Dr. Meredith Wright Whittaker, PhD, joined the podcast today to share her personal experiences and literature review on pain perception and expression in people with Down syndrome.  

For more information, please see the article discussed: Pain perception in people with Down syndrome: a synthesis of clinical and experimental research (nih.gov)

Dr. Marilyn Bull, lead author of the Down Syndrome Healthcare Guidelines, joined the podcast today to discuss the guideline process, hint at the upcoming revised healthcare guideline, and specifically comment on atlanto-axial instability (AAI).  

For parents/caregivers: Children with Down Syndrome: Health Care Information for Families - HealthyChildren.org

For healthcare professionals: Health Supervision for Children With Down Syndrome | American Academy of Pediatrics (aappublications.org)

Dr. Ruth Brown, psychologist from Virginia Commonwealth University, joined the podcast to discuss preliminary data from her study on the psychological impact of the COVID pandemic in people with Ds.  If you would like to add to this data set, please consider taking the survey at http://tiny.cc/DSFAM_VCU.  

Dr. Vellody was joined by Lauren Costabile, founder of Hearts of Joy International.  Listen and learn about the work that this amazing organization is doing to bring hope to children with Down syndrome with congenital heart defects.

Dr. Vellody was joined today by Jawanda and Rachel Mast who came to speak about the importance of national level policy and advocacy.  They also discussed the National Down Syndrome Congress' Ally for Advocacy campaign, and how we can get involved.

https://www.ndsccenter.org/support-get-involved/campaign/

In our ongoing goal to keep you up-to-date with the latest changes in the COVID-19 pandemic, Dr. Nowalk joined the podcast again today to discuss COVID vaccination in children with Down syndrome down to 12 years old.  Dr. Nowalk also addressed the latest CDC guidelines on vaccinated individuals being mask-free in public settings.

Listen as Dr. Vellody answers yet another listener question, this time discussing orthodontic care with Dr. Lindsay Schuster.  

Dr. Lindsay Schuster, DMD, MS - Pittsburgh, PA - Orthodontics and Dentofacial Orthopedics - Book Appointment (upmc.com)

Dr. Vellody is joined by Sarah Hill who is the Convention Director for the National Down Syndrome Congress.  The 2021 NDSC Convention is a one-of-a-kind opportunity for families and self-advocates to get information on Down syndrome.  This year's NDSC Convention will be virtual and offer loads of opportunities for attendees that are discussed on this podcast.  To learn more or to register for the NDSC Convention, go to https://www.ndsccenter.org/annual-convention/.

Join us as we remember the history of this podcast and hear beautiful music and testimonials shared by our listeners.  And take a listen to this song by Troy Griffith.

Troy Griffith "Ten by Twelve" Music Video  https://youtu.be/vNA4X9d7yT8

Dr. Vellody was joined by NDSC Senior Education Policy Advisor Ricki Sabia to discuss topics surrounding Education in people with Down syndrome.  Ricki shared her extensive expertise in this area as well as her personal experiences as a mother navigating the educational landscape.

Ricki Sabia | National Down Syndrome Congress (ndsccenter.org)

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