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Double vision after stroke is one of those symptoms no one imagines they’ll ever face—until the day they wake up and the world has split in two. For many stroke survivors, it’s confusing, frightening, and completely disorienting. And when it happens as part of a brainstem stroke, like it did for 45-year-old attorney Jorden Ryan, it can mark the beginning of a long and unpredictable recovery journey.
In this article, we walk through Jorden’s powerful story, how double vision after stroke showed up in his life, and what other survivors can learn from the way he navigated setback after setback. If you’re living with vision changes or recovering from a brainstem stroke, this piece is for you.
The Morning Everything Changed
Jorden went to bed preparing for a big day at work. By morning, nothing made sense. When he opened his eyes, the room looked doubled—two phones, two walls, two versions of everything. He felt drunk, dizzy, and disconnected from his own body.
Double vision after stroke often appears suddenly, without warning. In Jorden’s case, it was the first sign that a clot had formed near an aneurysm in his brainstem.
As he tried to read his phone, he realised he couldn’t. As he tried to stand, he collapsed. And as nausea took over, his vision became just one of many things slipping away.
He didn’t know it then, but this was the beginning of a brainstem stroke recovery journey that would test every part of who he was.
Even when paramedics arrived, the situation remained confusing.
By the time he reached the hospital, he was drifting in and out of consciousness. Inside the MRI, everything changed again—his left side stopped working completely. He couldn’t move. He couldn’t speak. He couldn’t swallow. His ability to control anything was gone.
For many survivors, this is where the fear sets in—not only the fear of dying, but the fear of living this way forever.
Understanding Double Vision After Stroke
Double vision happens when the eyes no longer work together. After a stroke—especially a brainstem stroke—the nerves that control eye alignment can be affected.
Survivors often describe it the way Jorden did:
In Jorden’s case, double vision wasn’t the only issue, but it shaped everything that came after. It influenced his balance, his confidence, and even whether he felt safe leaving his home.
Jorden spent nearly three weeks in a coma-like state. Days blurred together. Friends visited. Family gathered. He remembers fragments, but not the whole chapter.
When he finally became more aware, nothing worked the way it used to—not his speech, not his swallow, not his limbs, and certainly not his vision.
This is something many survivors aren’t prepared for:
Inpatient rehab became Jorden’s new world. It was full of firsts, none of them easy.
The first time he tried to sit up.
Everything required more energy than he had.
“When my affected hand moved for the first time, I felt human again.”
Double vision made everything more complicated, especially balance and spatial awareness. Even brushing his teeth triggered trauma because of early choking experiences in hospital.
Still, he kept going.
Just like so many survivors say, the world didn’t stop for Jorden to recover.
On the very day he left inpatient rehab, his close friend—who had also lived with paralysis—died by suicide. Not long after, his dog passed away too.
It felt unfair. Cruel. Like everything was happening at once.
But even in that darkness, Jorden found a way to keep moving.
Double vision after stroke made walking terrifying. Every step felt unpredictable. Every movement demanded complete attention.
He used a slackline as a walking rail. He held onto countertops, walls, chairs—anything that would keep him upright. He practised daily, even when the exhaustion was overwhelming.
This is something survivors often underestimate:
Your brain is constantly trying to make sense of visual chaos. Of course you get tired faster. Of course progress feels slow.
But slow progress is still progress.
Many survivors rely on humour to keep themselves grounded.
For Jorden, it showed up in moments like these:
Humour didn’t erase the trauma, but it gave him permission to keep going.
“Now it’s me versus me. Every step I take is a win, even if no one sees it.”
His story is proof that even when everything falls apart, life can still move forward.
You are not alone.
And you don’t have to navigate that alone either.
If you want guidance, support, and practical tools for rebuilding life after stroke, you’re invited to explore the resources below:
Read Bill’s Book:
Join the Patreon:
This blog is for informational purposes only and does not constitute medical advice. Please consult your doctor before making any changes to your health or recovery plan.
He woke up seeing double, and everything changed. Jorden’s journey through double vision after stroke shows how recovery can begin in the darkest moments.
Jorden’s Facebook
Highlights:
00:00 Introduction to Double Vision After Stroke
Transcript:
Bill Gasiamis (00:01)
and in control of your progress. And so you never have to feel alone or uncertain again. Today you’ll hear from Jordan Ryan, a 45 year old attorney who woke up one morning and nothing worked anymore. His story is raw, honest, and filled with moments that every stroke survivor will recognize. Fear, frustration, identity loss, and the courage to begin again. But I won’t spoil the episode. I’ll let you hear it from him. Jordan Ryan, welcome to the podcast.
Jorden Ryan (00:58)
Bill Gasiamis (01:01)
Jorden Ryan (01:10)
Bill Gasiamis (01:26)
Jorden Ryan (01:34)
Bill Gasiamis (01:55)
Jorden Ryan (02:17)
And I had just seen a person to help me lose weight, the doctor and everybody. so I thought my health was good. And I had probably maybe a year and a half ago, I got into a jet ski, just knocked on conscious when I hit the water. So they did a cat scan and I didn’t know, but I thought that when they did that, I was fine. I was healthy. I didn’t know it would take an MRI to know that stuff. So I felt.
totally fine until the event.
Jorden Ryan (03:22)
Bill Gasiamis (03:38)
What was it like? What happened?
Jorden Ryan (04:08)
and I was gonna be the only one on the call, only attorney on the call. And so I woke up, I could not sleep, which was kind of normal with the CPAP machine. So I watched a movie and then went to sleep maybe an hour before it was time to wake up. And I went to bed and my alarm went off and I got up and I felt like really strange. I saw double, basically like I felt like I’d been drinking all night or something. Then, ⁓
I called into work and said, I’m sorry I cannot help you. Like, I was looking at my cell phone, which I do all the time, and I couldn’t read it or anything like that. being, you know, kind of naive, I think I took a quick shower, like, rinse some cold water on me, thinking maybe that would fix it. No, that’s ridiculous, but I thought it would, and when it got worse, that’s when I called on my one.
Bill Gasiamis (05:35)
Jorden Ryan (05:38)
Bill Gasiamis (05:49)
Jorden Ryan (05:52)
my leg went out. I didn’t know that it like couldn’t move at all. I just fell backwards and it was kidney due to throwing up. So then they came and I was still able to stand and talk and I felt, I mean, other than throwing up and double vision, I felt fine. So they told me that I was probably too young to have a stroke and that maybe it was just ready to go. So I was thinking that, okay, well I’ll just go to the hospital and
you know, get checked out and I’ll come home early. But it seemed to get worse as things were going. I pulled myself up onto the gurney the EMTs had and I remember thinking like I’ve got to go to the hospital now and they were like being nice and getting my stuff and my phone and whatever else and if I threw up they were getting the trash can and I remember thinking I didn’t care if all of my stuff was stolen. I need to go to the hospital now.
So we definitely got up there. When I was kind of in and out of consciousness by that time and I got to the hospital and they checked me out like an actual MRI. And when I was inside of it is when my left side of my body completely quit working. So I didn’t know what was going on. I mean, I had no clue. So I pulled myself out of the MRI.
And some people get claustrophobic or whatever, but this was a square machine and because I felt sick already and half my body quit working while I was in there, it really put fear in me to get out.
Bill Gasiamis (07:59)
Jorden Ryan (08:10)
Bill Gasiamis (08:27)
okay. So when you got to hospital, what was that like? What happened then?
Jorden Ryan (08:33)
He’s gonna die anyway. There are people that need them. Machine.
Bill Gasiamis (09:04)
they didn’t say that, did they?
Jorden Ryan (09:07)
Bill Gasiamis (09:22)
So you have a sense that that’s what they said while you’re being, while you’re on the bed being moved to the MRI.
Jorden Ryan (09:32)
They said, need to call the family so they can say their goodbyes. I think I overheard that. And I was like, what is going on? This can’t be this serious, right? So I really do believe I did hear that though.
Bill Gasiamis (10:12)
Jorden Ryan (10:19)
That’s correct. I wish it would have been just ready to go. Right. But it was all of a sudden went from, you know, pretty good news or decent, extremely dire consequences or like something bad was going to happen. Yes.
Bill Gasiamis (10:42)
Jorden Ryan (10:46)
Bill Gasiamis (10:49)
your recovery and help you feel more confident, informed and in control. And if you’d like to go deeper, remember to check out my book, The Unexpected Way The Stroke Became, The Best Thing That Happened, and support the show on Patreon at patreon.com slash recovery after stroke.
Jorden Ryan (11:34)
Bill Gasiamis (12:03)
Jorden Ryan (12:31)
Bill Gasiamis (12:40)
Jorden Ryan (12:59)
Bill Gasiamis (13:26)
Jorden Ryan (13:32)
but my body like wouldn’t move like I could tell my left hand to move and it would not. So, but other than that, like, ⁓ I felt normal so to speak.
Bill Gasiamis (14:13)
Jorden Ryan (14:25)
Yes, they said I had a stroke, but I had no idea how bad it was.
Bill Gasiamis (14:58)
Jorden Ryan (15:13)
and people would bring plants and when those died, I mean, wow, that’s really a long time to be in the hospital, you know? And the plants died because I couldn’t water them because I’m paralyzed, so, at that time.
Bill Gasiamis (15:54)
Jorden Ryan (15:58)
Bill Gasiamis (16:23)
Jorden Ryan (16:29)
Bill Gasiamis (16:32)
Jorden Ryan (16:37)
I was regaining everything back pretty well from the first stroke. And I thought I was Superman basically. I was healing pretty fast and I was like, I beat it. This is great. And then right back to being in a bad stroke and being a wheelchair and all of that.
Bill Gasiamis (17:25)
Jorden Ryan (17:34)
Bill Gasiamis (17:57)
Jorden Ryan (18:06)
Good chance of death.
Bill Gasiamis (18:37)
Jorden Ryan (18:42)
Bill Gasiamis (18:52)
Jorden Ryan (19:04)
This area right here always felt wet. Like it felt like I was in a pool, even though I wasn’t. So I couldn’t tell if I had food all over me or what have you that I would have to rely on people to tell me. I could chewing a salad is, I mean, it was really, really hard. That was kind of the, as I advanced, that was something I could do. My first stroke, I could not, you know, a steady is it.
I don’t know if you know what that is for using the restroom. It’s like a basically a dolly. put you on and I had a really hard time even trying to use that. I went through a lot of swallow tests. I could not swallow my own saliva. So that was very difficult for me. ⁓ They brushed my teeth and I felt like I was gonna die. I could not breathe. Like probably for that went on for like five minutes.
Like, I mean, I could breathe, sorta, but it was very difficult.
Bill Gasiamis (20:29)
Jorden Ryan (20:34)
Bill Gasiamis (20:45)
Jorden Ryan (20:50)
I think in my colon, so I had to go back to the ICU.
Bill Gasiamis (21:24)
Bill Gasiamis (22:16)
Jorden Ryan (22:17)
Yeah, I think that’s right. And I think probably if it would have just been on me, maybe I could have, but I was like, I’m going to be such a huge burden to my family in my way life is going to be so bad. Like, I was just like, how is this happening? You know, I don’t smoke and like, I don’t do heavy drugs or any of that stuff. So what is going on? And then they said, well, you must drink a lot of energy drinks. And I was like, no, I don’t drink any energy drinks. So they’re like, we don’t know what’s going on then. So just that was.
So for me, I really didn’t know what was going on.
Bill Gasiamis (23:15)
I wasn’t able to solve it. Everything was kind of handed over to other people. It’s not, it was nothing. It was not up to me. And I had to just kind of go through it.
Jorden Ryan (23:51)
people would come and visit me but and to me what’s very strange is that my voice sounded exactly the same before the stroke which it didn’t in real life I was probably like I have no idea what I sounded like but people couldn’t understand me so I would say something to them and they’re like sorry I can’t understand you but in my head I said it perfectly it sounded like me I can hear ⁓ like my slur now but I could not at first
Bill Gasiamis (24:47)
Jorden Ryan (25:06)
I remember being kind of upset at you because you said it was the best thing that ever happened to you and that was it was too new for me. I was like, what do you mean? That’s not possible. And a nurse came and said, well, you have the beautiful blue eyes and that my eyes are green. So I was like, well, maybe my hair will grow back and I’ll have blue eyes. Maybe it’ll be the best thing that ever happened. But yeah, I mean, I wasn’t really mad at you. I just said the time I could not accept those that verbiage.
Bill Gasiamis (26:02)
Similar to what you said. It was a bit more rude. It wasn’t so polite ⁓ And I and I was like, ⁓ no, no, no, you guys have got it wrong I don’t think I think you missed the boat. No, sorry. You missed the point the point being that It was really terrible when I was going through it for three years But when I came out the other side, there was a lot of personal growth. There was a lot of ⁓ Things that I had appreciated that I’d done that I’d learned that I’d overcome etc
that became the reason why I was able to say it was the best thing that happened to me because I started a podcast, I wrote a book, I’ve spoken publicly about it, I have this platform, I’ve created a community, all these things, right? So the things that I didn’t know that I was lacking in life before the stroke, I thought my life was complete, waking up in the morning, going to work, coming home to the family, cooking dinner, paying the bills.
paying the mortgage, the car lease. I thought it was all cool, all complete, but I was kind of unhappy. There was a lot that I was lacking in my life. And only because of the stroke journey, the end result of the podcast, the book and all that stuff, did I realize, ⁓ actually the…
Aftermath, the things that I have grown and discovered were the best things that happened to me. And it was because of the stroke. It’s such a weird and dumb thing to say. Like I can’t even wrap my head around it, that I had to go through something so dramatic to accomplish some amazing things. I wish I would have just done it before the dramatic events. I wish there didn’t have to be one. And that being said though, I’m 13 years.
post stroke, the first one, and I still live with the deficits. I still have problems sleeping on my left side because it’s numb and it’s burning and it tingles and all that kind of stuff. When I get tired, I still have balance issues when, ⁓ you know, sometimes my memory is a bit flaky because of it, but you know, a little bit, I still have deficits in my muscles and spasticity and all that kind of stuff and it hurts. I’ve accepted that part of it.
how it feels in my body, but I’ve also ⁓ gone after the growth. Like I’ve really, ⁓ seriously, dramatically gone after the post-traumatic growth that comes from a serious episode. And what I hope-
Jorden Ryan (29:10)
Bill Gasiamis (29:21)
Jorden Ryan (29:38)
Bill Gasiamis (29:45)
I definitely come across people regularly, even though ⁓ I’ve been speaking about it for a little while, who come across the first podcast episode that I’ve done, that they’ve found in the 370 odd. And then they hear me say that again. And then there’s also, there’s sometimes a repeat of that incident where I know exactly where they’re at. Like I know exactly what’s happening. I know they don’t know that. And then what I hope that happens is say in three or four years,
they can, when they go, there was that crazy guy who said stroke was the best thing that I wonder what that was about. I’m going to go get that book now and I’m going to read it. And I’m going to see if I can, you know, shift my mindset from perhaps something that’s been bugging me to something that we can grow from. And the book has got 10 steps to recovery and personal transformation. It not 10 steps to getting your perfect walk again, or making your hand work perfect again, or
you know, getting rid of your deficits. It’s not that kind of book. It’s an inspiring book. We’re trying to give people some tools that they can use that doesn’t cost them any extra that will improve the quality of their health and their life. And it doesn’t matter how injured you are because of a stroke. That’s what the book helps people to do. I love challenging people. I’m not, of course, you know, I’m not intending to make people think that I promote.
stroke is something that they must experience as ⁓ you know.
Jorden Ryan (31:23)
Bill Gasiamis (31:26)
It’s not on audible. I am going to remedy that at some stage. I’m going to remedy that and I’m going to get people the ability to listen to it because ⁓
Jorden Ryan (31:46)
Bill Gasiamis (31:49)
Jorden Ryan (31:51)
Bill Gasiamis (32:01)
After your three weeks in ICU the first time, I think you began inpatient rehab. What were those days like going through that first few motions of trying to get yourself up and about?
Jorden Ryan (32:16)
I was very lucky in the fact that I had a friend that had told me like, hey, you have done hard things before you were, you know, in Muay Thai, you were a attorney, you can do it again. And then in my mind, I was like, you’re not a brain doctor. What are you talking about? Leave me alone. So even though the expression was being really nice internally, that’s what I was thinking. Then I saw something like, um, it was, you know, I think it was a PT, a physical therapist who said,
think that you’re gonna heal yourself in three hours a week or a day or whatever, that’s not it. Then I had another friend who told me that his sister had a stroke and she wished she would have done more during recovery. So I eventually got to the point thinking like, well, all these doctors are saying it depends, which is a fair answer, right? And I tell clients that and they hate it. But I thought that’s better than absolute no.
They’re not saying and so they’ve made it to me like, well, maybe I won’t get better, but it’s not going to be from me not trying. I think another one of the people on your episodes ⁓ saying like they were always very positive and I was like, that’s not me. That’s I’m not 100 % going to be better. That just wasn’t my attitude during it. I mean, it’s good. wish I would have been, but unfortunately I wasn’t. But it kind of.
Over time it’s gotten better, but at first it was very difficult for me.
Bill Gasiamis (34:17)
Jorden Ryan (34:35)
Being able, like, even just to move my finger, like, in my defective hand for the first time was huge, and then I was able to use my thumb to… I feel human again. I mean, to be honest with you, when I couldn’t talk and I couldn’t move and everything, it just felt weird, like it wasn’t me.
Bill Gasiamis (35:22)
Jorden Ryan (35:27)
were some setbacks. I, again, I watched one of your episodes and a gentleman told me, like I said, he had the fatigue set in later on in his journey. And so one of the things I was like, well, I’m so lucky that I don’t have that because I go to the gym pretty often. And that would be devastating to have fatigue. And then I also had fatigue. I mean, to the point where I didn’t want to move around at all. didn’t want to
get out of bed hardly so there’s setbacks in the fact that like my my sister and brother-in-law luckily took me in I mean they were like ⁓ angels so to speak but they live in a big one bedroom app like one one floor house I meant to like a ranch style and just going to the bathroom was a setback because it would take forever to walk down the hall or whatever I mean it was my gate it was a walking style was
Pretty hilarious there, you saw me.
Bill Gasiamis (36:27)
Jorden Ryan (36:34)
Bill Gasiamis (36:53)
Jorden Ryan (36:55)
Bill Gasiamis (37:11)
a few, maybe about four five months after the second bleed, it was still very dramatic. And I couldn’t really appreciate how ⁓ I took for granted that trip before that. Like it was just, it never crosses your mind.
Jorden Ryan (37:55)
Bill Gasiamis (38:11)
Jorden Ryan (38:24)
Bill Gasiamis (38:32)
Jorden Ryan (38:44)
Okay, now what foot goes next, right? It sounds ridiculous, but that’s really what I was like. My mind was, I had to think every time like learning to walk. I was like, what hand goes in front? with what foot? Like it was, I mean, very, very basic, like to the beginning, right? Like before elementary school, like it was, so everything I did was taxing mentally because I just had to think about stuff that you don’t normally think about, right? Like
Okay, I should breathe. It wasn’t quite as bad as that, but that’s pretty close.
Bill Gasiamis (39:37)
Jorden Ryan (39:53)
When I got out of the hospital, my friends and family and whatever got together and took me out to eat and the noises were so loud that my senses were too heightened. It was confusing to me. I had a lifetime of going out to eat with friends and going to drinking or whatever. This was just a lunch and I couldn’t really handle it. It was almost too much for me. The car ride from
maybe a three hour car ride, had to close my eyes because I would feel sick if they were open. it was, I realized just how different my life is gonna be, right?
Bill Gasiamis (40:59)
Jorden Ryan (41:02)
I have to push myself to do that kind of stuff because I don’t know, I think it’s easy to become depressed, right? Like, it’s easy to just be like, I will just sit here on the couch, watch TV. I don’t really watch TV, but… And even that is hard with my eyes doubled, but I mean, like, I push myself to hang out with friends or go to eat or something. But it’s very difficult. I would rather just stay home. If you just ask me, like…
I mean, I’m always excited to go out with people, that’s not what I mean, but it just is easier to stay home.
Bill Gasiamis (41:37)
It’s not the easy way out. seems that way, it’s potentially leading you down a path that you don’t want to go down.
Jorden Ryan (42:11)
Bill Gasiamis (42:26)
Jorden Ryan (42:31)
Bill Gasiamis (42:47)
And then I’m gonna be really exhausted tomorrow. I know that tomorrow I’m gonna be really, and I’ve got nothing booked in. I’m gonna do absolutely nothing for the entire day so that I can go out and go hard tonight, whatever tonight looked like, whatever that was gonna be like. And that was where I earned my recovery, my lazy. I’m sitting on the couch and I’m watching TV or I’m reading a book or I’m not doing anything.
That’s exactly how I kind of used to talk to myself about doing nothing on the following day.
Jorden Ryan (43:54)
people and everything just kinda makes it harder to be depressed.
Bill Gasiamis (44:32)
Jorden Ryan (44:57)
It was almost like I didn’t expect that that late in my recovery It was not that long but still it was strange to me probably maybe a month after I got out of the hospital so luckily my mom took me to the pool quite a bit and Pushed a wheelchair even though it’s really heavy and she is older so
Bill Gasiamis (45:50)
appeared like it was working normally, but it felt strange because the water pressure on my affected side, that was different. Feeling the water pressure on my affected side for the first time was really strange. What was cool about it is they gave me a life vest, so there was no chance of falling over, drowning, dying, or anything like that in the water. And it was really a real relief because my body felt really free for the first time. And then as I got better and we started to get out and about,
One particular summer we went to a ⁓ waterfall here near where I live. And in the pond at the bottom of the waterfall went for a swing. But the difference is ⁓ fresh water ⁓ is different from salt water. And I had never swum in ⁓ fresh water.
Jorden Ryan (47:11)
Bill Gasiamis (47:14)
Jorden Ryan (47:17)
Bill Gasiamis (47:42)
Jorden Ryan (47:47)
I did a triathlon in the ocean and it was so much easier. I was pretty happy. I was the other way around. I’m used to swimming in fresh water and then in salmon and salt water and that was all post stroke. But I can know what you mean. There’s a huge difference.
Bill Gasiamis (48:27)
Yeah, you’ve done a triathlon post stroke.
Jorden Ryan (48:33)
Bill Gasiamis (48:59)
What’s cool about, what’s cool is that now there’s competitions where people can go and compete ⁓ after they’ve been, like the Paralympics is a classic example, right? And all the events leading up to the Paralympics where people can go and compete, get physical, even though they have deficits. That wasn’t something that was possible decades and decades ago. It’s a fairly new thing. I love that even though people are injured and
they’ve had difficult times, perhaps their limbs aren’t working correctly. Some people still decide, I know I’m gonna be a competitor still, I’m gonna be with one arm, with one leg, with whatever my, whatever I have left, I’m gonna do the most I can and compete as much as I can to be the best in my particular sport. I love that about the things that people can access today about participation in sport, even though they’re
injured.
Jorden Ryan (50:02)
It is good that they have that kind of stuff, I think. Like, I’m looking at bikes for mountain biking with three wheels and stuff, so.
Bill Gasiamis (50:39)
Jorden Ryan (50:45)
as important as it was before.
Bill Gasiamis (51:15)
Jorden Ryan (51:18)
Bill Gasiamis (51:44)
Yeah, same with us in Australia. mean, there’s lots of laws to try and protect people who have a disability of some kind, injury, whatever you want to call it, so that there’s less discrimination, so that there’s more services, so there’s more access. ⁓ It’s one of the best conversations that people have because they kind of say, well, we know that this particular service that is going to be provided
is going to be provided for all the population and 93 % of the population, for example, it’s not a real number, will be able to access it beautifully. What about the other 7 % who are not gonna be able to access it? We need to think about them. We need to think about how they’re going to go about ⁓ traveling on this service or accessing this service or getting in and out of this particular office or building and all that stuff.
is taken into consideration in the design and planning phase now. So you can move around Melbourne, my hometown, in a electric wheelchair or a regular push wheelchair. And you will not have to worry about getting on a train, getting on the public transport, a bus, the tram, ⁓ going down a curb, all the curbs are ⁓ angled down. So this beautiful, nice smooth path towards the road and then up again.
Jorden Ryan (53:13)
Bill Gasiamis (53:22)
Yeah, what’s the point?
⁓ Now, the thing about stroke is that unfortunately life doesn’t get put on hold for us to recover from it and then let us get back into life as if we were okay. And I remember going through the third bleed and then a couple of weeks later, literally two weeks later, I think, maybe about a week later, my mother-in-law passed away. And then we had to have her funeral before my brain surgery.
and my wife had to deal with all of that, right? You also, you lost one of your friends soon after you got out of, I think it was at rehab.
Jorden Ryan (54:19)
Such a little thing like, wow, this guy can go to the bathroom by himself. I wish I could do that, right? But unfortunately, yeah, he died by suicide the day that I got out. It was devastating and very hard. I mean, that was somebody I planned on spending a lot of time with because he lived in the same city that my sister took me in that I was going to hang out with. I mean, not just about me. It was just sad that that happened, obviously.
Bill Gasiamis (55:14)
Jorden Ryan (55:22)
dick dab that, but I felt like I was in a country song.
Bill Gasiamis (55:55)
Jorden Ryan (55:56)
around me. So I mean, there are so many amazing things. So I have to open that up and not stay in the darkness too long. I can’t stop from happening personally, like this part of my life, but I can get out of it. Like luckily I have those tools, so to speak. Like I can be like, okay, this is happening. This is amazing. Or my family is healthy or whatever it happens to be or
just people being really nice, seeing that, right? But I did have, my hand was like clawed and I would open the door and some people were nice and be like, let me get that door for you. Well, I cannot open my hand to let go of the door. It would almost knock me over several times. So kind of funny.
Bill Gasiamis (57:13)
beneath the footrest and kind of the wheel of the wheelchair and it was kind of getting dragged and I couldn’t feel it had no idea but my wife was struggling to push the wheelchair
Jorden Ryan (57:54)
Bill Gasiamis (57:57)
was going, well, this so hard to push. And then we had to have a look around and realize the reason it was hard to push, because my foot is under the wheelchair and I have no idea that it’s there and it’s getting stuck. ⁓ We laughed about it because what else are you gonna do at that moment? It was pretty ridiculous and funny at the same time.
Jorden Ryan (58:16)
my leg, but I mean, it felt like I ran over a rock or something like, so similar, not the same, but similar to me. Like, didn’t know if my leg would ever come back, you know? So people are all different levels of their journey. Like I was not upset, but I was surprised to see people in patient rehab. They could walk so well. like, Hey, we are really struggling over here. We’re in a wheelchair. That’s not the right attitude to have, but that’s how it was, you know,
Bill Gasiamis (59:12)
Jorden Ryan (59:14)
Jorden Ryan (59:42)
Bill Gasiamis (1:00:05)
Jorden Ryan (1:00:08)
they would say, use this to pull out the saliva and the, you know, whatever it was. So that’s how I would, I had to brush my teeth like that, then wipe it out. And it was much different feeling. mean, there are so many odd things that happened I can’t remember. And I wanted to tell people on your broadcast because, you know, it is difficult to lay there and be hurting and like so bad with your deficits and seeing a lot of people that are healed because you don’t know if you’ll ever get there.
So I wanted to say that just because like you are bad and your deficits are bad, there is help. There’s a chance. I don’t know for sure everybody, but there is, I think hope is, I learned about it in the hospital and I think that it’s very important to know that there’s possibility of getting better.
Bill Gasiamis (1:01:29)
Jorden Ryan (1:01:34)
At least I had the cards to look through, know, so that was very nice. But my actual job role was I worked with a small team here and we did contract work to make sure that there wasn’t anything that was, you know, bad for us.
Bill Gasiamis (1:02:18)
Jorden Ryan (1:02:48)
to go on basically because I couldn’t communicate at all. Some people have it where they can’t think words or where they can’t do the, I mean, I couldn’t say anything. it was very difficult, it was very hard to not be able to talk to people because I do communicate every second of my life as far as I know. So to not be able to communicate at all, it was very difficult. I had to point at things and try to write stuff out even though I couldn’t write. So it was…
pretty hard.
Bill Gasiamis (1:03:48)
Jorden Ryan (1:03:57)
And luckily, think that helped my, you know, it’s hard to say what heals you because there’s so many things that play a part in it. But I was able to, somebody could understand some words that I said at least. So that was a very positive start.
Bill Gasiamis (1:04:45)
Jorden Ryan (1:04:56)
and I just walked and I did that because there was a rail at the YMCA that I walked by and I was like, wouldn’t that be nice if I had an outside rail that I could just use to walk and so I had slack line and then underneath it, I wore it out like a dog or a cow walking all the time and like because I could not use my my left leg was not very strong at all but it was getting stronger. You know, I tried to jump
like up and I could not even inch vertical it was zero and I couldn’t bend my legs up so I think that was the start of something that really helped me because I could go do it like any time of day or night I mean I didn’t do it 2 a.m. but I did it it was easier to do instead of having to rely on someone to give me a ride somewhere ⁓
Bill Gasiamis (1:06:17)
Jorden Ryan (1:06:19)
Bill Gasiamis (1:06:20)
a slackline.
Jorden Ryan (1:06:22)
Bill Gasiamis (1:06:25)
Yeah, I understand. ⁓ I just didn’t know it was a thing that you could even get one. I mean, I’ve never had one. I’ve never thought about one, but like it makes complete sense now, but I didn’t realize. I should have realized that you can get everything off Amazon, but that’s all right. I was just trying to wrap my head.
Jorden Ryan (1:06:49)
A thing that is battery operated that sends like so your hand will go like this I can’t remember what it’s called it’s like vital stem but just on Amazon too and I would work that every day tried to get my hand to open and tried to because they try to get you to turn a key imagine a key like you’re starting your car but with your other your affected hand and this would help that like it would wake up those muscles so kind of
Bill Gasiamis (1:07:49)
Jorden Ryan (1:07:50)
and not have a girlfriend or a wife, I was like, well, am I never gonna have sex again? And that was very scary to me.
Bill Gasiamis (1:08:23)
Jorden Ryan (1:08:27)
is, it has not happened yet, but I don’t have the same concerns that I had. Like I think to say it politely, I think that I’m able to perform in the bedroom. don’t know though. So maybe I’m going to say that I can’t just to feel better about myself, but definitely my libido or whatever has gone down, you know? So, ⁓ it is what it is, as they say, like maybe it will pair, maybe it will not. don’t know.
Bill Gasiamis (1:08:57)
Jorden Ryan (1:09:21)
I was like, well, maybe I’ve been in the hospital so long, that’s the problem. And so I just didn’t, I mean, as you know, you just don’t know. So hopefully, yeah, I will be able to talk to the doctor about that. I think after being in the hospital the first time, my modesty is kind of out the window. Like I had to do so many things in front of nurses that asking difficult questions is not as difficult as it once was.
Bill Gasiamis (1:09:57)
Yeah, I imagine having had your diaper changed by a nurse at the age of 40 something is probably one of those moments that kind of says, well, I’ve done that. If I’ve done that, everything else is a piece of piss, so to speak, after that, as we say.
Jorden Ryan (1:10:27)
Right, that’s exactly correct.
Bill Gasiamis (1:10:39)
Jorden Ryan (1:10:56)
Everything is with somebody like you can’t get up out of your chair. You can’t go do anything So all of a sudden you’re just you’re free like go ahead And like the same day or the day before this was a big no-no now. I can just do it and like yep so I mean, I’m still scared to cut things with the knife like vegetables stuff because I’m on blood thinner and I don’t want to have an accident I mean you don’t know what you don’t know so I
cognitively, I think that I’m there, but I also think that could walk, right? And that’s not true. So I don’t know what could happen and what could not happen. So rehab is just, I try to do, be dangerous, the safest I can. Like I walk, but I try to make sure that I can grab onto something or if I’m gonna like try to walk, I can fall or I’ll be by my bed or something like that. And so it is difficult to try to be by myself even now. It’s been a
over a year.
Bill Gasiamis (1:12:24)
Jorden Ryan (1:12:28)
when they say they tie their hand up or whatever. I didn’t do that, but I imagine having kids would be difficult for me because I couldn’t barely do things with my left hand. Like, forget it. I would just do it with my right hand. anyway, I say that because yes, I am learning a lot more now, even though ⁓ it has been over a year. It is scary to read stuff, facts, I think that are outdated that say, you know, your height and specificity is a year. Then after that,
Probably not as much. Things aren’t gonna happen as fast. I have not found that to be true, but who knows?
Bill Gasiamis (1:13:36)
Jorden Ryan (1:14:03)
Bill Gasiamis (1:14:13)
Jorden Ryan (1:14:33)
If I did have cognitive issues, I would really have a hard time going through the medical system and especially what doctors say. It is, I mean, it is scary. I’ve had more doctors than I can imagine, different cities and different areas and they say different things. So again, I took that to my advantage of I got to choose my own destiny instead of a doctor saying, that’s the best you will get ever. It’s like, yeah.
Bill Gasiamis (1:15:29)
I had half of my thyroid removed ⁓ just before my after my stroke, my brain surgery about a year and a half later. And the surgeon came in after we’d done all the tests and she was trying to encourage me to have the surgery. And she said, we’ve got the results from your tests. They’re inconclusive. So she goes,
But that doesn’t mean it’s not cancer. So it could be cancer and it could not be cancer. And then she closed the door and walked out of the room and I was.
Jorden Ryan (1:16:35)
Bill Gasiamis (1:16:37)
10 or 15 minutes later. And when we went in the meeting, ⁓ the surgeon came to me and said, ⁓ hi, how are you? How’s things? And I said, look, I’m okay, but I need to talk to you about what you said to me earlier. She goes, what did I say? I said, you said you dropped the C word, then you closed the door and you walked out.
Jorden Ryan (1:17:27)
Bill Gasiamis (1:17:34)
We a little role play. She was devastated at the same time, but I think that was a little lesson that made her think about maybe be careful with what you say in front of patients who could be vulnerable in your care. They’re in your care, so they’re vulnerable. They’re coming to you for support, not for trauma.
Jorden Ryan (1:18:06)
Yeah, I think I need you to go to my appointments with me. Tell the doctor some of these things because you’re right. Some of them do say stuff that is… I don’t know if they don’t know that it’s outlandish or they just do it so often they don’t realize it but when you are a patient and you hear something like that it’s a big deal. They say it like it’s nothing but yes of course it is a possibility but you know come on but…
I have all these surgeries they can do for me ⁓ such as a cochlear implant where I can hear out of this year because it’s so difficult but I can’t not come off the blood thinner. So there’s only a 5 % chance that I could have another stroke or so they say but man the strokes are hard. I remember walking around the YMCA one lap was no 10 laps was a mile and I was like this is crazy because I could only do maybe two with my
uh, Walker, and I heard you saying that you learned to walk twice, I was like, oh, I don’t think I could ever do that. And, uh, I remember thinking, I guess I would do it a hundred times if I had to, but boy, I sure wouldn’t want to.
Bill Gasiamis (1:19:35)
Jorden Ryan (1:19:56)
were my full model. So, no, I’m just kidding. I had to do it, you know, two other times other than when I was an infant, whatever, baby, whatever, it was so… ⁓
Bill Gasiamis (1:20:09)
Jorden Ryan (1:20:16)
Bill Gasiamis (1:20:18)
It’s more injury, it’s less brain that you’ve got to work with now every bloody time.
Jorden Ryan (1:20:49)
Bill Gasiamis (1:21:05)
Jorden Ryan (1:21:09)
Bill Gasiamis (1:21:19)
I did, yeah. They’re my favorite ones to do, but they’re the hardest ones to do as well because ⁓ they require you to be really in flow and out of your head. So if you’re thinking about what you want to talk about, it’s really hard to do it. And also I get really self-conscious when people walk past me and I’m talking to a stick ⁓ and a camera. It’s just a bit weird.
I know heaps of people are doing it and they’re comfortable with it and it’s good content because I know people love watching it, but it’s just so hard to do. And especially in winter, like I don’t want to be outside doing that stuff in winter. I don’t mind sitting down here and doing it. I will do some more walking once. I definitely will. But I think I’ll prefer to find somewhere where that’s a little more secluded where I don’t have to worry about people coming into my frame or into my field of view or something like that. It’s just so hard.
Jorden Ryan (1:22:16)
Bill Gasiamis (1:22:45)
Jorden Ryan (1:22:53)
I can only do what I can do and like the rest, whatever. You know, so that I think that’s the kind of person I am now. It’s been a major mind shift, totally different than what I was before. And instead of worrying about every little thing or maybe I won’t wake up tonight. mean, I just let’s get, let’s go after it. Let’s get it done. Right. So I don’t know. It is scary too. It’s sometimes to go to sleep because I have my CPAP machine on.
And then I’m like, maybe this will cause another stroke. Maybe I should stay awake. That’s ridiculous, I have to get some sleep. But I’m just, now I think that I just do it, you whatever it happens to be. Whether it happens to be walking down the hall or it happens to be, the good thing about me now is that I don’t care what I look like. I don’t care about like…
I have my why or whatever and so nothing else matters, right? I’m dialed in. Like I don’t care if I have food on my face or like one bad example is I was working out the why and workout was like standing up. It wasn’t hard. It wasn’t like hardcore aerobics or anything. And I peed my pants a little bit. Like instead of not working out and not doing anything and going home, I just was like, ⁓ I guess, I mean, it wasn’t like all over the equipment or anything, but.
It was enough that I was like, okay, I will stay at the gym and get things done where before I would never do that.
Bill Gasiamis (1:24:51)
mental runner who doesn’t stop running under any circumstances. Nothing is going to get in the way. That was very Goggins-esque what you did. ⁓ I paid my pants. So what? Keep going.
Jorden Ryan (1:25:12)
trying to do something so I’m very dedicated to try to get better.
Bill Gasiamis (1:25:45)
and tomorrow I’m gonna be better at it.
Jorden Ryan (1:26:17)
Jorden Ryan (1:26:45)
vision the second, well both times, you know the second time and I was kind of pretty upset because one thing of me all the way through my body was messed up and I was like well if only my both my legs were good that would be great right or both my arms were good I could at least do the wheelchair pause like pretty good or I wish both of my eyes were tight I could read what I have all this time off but none of the
I was thinking how selfish is that? I mean I have one thing that works so I need to get it together right and live the best life that I can. I think that is probably what I would say one sentence is ⁓ live the best life that you can. Whatever you’re into if it’s doing nothing then it’s fine but if it’s just be happy be content of what you have.
Bill Gasiamis (1:28:05)
Jorden Ryan (1:28:12)
Bill Gasiamis (1:28:26)
If you’d like to go deeper, remember to check out my book, The Unexpected Way That a Stroke Became the Best Thing That Happened. You can get it at recoveryafterstroke.com slash book and support the show on Patreon at patreon.com slash recovery after stroke. Importantly, we present many podcasts designed to give you an insight and understanding into the experiences of other individuals.
Opinions and treatment protocols discussed during any podcast are the individual’s own experience and we do not necessarily share the same opinion nor do we recommend any treatment protocol discussed. All content on this website and any linked blog, podcast or video material controlled this website or content is created and produced for informational purposes only and is largely based on the personal experience of Bill Gassiamus. The content is intended to complement your medical treatment and support healing. It is not intended to be a substitute for professional medical
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The post Double Vision After Stroke: What Jorden’s Story Reveals About Brainstem Stroke Recovery appeared first on Recovery After Stroke.
By Recovery After Stroke4.9
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Double vision after stroke is one of those symptoms no one imagines they’ll ever face—until the day they wake up and the world has split in two. For many stroke survivors, it’s confusing, frightening, and completely disorienting. And when it happens as part of a brainstem stroke, like it did for 45-year-old attorney Jorden Ryan, it can mark the beginning of a long and unpredictable recovery journey.
In this article, we walk through Jorden’s powerful story, how double vision after stroke showed up in his life, and what other survivors can learn from the way he navigated setback after setback. If you’re living with vision changes or recovering from a brainstem stroke, this piece is for you.
The Morning Everything Changed
Jorden went to bed preparing for a big day at work. By morning, nothing made sense. When he opened his eyes, the room looked doubled—two phones, two walls, two versions of everything. He felt drunk, dizzy, and disconnected from his own body.
Double vision after stroke often appears suddenly, without warning. In Jorden’s case, it was the first sign that a clot had formed near an aneurysm in his brainstem.
As he tried to read his phone, he realised he couldn’t. As he tried to stand, he collapsed. And as nausea took over, his vision became just one of many things slipping away.
He didn’t know it then, but this was the beginning of a brainstem stroke recovery journey that would test every part of who he was.
Even when paramedics arrived, the situation remained confusing.
By the time he reached the hospital, he was drifting in and out of consciousness. Inside the MRI, everything changed again—his left side stopped working completely. He couldn’t move. He couldn’t speak. He couldn’t swallow. His ability to control anything was gone.
For many survivors, this is where the fear sets in—not only the fear of dying, but the fear of living this way forever.
Understanding Double Vision After Stroke
Double vision happens when the eyes no longer work together. After a stroke—especially a brainstem stroke—the nerves that control eye alignment can be affected.
Survivors often describe it the way Jorden did:
In Jorden’s case, double vision wasn’t the only issue, but it shaped everything that came after. It influenced his balance, his confidence, and even whether he felt safe leaving his home.
Jorden spent nearly three weeks in a coma-like state. Days blurred together. Friends visited. Family gathered. He remembers fragments, but not the whole chapter.
When he finally became more aware, nothing worked the way it used to—not his speech, not his swallow, not his limbs, and certainly not his vision.
This is something many survivors aren’t prepared for:
Inpatient rehab became Jorden’s new world. It was full of firsts, none of them easy.
The first time he tried to sit up.
Everything required more energy than he had.
“When my affected hand moved for the first time, I felt human again.”
Double vision made everything more complicated, especially balance and spatial awareness. Even brushing his teeth triggered trauma because of early choking experiences in hospital.
Still, he kept going.
Just like so many survivors say, the world didn’t stop for Jorden to recover.
On the very day he left inpatient rehab, his close friend—who had also lived with paralysis—died by suicide. Not long after, his dog passed away too.
It felt unfair. Cruel. Like everything was happening at once.
But even in that darkness, Jorden found a way to keep moving.
Double vision after stroke made walking terrifying. Every step felt unpredictable. Every movement demanded complete attention.
He used a slackline as a walking rail. He held onto countertops, walls, chairs—anything that would keep him upright. He practised daily, even when the exhaustion was overwhelming.
This is something survivors often underestimate:
Your brain is constantly trying to make sense of visual chaos. Of course you get tired faster. Of course progress feels slow.
But slow progress is still progress.
Many survivors rely on humour to keep themselves grounded.
For Jorden, it showed up in moments like these:
Humour didn’t erase the trauma, but it gave him permission to keep going.
“Now it’s me versus me. Every step I take is a win, even if no one sees it.”
His story is proof that even when everything falls apart, life can still move forward.
You are not alone.
And you don’t have to navigate that alone either.
If you want guidance, support, and practical tools for rebuilding life after stroke, you’re invited to explore the resources below:
Read Bill’s Book:
Join the Patreon:
This blog is for informational purposes only and does not constitute medical advice. Please consult your doctor before making any changes to your health or recovery plan.
He woke up seeing double, and everything changed. Jorden’s journey through double vision after stroke shows how recovery can begin in the darkest moments.
Jorden’s Facebook
Highlights:
00:00 Introduction to Double Vision After Stroke
Transcript:
Bill Gasiamis (00:01)
and in control of your progress. And so you never have to feel alone or uncertain again. Today you’ll hear from Jordan Ryan, a 45 year old attorney who woke up one morning and nothing worked anymore. His story is raw, honest, and filled with moments that every stroke survivor will recognize. Fear, frustration, identity loss, and the courage to begin again. But I won’t spoil the episode. I’ll let you hear it from him. Jordan Ryan, welcome to the podcast.
Jorden Ryan (00:58)
Bill Gasiamis (01:01)
Jorden Ryan (01:10)
Bill Gasiamis (01:26)
Jorden Ryan (01:34)
Bill Gasiamis (01:55)
Jorden Ryan (02:17)
And I had just seen a person to help me lose weight, the doctor and everybody. so I thought my health was good. And I had probably maybe a year and a half ago, I got into a jet ski, just knocked on conscious when I hit the water. So they did a cat scan and I didn’t know, but I thought that when they did that, I was fine. I was healthy. I didn’t know it would take an MRI to know that stuff. So I felt.
totally fine until the event.
Jorden Ryan (03:22)
Bill Gasiamis (03:38)
What was it like? What happened?
Jorden Ryan (04:08)
and I was gonna be the only one on the call, only attorney on the call. And so I woke up, I could not sleep, which was kind of normal with the CPAP machine. So I watched a movie and then went to sleep maybe an hour before it was time to wake up. And I went to bed and my alarm went off and I got up and I felt like really strange. I saw double, basically like I felt like I’d been drinking all night or something. Then, ⁓
I called into work and said, I’m sorry I cannot help you. Like, I was looking at my cell phone, which I do all the time, and I couldn’t read it or anything like that. being, you know, kind of naive, I think I took a quick shower, like, rinse some cold water on me, thinking maybe that would fix it. No, that’s ridiculous, but I thought it would, and when it got worse, that’s when I called on my one.
Bill Gasiamis (05:35)
Jorden Ryan (05:38)
Bill Gasiamis (05:49)
Jorden Ryan (05:52)
my leg went out. I didn’t know that it like couldn’t move at all. I just fell backwards and it was kidney due to throwing up. So then they came and I was still able to stand and talk and I felt, I mean, other than throwing up and double vision, I felt fine. So they told me that I was probably too young to have a stroke and that maybe it was just ready to go. So I was thinking that, okay, well I’ll just go to the hospital and
you know, get checked out and I’ll come home early. But it seemed to get worse as things were going. I pulled myself up onto the gurney the EMTs had and I remember thinking like I’ve got to go to the hospital now and they were like being nice and getting my stuff and my phone and whatever else and if I threw up they were getting the trash can and I remember thinking I didn’t care if all of my stuff was stolen. I need to go to the hospital now.
So we definitely got up there. When I was kind of in and out of consciousness by that time and I got to the hospital and they checked me out like an actual MRI. And when I was inside of it is when my left side of my body completely quit working. So I didn’t know what was going on. I mean, I had no clue. So I pulled myself out of the MRI.
And some people get claustrophobic or whatever, but this was a square machine and because I felt sick already and half my body quit working while I was in there, it really put fear in me to get out.
Bill Gasiamis (07:59)
Jorden Ryan (08:10)
Bill Gasiamis (08:27)
okay. So when you got to hospital, what was that like? What happened then?
Jorden Ryan (08:33)
He’s gonna die anyway. There are people that need them. Machine.
Bill Gasiamis (09:04)
they didn’t say that, did they?
Jorden Ryan (09:07)
Bill Gasiamis (09:22)
So you have a sense that that’s what they said while you’re being, while you’re on the bed being moved to the MRI.
Jorden Ryan (09:32)
They said, need to call the family so they can say their goodbyes. I think I overheard that. And I was like, what is going on? This can’t be this serious, right? So I really do believe I did hear that though.
Bill Gasiamis (10:12)
Jorden Ryan (10:19)
That’s correct. I wish it would have been just ready to go. Right. But it was all of a sudden went from, you know, pretty good news or decent, extremely dire consequences or like something bad was going to happen. Yes.
Bill Gasiamis (10:42)
Jorden Ryan (10:46)
Bill Gasiamis (10:49)
your recovery and help you feel more confident, informed and in control. And if you’d like to go deeper, remember to check out my book, The Unexpected Way The Stroke Became, The Best Thing That Happened, and support the show on Patreon at patreon.com slash recovery after stroke.
Jorden Ryan (11:34)
Bill Gasiamis (12:03)
Jorden Ryan (12:31)
Bill Gasiamis (12:40)
Jorden Ryan (12:59)
Bill Gasiamis (13:26)
Jorden Ryan (13:32)
but my body like wouldn’t move like I could tell my left hand to move and it would not. So, but other than that, like, ⁓ I felt normal so to speak.
Bill Gasiamis (14:13)
Jorden Ryan (14:25)
Yes, they said I had a stroke, but I had no idea how bad it was.
Bill Gasiamis (14:58)
Jorden Ryan (15:13)
and people would bring plants and when those died, I mean, wow, that’s really a long time to be in the hospital, you know? And the plants died because I couldn’t water them because I’m paralyzed, so, at that time.
Bill Gasiamis (15:54)
Jorden Ryan (15:58)
Bill Gasiamis (16:23)
Jorden Ryan (16:29)
Bill Gasiamis (16:32)
Jorden Ryan (16:37)
I was regaining everything back pretty well from the first stroke. And I thought I was Superman basically. I was healing pretty fast and I was like, I beat it. This is great. And then right back to being in a bad stroke and being a wheelchair and all of that.
Bill Gasiamis (17:25)
Jorden Ryan (17:34)
Bill Gasiamis (17:57)
Jorden Ryan (18:06)
Good chance of death.
Bill Gasiamis (18:37)
Jorden Ryan (18:42)
Bill Gasiamis (18:52)
Jorden Ryan (19:04)
This area right here always felt wet. Like it felt like I was in a pool, even though I wasn’t. So I couldn’t tell if I had food all over me or what have you that I would have to rely on people to tell me. I could chewing a salad is, I mean, it was really, really hard. That was kind of the, as I advanced, that was something I could do. My first stroke, I could not, you know, a steady is it.
I don’t know if you know what that is for using the restroom. It’s like a basically a dolly. put you on and I had a really hard time even trying to use that. I went through a lot of swallow tests. I could not swallow my own saliva. So that was very difficult for me. ⁓ They brushed my teeth and I felt like I was gonna die. I could not breathe. Like probably for that went on for like five minutes.
Like, I mean, I could breathe, sorta, but it was very difficult.
Bill Gasiamis (20:29)
Jorden Ryan (20:34)
Bill Gasiamis (20:45)
Jorden Ryan (20:50)
I think in my colon, so I had to go back to the ICU.
Bill Gasiamis (21:24)
Bill Gasiamis (22:16)
Jorden Ryan (22:17)
Yeah, I think that’s right. And I think probably if it would have just been on me, maybe I could have, but I was like, I’m going to be such a huge burden to my family in my way life is going to be so bad. Like, I was just like, how is this happening? You know, I don’t smoke and like, I don’t do heavy drugs or any of that stuff. So what is going on? And then they said, well, you must drink a lot of energy drinks. And I was like, no, I don’t drink any energy drinks. So they’re like, we don’t know what’s going on then. So just that was.
So for me, I really didn’t know what was going on.
Bill Gasiamis (23:15)
I wasn’t able to solve it. Everything was kind of handed over to other people. It’s not, it was nothing. It was not up to me. And I had to just kind of go through it.
Jorden Ryan (23:51)
people would come and visit me but and to me what’s very strange is that my voice sounded exactly the same before the stroke which it didn’t in real life I was probably like I have no idea what I sounded like but people couldn’t understand me so I would say something to them and they’re like sorry I can’t understand you but in my head I said it perfectly it sounded like me I can hear ⁓ like my slur now but I could not at first
Bill Gasiamis (24:47)
Jorden Ryan (25:06)
I remember being kind of upset at you because you said it was the best thing that ever happened to you and that was it was too new for me. I was like, what do you mean? That’s not possible. And a nurse came and said, well, you have the beautiful blue eyes and that my eyes are green. So I was like, well, maybe my hair will grow back and I’ll have blue eyes. Maybe it’ll be the best thing that ever happened. But yeah, I mean, I wasn’t really mad at you. I just said the time I could not accept those that verbiage.
Bill Gasiamis (26:02)
Similar to what you said. It was a bit more rude. It wasn’t so polite ⁓ And I and I was like, ⁓ no, no, no, you guys have got it wrong I don’t think I think you missed the boat. No, sorry. You missed the point the point being that It was really terrible when I was going through it for three years But when I came out the other side, there was a lot of personal growth. There was a lot of ⁓ Things that I had appreciated that I’d done that I’d learned that I’d overcome etc
that became the reason why I was able to say it was the best thing that happened to me because I started a podcast, I wrote a book, I’ve spoken publicly about it, I have this platform, I’ve created a community, all these things, right? So the things that I didn’t know that I was lacking in life before the stroke, I thought my life was complete, waking up in the morning, going to work, coming home to the family, cooking dinner, paying the bills.
paying the mortgage, the car lease. I thought it was all cool, all complete, but I was kind of unhappy. There was a lot that I was lacking in my life. And only because of the stroke journey, the end result of the podcast, the book and all that stuff, did I realize, ⁓ actually the…
Aftermath, the things that I have grown and discovered were the best things that happened to me. And it was because of the stroke. It’s such a weird and dumb thing to say. Like I can’t even wrap my head around it, that I had to go through something so dramatic to accomplish some amazing things. I wish I would have just done it before the dramatic events. I wish there didn’t have to be one. And that being said though, I’m 13 years.
post stroke, the first one, and I still live with the deficits. I still have problems sleeping on my left side because it’s numb and it’s burning and it tingles and all that kind of stuff. When I get tired, I still have balance issues when, ⁓ you know, sometimes my memory is a bit flaky because of it, but you know, a little bit, I still have deficits in my muscles and spasticity and all that kind of stuff and it hurts. I’ve accepted that part of it.
how it feels in my body, but I’ve also ⁓ gone after the growth. Like I’ve really, ⁓ seriously, dramatically gone after the post-traumatic growth that comes from a serious episode. And what I hope-
Jorden Ryan (29:10)
Bill Gasiamis (29:21)
Jorden Ryan (29:38)
Bill Gasiamis (29:45)
I definitely come across people regularly, even though ⁓ I’ve been speaking about it for a little while, who come across the first podcast episode that I’ve done, that they’ve found in the 370 odd. And then they hear me say that again. And then there’s also, there’s sometimes a repeat of that incident where I know exactly where they’re at. Like I know exactly what’s happening. I know they don’t know that. And then what I hope that happens is say in three or four years,
they can, when they go, there was that crazy guy who said stroke was the best thing that I wonder what that was about. I’m going to go get that book now and I’m going to read it. And I’m going to see if I can, you know, shift my mindset from perhaps something that’s been bugging me to something that we can grow from. And the book has got 10 steps to recovery and personal transformation. It not 10 steps to getting your perfect walk again, or making your hand work perfect again, or
you know, getting rid of your deficits. It’s not that kind of book. It’s an inspiring book. We’re trying to give people some tools that they can use that doesn’t cost them any extra that will improve the quality of their health and their life. And it doesn’t matter how injured you are because of a stroke. That’s what the book helps people to do. I love challenging people. I’m not, of course, you know, I’m not intending to make people think that I promote.
stroke is something that they must experience as ⁓ you know.
Jorden Ryan (31:23)
Bill Gasiamis (31:26)
It’s not on audible. I am going to remedy that at some stage. I’m going to remedy that and I’m going to get people the ability to listen to it because ⁓
Jorden Ryan (31:46)
Bill Gasiamis (31:49)
Jorden Ryan (31:51)
Bill Gasiamis (32:01)
After your three weeks in ICU the first time, I think you began inpatient rehab. What were those days like going through that first few motions of trying to get yourself up and about?
Jorden Ryan (32:16)
I was very lucky in the fact that I had a friend that had told me like, hey, you have done hard things before you were, you know, in Muay Thai, you were a attorney, you can do it again. And then in my mind, I was like, you’re not a brain doctor. What are you talking about? Leave me alone. So even though the expression was being really nice internally, that’s what I was thinking. Then I saw something like, um, it was, you know, I think it was a PT, a physical therapist who said,
think that you’re gonna heal yourself in three hours a week or a day or whatever, that’s not it. Then I had another friend who told me that his sister had a stroke and she wished she would have done more during recovery. So I eventually got to the point thinking like, well, all these doctors are saying it depends, which is a fair answer, right? And I tell clients that and they hate it. But I thought that’s better than absolute no.
They’re not saying and so they’ve made it to me like, well, maybe I won’t get better, but it’s not going to be from me not trying. I think another one of the people on your episodes ⁓ saying like they were always very positive and I was like, that’s not me. That’s I’m not 100 % going to be better. That just wasn’t my attitude during it. I mean, it’s good. wish I would have been, but unfortunately I wasn’t. But it kind of.
Over time it’s gotten better, but at first it was very difficult for me.
Bill Gasiamis (34:17)
Jorden Ryan (34:35)
Being able, like, even just to move my finger, like, in my defective hand for the first time was huge, and then I was able to use my thumb to… I feel human again. I mean, to be honest with you, when I couldn’t talk and I couldn’t move and everything, it just felt weird, like it wasn’t me.
Bill Gasiamis (35:22)
Jorden Ryan (35:27)
were some setbacks. I, again, I watched one of your episodes and a gentleman told me, like I said, he had the fatigue set in later on in his journey. And so one of the things I was like, well, I’m so lucky that I don’t have that because I go to the gym pretty often. And that would be devastating to have fatigue. And then I also had fatigue. I mean, to the point where I didn’t want to move around at all. didn’t want to
get out of bed hardly so there’s setbacks in the fact that like my my sister and brother-in-law luckily took me in I mean they were like ⁓ angels so to speak but they live in a big one bedroom app like one one floor house I meant to like a ranch style and just going to the bathroom was a setback because it would take forever to walk down the hall or whatever I mean it was my gate it was a walking style was
Pretty hilarious there, you saw me.
Bill Gasiamis (36:27)
Jorden Ryan (36:34)
Bill Gasiamis (36:53)
Jorden Ryan (36:55)
Bill Gasiamis (37:11)
a few, maybe about four five months after the second bleed, it was still very dramatic. And I couldn’t really appreciate how ⁓ I took for granted that trip before that. Like it was just, it never crosses your mind.
Jorden Ryan (37:55)
Bill Gasiamis (38:11)
Jorden Ryan (38:24)
Bill Gasiamis (38:32)
Jorden Ryan (38:44)
Okay, now what foot goes next, right? It sounds ridiculous, but that’s really what I was like. My mind was, I had to think every time like learning to walk. I was like, what hand goes in front? with what foot? Like it was, I mean, very, very basic, like to the beginning, right? Like before elementary school, like it was, so everything I did was taxing mentally because I just had to think about stuff that you don’t normally think about, right? Like
Okay, I should breathe. It wasn’t quite as bad as that, but that’s pretty close.
Bill Gasiamis (39:37)
Jorden Ryan (39:53)
When I got out of the hospital, my friends and family and whatever got together and took me out to eat and the noises were so loud that my senses were too heightened. It was confusing to me. I had a lifetime of going out to eat with friends and going to drinking or whatever. This was just a lunch and I couldn’t really handle it. It was almost too much for me. The car ride from
maybe a three hour car ride, had to close my eyes because I would feel sick if they were open. it was, I realized just how different my life is gonna be, right?
Bill Gasiamis (40:59)
Jorden Ryan (41:02)
I have to push myself to do that kind of stuff because I don’t know, I think it’s easy to become depressed, right? Like, it’s easy to just be like, I will just sit here on the couch, watch TV. I don’t really watch TV, but… And even that is hard with my eyes doubled, but I mean, like, I push myself to hang out with friends or go to eat or something. But it’s very difficult. I would rather just stay home. If you just ask me, like…
I mean, I’m always excited to go out with people, that’s not what I mean, but it just is easier to stay home.
Bill Gasiamis (41:37)
It’s not the easy way out. seems that way, it’s potentially leading you down a path that you don’t want to go down.
Jorden Ryan (42:11)
Bill Gasiamis (42:26)
Jorden Ryan (42:31)
Bill Gasiamis (42:47)
And then I’m gonna be really exhausted tomorrow. I know that tomorrow I’m gonna be really, and I’ve got nothing booked in. I’m gonna do absolutely nothing for the entire day so that I can go out and go hard tonight, whatever tonight looked like, whatever that was gonna be like. And that was where I earned my recovery, my lazy. I’m sitting on the couch and I’m watching TV or I’m reading a book or I’m not doing anything.
That’s exactly how I kind of used to talk to myself about doing nothing on the following day.
Jorden Ryan (43:54)
people and everything just kinda makes it harder to be depressed.
Bill Gasiamis (44:32)
Jorden Ryan (44:57)
It was almost like I didn’t expect that that late in my recovery It was not that long but still it was strange to me probably maybe a month after I got out of the hospital so luckily my mom took me to the pool quite a bit and Pushed a wheelchair even though it’s really heavy and she is older so
Bill Gasiamis (45:50)
appeared like it was working normally, but it felt strange because the water pressure on my affected side, that was different. Feeling the water pressure on my affected side for the first time was really strange. What was cool about it is they gave me a life vest, so there was no chance of falling over, drowning, dying, or anything like that in the water. And it was really a real relief because my body felt really free for the first time. And then as I got better and we started to get out and about,
One particular summer we went to a ⁓ waterfall here near where I live. And in the pond at the bottom of the waterfall went for a swing. But the difference is ⁓ fresh water ⁓ is different from salt water. And I had never swum in ⁓ fresh water.
Jorden Ryan (47:11)
Bill Gasiamis (47:14)
Jorden Ryan (47:17)
Bill Gasiamis (47:42)
Jorden Ryan (47:47)
I did a triathlon in the ocean and it was so much easier. I was pretty happy. I was the other way around. I’m used to swimming in fresh water and then in salmon and salt water and that was all post stroke. But I can know what you mean. There’s a huge difference.
Bill Gasiamis (48:27)
Yeah, you’ve done a triathlon post stroke.
Jorden Ryan (48:33)
Bill Gasiamis (48:59)
What’s cool about, what’s cool is that now there’s competitions where people can go and compete ⁓ after they’ve been, like the Paralympics is a classic example, right? And all the events leading up to the Paralympics where people can go and compete, get physical, even though they have deficits. That wasn’t something that was possible decades and decades ago. It’s a fairly new thing. I love that even though people are injured and
they’ve had difficult times, perhaps their limbs aren’t working correctly. Some people still decide, I know I’m gonna be a competitor still, I’m gonna be with one arm, with one leg, with whatever my, whatever I have left, I’m gonna do the most I can and compete as much as I can to be the best in my particular sport. I love that about the things that people can access today about participation in sport, even though they’re
injured.
Jorden Ryan (50:02)
It is good that they have that kind of stuff, I think. Like, I’m looking at bikes for mountain biking with three wheels and stuff, so.
Bill Gasiamis (50:39)
Jorden Ryan (50:45)
as important as it was before.
Bill Gasiamis (51:15)
Jorden Ryan (51:18)
Bill Gasiamis (51:44)
Yeah, same with us in Australia. mean, there’s lots of laws to try and protect people who have a disability of some kind, injury, whatever you want to call it, so that there’s less discrimination, so that there’s more services, so there’s more access. ⁓ It’s one of the best conversations that people have because they kind of say, well, we know that this particular service that is going to be provided
is going to be provided for all the population and 93 % of the population, for example, it’s not a real number, will be able to access it beautifully. What about the other 7 % who are not gonna be able to access it? We need to think about them. We need to think about how they’re going to go about ⁓ traveling on this service or accessing this service or getting in and out of this particular office or building and all that stuff.
is taken into consideration in the design and planning phase now. So you can move around Melbourne, my hometown, in a electric wheelchair or a regular push wheelchair. And you will not have to worry about getting on a train, getting on the public transport, a bus, the tram, ⁓ going down a curb, all the curbs are ⁓ angled down. So this beautiful, nice smooth path towards the road and then up again.
Jorden Ryan (53:13)
Bill Gasiamis (53:22)
Yeah, what’s the point?
⁓ Now, the thing about stroke is that unfortunately life doesn’t get put on hold for us to recover from it and then let us get back into life as if we were okay. And I remember going through the third bleed and then a couple of weeks later, literally two weeks later, I think, maybe about a week later, my mother-in-law passed away. And then we had to have her funeral before my brain surgery.
and my wife had to deal with all of that, right? You also, you lost one of your friends soon after you got out of, I think it was at rehab.
Jorden Ryan (54:19)
Such a little thing like, wow, this guy can go to the bathroom by himself. I wish I could do that, right? But unfortunately, yeah, he died by suicide the day that I got out. It was devastating and very hard. I mean, that was somebody I planned on spending a lot of time with because he lived in the same city that my sister took me in that I was going to hang out with. I mean, not just about me. It was just sad that that happened, obviously.
Bill Gasiamis (55:14)
Jorden Ryan (55:22)
dick dab that, but I felt like I was in a country song.
Bill Gasiamis (55:55)
Jorden Ryan (55:56)
around me. So I mean, there are so many amazing things. So I have to open that up and not stay in the darkness too long. I can’t stop from happening personally, like this part of my life, but I can get out of it. Like luckily I have those tools, so to speak. Like I can be like, okay, this is happening. This is amazing. Or my family is healthy or whatever it happens to be or
just people being really nice, seeing that, right? But I did have, my hand was like clawed and I would open the door and some people were nice and be like, let me get that door for you. Well, I cannot open my hand to let go of the door. It would almost knock me over several times. So kind of funny.
Bill Gasiamis (57:13)
beneath the footrest and kind of the wheel of the wheelchair and it was kind of getting dragged and I couldn’t feel it had no idea but my wife was struggling to push the wheelchair
Jorden Ryan (57:54)
Bill Gasiamis (57:57)
was going, well, this so hard to push. And then we had to have a look around and realize the reason it was hard to push, because my foot is under the wheelchair and I have no idea that it’s there and it’s getting stuck. ⁓ We laughed about it because what else are you gonna do at that moment? It was pretty ridiculous and funny at the same time.
Jorden Ryan (58:16)
my leg, but I mean, it felt like I ran over a rock or something like, so similar, not the same, but similar to me. Like, didn’t know if my leg would ever come back, you know? So people are all different levels of their journey. Like I was not upset, but I was surprised to see people in patient rehab. They could walk so well. like, Hey, we are really struggling over here. We’re in a wheelchair. That’s not the right attitude to have, but that’s how it was, you know,
Bill Gasiamis (59:12)
Jorden Ryan (59:14)
Jorden Ryan (59:42)
Bill Gasiamis (1:00:05)
Jorden Ryan (1:00:08)
they would say, use this to pull out the saliva and the, you know, whatever it was. So that’s how I would, I had to brush my teeth like that, then wipe it out. And it was much different feeling. mean, there are so many odd things that happened I can’t remember. And I wanted to tell people on your broadcast because, you know, it is difficult to lay there and be hurting and like so bad with your deficits and seeing a lot of people that are healed because you don’t know if you’ll ever get there.
So I wanted to say that just because like you are bad and your deficits are bad, there is help. There’s a chance. I don’t know for sure everybody, but there is, I think hope is, I learned about it in the hospital and I think that it’s very important to know that there’s possibility of getting better.
Bill Gasiamis (1:01:29)
Jorden Ryan (1:01:34)
At least I had the cards to look through, know, so that was very nice. But my actual job role was I worked with a small team here and we did contract work to make sure that there wasn’t anything that was, you know, bad for us.
Bill Gasiamis (1:02:18)
Jorden Ryan (1:02:48)
to go on basically because I couldn’t communicate at all. Some people have it where they can’t think words or where they can’t do the, I mean, I couldn’t say anything. it was very difficult, it was very hard to not be able to talk to people because I do communicate every second of my life as far as I know. So to not be able to communicate at all, it was very difficult. I had to point at things and try to write stuff out even though I couldn’t write. So it was…
pretty hard.
Bill Gasiamis (1:03:48)
Jorden Ryan (1:03:57)
And luckily, think that helped my, you know, it’s hard to say what heals you because there’s so many things that play a part in it. But I was able to, somebody could understand some words that I said at least. So that was a very positive start.
Bill Gasiamis (1:04:45)
Jorden Ryan (1:04:56)
and I just walked and I did that because there was a rail at the YMCA that I walked by and I was like, wouldn’t that be nice if I had an outside rail that I could just use to walk and so I had slack line and then underneath it, I wore it out like a dog or a cow walking all the time and like because I could not use my my left leg was not very strong at all but it was getting stronger. You know, I tried to jump
like up and I could not even inch vertical it was zero and I couldn’t bend my legs up so I think that was the start of something that really helped me because I could go do it like any time of day or night I mean I didn’t do it 2 a.m. but I did it it was easier to do instead of having to rely on someone to give me a ride somewhere ⁓
Bill Gasiamis (1:06:17)
Jorden Ryan (1:06:19)
Bill Gasiamis (1:06:20)
a slackline.
Jorden Ryan (1:06:22)
Bill Gasiamis (1:06:25)
Yeah, I understand. ⁓ I just didn’t know it was a thing that you could even get one. I mean, I’ve never had one. I’ve never thought about one, but like it makes complete sense now, but I didn’t realize. I should have realized that you can get everything off Amazon, but that’s all right. I was just trying to wrap my head.
Jorden Ryan (1:06:49)
A thing that is battery operated that sends like so your hand will go like this I can’t remember what it’s called it’s like vital stem but just on Amazon too and I would work that every day tried to get my hand to open and tried to because they try to get you to turn a key imagine a key like you’re starting your car but with your other your affected hand and this would help that like it would wake up those muscles so kind of
Bill Gasiamis (1:07:49)
Jorden Ryan (1:07:50)
and not have a girlfriend or a wife, I was like, well, am I never gonna have sex again? And that was very scary to me.
Bill Gasiamis (1:08:23)
Jorden Ryan (1:08:27)
is, it has not happened yet, but I don’t have the same concerns that I had. Like I think to say it politely, I think that I’m able to perform in the bedroom. don’t know though. So maybe I’m going to say that I can’t just to feel better about myself, but definitely my libido or whatever has gone down, you know? So, ⁓ it is what it is, as they say, like maybe it will pair, maybe it will not. don’t know.
Bill Gasiamis (1:08:57)
Jorden Ryan (1:09:21)
I was like, well, maybe I’ve been in the hospital so long, that’s the problem. And so I just didn’t, I mean, as you know, you just don’t know. So hopefully, yeah, I will be able to talk to the doctor about that. I think after being in the hospital the first time, my modesty is kind of out the window. Like I had to do so many things in front of nurses that asking difficult questions is not as difficult as it once was.
Bill Gasiamis (1:09:57)
Yeah, I imagine having had your diaper changed by a nurse at the age of 40 something is probably one of those moments that kind of says, well, I’ve done that. If I’ve done that, everything else is a piece of piss, so to speak, after that, as we say.
Jorden Ryan (1:10:27)
Right, that’s exactly correct.
Bill Gasiamis (1:10:39)
Jorden Ryan (1:10:56)
Everything is with somebody like you can’t get up out of your chair. You can’t go do anything So all of a sudden you’re just you’re free like go ahead And like the same day or the day before this was a big no-no now. I can just do it and like yep so I mean, I’m still scared to cut things with the knife like vegetables stuff because I’m on blood thinner and I don’t want to have an accident I mean you don’t know what you don’t know so I
cognitively, I think that I’m there, but I also think that could walk, right? And that’s not true. So I don’t know what could happen and what could not happen. So rehab is just, I try to do, be dangerous, the safest I can. Like I walk, but I try to make sure that I can grab onto something or if I’m gonna like try to walk, I can fall or I’ll be by my bed or something like that. And so it is difficult to try to be by myself even now. It’s been a
over a year.
Bill Gasiamis (1:12:24)
Jorden Ryan (1:12:28)
when they say they tie their hand up or whatever. I didn’t do that, but I imagine having kids would be difficult for me because I couldn’t barely do things with my left hand. Like, forget it. I would just do it with my right hand. anyway, I say that because yes, I am learning a lot more now, even though ⁓ it has been over a year. It is scary to read stuff, facts, I think that are outdated that say, you know, your height and specificity is a year. Then after that,
Probably not as much. Things aren’t gonna happen as fast. I have not found that to be true, but who knows?
Bill Gasiamis (1:13:36)
Jorden Ryan (1:14:03)
Bill Gasiamis (1:14:13)
Jorden Ryan (1:14:33)
If I did have cognitive issues, I would really have a hard time going through the medical system and especially what doctors say. It is, I mean, it is scary. I’ve had more doctors than I can imagine, different cities and different areas and they say different things. So again, I took that to my advantage of I got to choose my own destiny instead of a doctor saying, that’s the best you will get ever. It’s like, yeah.
Bill Gasiamis (1:15:29)
I had half of my thyroid removed ⁓ just before my after my stroke, my brain surgery about a year and a half later. And the surgeon came in after we’d done all the tests and she was trying to encourage me to have the surgery. And she said, we’ve got the results from your tests. They’re inconclusive. So she goes,
But that doesn’t mean it’s not cancer. So it could be cancer and it could not be cancer. And then she closed the door and walked out of the room and I was.
Jorden Ryan (1:16:35)
Bill Gasiamis (1:16:37)
10 or 15 minutes later. And when we went in the meeting, ⁓ the surgeon came to me and said, ⁓ hi, how are you? How’s things? And I said, look, I’m okay, but I need to talk to you about what you said to me earlier. She goes, what did I say? I said, you said you dropped the C word, then you closed the door and you walked out.
Jorden Ryan (1:17:27)
Bill Gasiamis (1:17:34)
We a little role play. She was devastated at the same time, but I think that was a little lesson that made her think about maybe be careful with what you say in front of patients who could be vulnerable in your care. They’re in your care, so they’re vulnerable. They’re coming to you for support, not for trauma.
Jorden Ryan (1:18:06)
Yeah, I think I need you to go to my appointments with me. Tell the doctor some of these things because you’re right. Some of them do say stuff that is… I don’t know if they don’t know that it’s outlandish or they just do it so often they don’t realize it but when you are a patient and you hear something like that it’s a big deal. They say it like it’s nothing but yes of course it is a possibility but you know come on but…
I have all these surgeries they can do for me ⁓ such as a cochlear implant where I can hear out of this year because it’s so difficult but I can’t not come off the blood thinner. So there’s only a 5 % chance that I could have another stroke or so they say but man the strokes are hard. I remember walking around the YMCA one lap was no 10 laps was a mile and I was like this is crazy because I could only do maybe two with my
uh, Walker, and I heard you saying that you learned to walk twice, I was like, oh, I don’t think I could ever do that. And, uh, I remember thinking, I guess I would do it a hundred times if I had to, but boy, I sure wouldn’t want to.
Bill Gasiamis (1:19:35)
Jorden Ryan (1:19:56)
were my full model. So, no, I’m just kidding. I had to do it, you know, two other times other than when I was an infant, whatever, baby, whatever, it was so… ⁓
Bill Gasiamis (1:20:09)
Jorden Ryan (1:20:16)
Bill Gasiamis (1:20:18)
It’s more injury, it’s less brain that you’ve got to work with now every bloody time.
Jorden Ryan (1:20:49)
Bill Gasiamis (1:21:05)
Jorden Ryan (1:21:09)
Bill Gasiamis (1:21:19)
I did, yeah. They’re my favorite ones to do, but they’re the hardest ones to do as well because ⁓ they require you to be really in flow and out of your head. So if you’re thinking about what you want to talk about, it’s really hard to do it. And also I get really self-conscious when people walk past me and I’m talking to a stick ⁓ and a camera. It’s just a bit weird.
I know heaps of people are doing it and they’re comfortable with it and it’s good content because I know people love watching it, but it’s just so hard to do. And especially in winter, like I don’t want to be outside doing that stuff in winter. I don’t mind sitting down here and doing it. I will do some more walking once. I definitely will. But I think I’ll prefer to find somewhere where that’s a little more secluded where I don’t have to worry about people coming into my frame or into my field of view or something like that. It’s just so hard.
Jorden Ryan (1:22:16)
Bill Gasiamis (1:22:45)
Jorden Ryan (1:22:53)
I can only do what I can do and like the rest, whatever. You know, so that I think that’s the kind of person I am now. It’s been a major mind shift, totally different than what I was before. And instead of worrying about every little thing or maybe I won’t wake up tonight. mean, I just let’s get, let’s go after it. Let’s get it done. Right. So I don’t know. It is scary too. It’s sometimes to go to sleep because I have my CPAP machine on.
And then I’m like, maybe this will cause another stroke. Maybe I should stay awake. That’s ridiculous, I have to get some sleep. But I’m just, now I think that I just do it, you whatever it happens to be. Whether it happens to be walking down the hall or it happens to be, the good thing about me now is that I don’t care what I look like. I don’t care about like…
I have my why or whatever and so nothing else matters, right? I’m dialed in. Like I don’t care if I have food on my face or like one bad example is I was working out the why and workout was like standing up. It wasn’t hard. It wasn’t like hardcore aerobics or anything. And I peed my pants a little bit. Like instead of not working out and not doing anything and going home, I just was like, ⁓ I guess, I mean, it wasn’t like all over the equipment or anything, but.
It was enough that I was like, okay, I will stay at the gym and get things done where before I would never do that.
Bill Gasiamis (1:24:51)
mental runner who doesn’t stop running under any circumstances. Nothing is going to get in the way. That was very Goggins-esque what you did. ⁓ I paid my pants. So what? Keep going.
Jorden Ryan (1:25:12)
trying to do something so I’m very dedicated to try to get better.
Bill Gasiamis (1:25:45)
and tomorrow I’m gonna be better at it.
Jorden Ryan (1:26:17)
Jorden Ryan (1:26:45)
vision the second, well both times, you know the second time and I was kind of pretty upset because one thing of me all the way through my body was messed up and I was like well if only my both my legs were good that would be great right or both my arms were good I could at least do the wheelchair pause like pretty good or I wish both of my eyes were tight I could read what I have all this time off but none of the
I was thinking how selfish is that? I mean I have one thing that works so I need to get it together right and live the best life that I can. I think that is probably what I would say one sentence is ⁓ live the best life that you can. Whatever you’re into if it’s doing nothing then it’s fine but if it’s just be happy be content of what you have.
Bill Gasiamis (1:28:05)
Jorden Ryan (1:28:12)
Bill Gasiamis (1:28:26)
If you’d like to go deeper, remember to check out my book, The Unexpected Way That a Stroke Became the Best Thing That Happened. You can get it at recoveryafterstroke.com slash book and support the show on Patreon at patreon.com slash recovery after stroke. Importantly, we present many podcasts designed to give you an insight and understanding into the experiences of other individuals.
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The post Double Vision After Stroke: What Jorden’s Story Reveals About Brainstem Stroke Recovery appeared first on Recovery After Stroke.

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