THE SJ CHILDS SHOW-Building a Community of Inclusion

Episode 309-When Strep Attacks the Brain: Ethan Pompeo's 20-Year Battle with PANDAS


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What happens when a simple strep throat infection triggers a devastating autoimmune response that attacks your brain? At age 13, Ethan Pompeo's life changed overnight when mysterious motor tics, compulsive behaviors, and overwhelming anxiety suddenly appeared, beginning a two-decade journey toward answers and healing.

Ethan takes us through the frustrating reality of living with PANDAS (Pediatric Autoimmune Neurological Disorders Associated with Strep) – a condition where strep antibodies cross the blood-brain barrier and create inflammation in the basal ganglia. His vivid descriptions of trying to complete simple tasks while battling uncontrollable tics paint a stark picture of the daily challenges faced by those with neurological autoimmune disorders.

The path to diagnosis wasn't straightforward. Misdiagnosed with Tourette syndrome, Ethan became what he calls a "pill guinea pig," cycling through over 40 different medications by age 17, with side effects often worse than his symptoms. This experience fostered a deep skepticism of conventional medicine and pushed him toward finding his own solutions.

What makes Ethan's story particularly compelling is his holistic approach to recovery. Moving to Colorado to work on an organic farm became a turning point, introducing him to lifestyle changes that would transform his health. His discovery that CBD's anti-inflammatory properties – not the psychoactive effects of cannabis – were addressing the root cause of his brain inflammation led to a comprehensive healing protocol combining anti-inflammatory diet, strategic supplementation, strength training, and cognitive behavioral therapy.

Today, Ethan is 95% symptom-free and dedicated to helping others through PANDAS advocacy. His powerful message about accepting his condition rather than hiding it resonates beyond just those with autoimmune disorders: "The day I decided to be open about what I'm dealing with, it's like I felt a weight lifted off my shoulders."

Whether you're battling chronic illness or supporting someone who is, Ethan's journey offers practical insights, scientific understanding, and above all, hope. Follow his continued advocacy work on Instagram @ethan_pandas or visit greenvalleynutrition.com to learn more.

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THE SJ CHILDS SHOW-Building a Community of InclusionBy Sara Gullihur-Bradford aka SJ Childs

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