Dr. Andy Nowalk joins the podcast again today to discuss the latest news in COVID as it relates to people with Down syndrome. The podcast highlights the release of the COVID vaccine for 5-11 year olds and discusses booster doses for people with Ds over 18 years old.

You can partner with us in our service to the community, including this podcast, by going to http://www.givetochildrens.org/downsyndromecenter

Dr. Stephanie Santoro with the Mass General Down Syndrome Program joined the podcast to discuss a relatively newly recognized condition called by several names including Unexplained Regression in Down Syndrome (URDS), Down Syndrome Disintegrative Disorder (DSDD), or Down Syndrome Regression Disorder (DSRD). Dr. Santoro will discuss the signs of the condition and the treatment options currently being found to be helpful in the latest research.

More Information https://www.nature.com/articles/s41436-019-0706-8

Does My Loved One with Down Syndrome Have This Condition? Check Out This Regression Checklisthttps://static-content.springer.com/esm/art%3A10.1038%2Fs41436-019-0706-8/MediaObjects/41436_2019_706_MOESM2_ESM.docx

Find a Regional Down Syndrome Center Near You Down Syndrome Clinic Listing | National Down Syndrome Congress (ndsccenter.org)

Selective (or "Picky") eaters are common in Pediatrics. Many parents receive advice on how to manage but what does the data show? Ann Meyers from Clinical Nutrition and Sarah Rossman from Occupational Therapy joined the podcast today to discuss this very important topic.

Resources Tips for Feeding Picky Eaters - HealthyChildren.org

Child of Mine: Feeding with Love and Good Sense, Revised and Updated Edition: Satter, Ellyn: 8601419522477: Amazon.com: Books

Fearless Feeding: How to Raise Healthy Eaters From High Chair to High School: Jacobsen, Maryann, Castle, Jill: 9781732866201: Amazon.com: Books

Join Us!If you would like to partner in the work of the Down Syndrome Center, please visit http://www.givetochildrens.org/downsyndrome. Thank you!

Podcast photo credit: Getty Images

Mental Wellness in Adults with Down Syndrome (Book) Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges - Woodbine House

If People with Down Syndrome Ruled the World (Essay) National Association for Down Syndrome | If People with Down Syndrome Ruled the World (nads.org)

If you have benefitted from this podcast, please consider partnering in the work of the Down Syndrome Center at: http://www.givetochildrens.org/downsyndrome.

Dr. Tarin Santamaria, PsyD, NCSP, is the clinical psychologist for our Down Syndrome Center of Western Pennsylvania.  She joined the podcast today to discuss how to assess and approach behaviors in school-aged children with Down syndrome.

Please consider partnering in the work of the Down Syndrome Center by visiting http://www.givetochildrens.org/downsyndrome 

Dr. Nowalk joined to talk about the Delta variant outbreak and the potential impact for people with Down syndrome.

Pittsburgh Vaccine Trials Unit https://covid19research.pitt.edu/pvtu

CDC COVID Data https://www.cdc.gov/coronavirus/2019-ncov/index.html

Helen Milligan, physical therapist with the Trisomy 21 Program at Children's Hospital of Philadelphia, joined the podcast to answer a listener question regarding physical therapy in the school aged child.

Dr. Nowalk joined the podcast to discuss return to school for 2021 and ways that it looks different than even last year.  

Dr. Katie Frank, PhD, OTR/L, joined the podcast today to talk about sensory processing difficulties in people with Ds and therapeutic approaches.

Resources: http://adscresources.advocatehealth.com

Mental wellness in Ds book Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges: Dennis McGuire, Brian Chicoine: 9781606132852: Amazon.com: Books

Out of Sync Child Series The Out-of-Sync Child Series (3 books) Kindle Edition (amazon.com)

Sensational Kids Lucy Miller Amazon.com : sensational child

STAR Institute Sensory Processing - STAR Institute (sensoryhealth.org)

Dr. Meredith Wright Whittaker, PhD, joined the podcast today to share her personal experiences and literature review on pain perception and expression in people with Down syndrome.  

For more information, please see the article discussed: Pain perception in people with Down syndrome: a synthesis of clinical and experimental research (nih.gov)