertility Clinic, Fora Fertility - https://www.forafertility.com/

And order her book, the Fertility Formula, here!!

 https://amzn.to/4skCMoh

----------------------------------------------------------------

Powered by: Just Media House -- https://www.justmediahouse.com/

Produced by: Alexandra Wildeson — https://www.instagram.com/alexandrawildeson/

Alex’s Picks of the Week:

Since we’re talking about all things fertility, I’m sharing my top picks for replacing your morning and evening beverages…

✨Proper Wild Gummies — https://upf.ai/wjr1keah

✨De Soi — https://go.shopmy.us/p-11007282

#FertilityAndChronicIllness #TryingToConceive #ChronicIllnessAndPregnancy #SpooniePregnancy #FertilityJourney #AutoimmuneAndFertility #ChronicIllness #SpoonieLife #InvisibleIllness #AutoimmuneDisease #FertilityDoctor #ReproductiveHealth #EndometriosisAwareness #IVFJourney #EggFreezing #PregnancyWithChronicIllness #PostpartumHealth #WomensHealth #MedicalAdvocacy #CallingInSickPodcast #AlexWildeson #NatalieCrawford

Learn more about your ad choices. Visit megaphone.fm/adchoices