Patricia Boswell

The Heart of Caregiving: From Denial to Self-Care and Fulfillment. Navigating the intricate journey of dementia caregiving involves a transformative shift from denial to embracing self-care and finding fulfillment. This metamorphosis captures the essence of "The Heart of Caregiving," where caregivers confront the challenges with resilience. From acknowledging the harsh reality of dementia to prioritizing their own well-being, caregivers embark on a profound voyage that not only benefits those they care for but also nurtures their own emotional and physical health

It's the exception when I have the pleasure of chatting with someone who has been in the caregiving game longer than I have. My Mom had Alzheimer's from the late 1990s till 2020, but my guest, Patricia A. Boswell, has worked in caregiving since 1976. Who better to learn how to provide care with love and joy than someone like Patricia?

Patricia has worked for the past twelve years in various home healthcare settings and private duty nursing, hospice, group homes, and senior living centers. Additionally, she consults with organizations regarding their best practices regarding medical operations. These activities are just some of what Patricia does to help those impacted by some form of dementia.

In addition to the calming sounds of birds chirping in the background, you'll get

It's not often I have a guest sitting outside among chirping birds. Listen for the advice but enjoy the calming bird sounds from Patricia's backyard birds.

https://www.caregivingwithloveandjoy.com

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How Food Affects Our Brain Health

Brain Health & Dementia Prevention in Ten Easy Steps

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or Visit us at www.FadingMemoriesPodcast.com

The transformative power of creativity can be a balm for both individuals living with cognitive impairment and their caregivers. For caregivers, engaging in artistic endeavors provides a much-needed respite from the demands of caregiving, offering a chance to relax, recharge, and reconnect with their own creative spirit. This self-care is essential to prevent burnout and maintain overall well-being.

For the person with cognitive impairment, creative expression offers a unique avenue for communication, stimulation, and joy. Activities such as painting, music, or dance can help to reduce anxiety, improve mood, and maintain a sense of purpose. These creative pursuits also provide opportunities for social interaction and shared experiences, fostering a deeper connection between the caregiver and the individual they support. By working collaboratively on creative projects,both parties can experience a sense of accomplishment and shared satisfaction.

Our Guest: Mary Crescenzo

Mary Crescenzo is one of five 2022 Individual Winners of the Maude’s Awards for Innovation in Dementia Care. She is an arts strategist/practitioner, master teaching artist, and mult-hyphenate creative whose work as an author spans genre of nonfiction, fiction, essay, reviews, and poetry in both commercial and literary markets, and as blogger and broadcaster. In the realm of theatre, she is playwright of Planet A, director, and actor. Her play, Planet A, is about the good, bad and ugly terrain of Alzheimer’s/dementia. In the world of music, Mary is a Jazz singer, lyricist and librettist and founder of MC3 - a Jazz trio. And this is just the beginning of her list of talents!

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Related Episodes:

Happy Hearts: Music Therapy for Dementia Care

Connections through Art

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Feeling overwhelmed? HelpTexts can be your pocket therapist.

Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice.

Sign up for a year of support and get:

Daily or twice-weekly texts tailored to your situation

Actionable strategies to cope and move forward

Support for those who care about you (optional)

HelpTexts makes getting help easy and convenient.

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Relevate from NeuroReserve

I've been focusing a lot on taking care of my brain health, & I've found this supplement called RELEVATE to be incredibly helpful. It provides me with 17 nutrients that support brain function & help keep me sharp. Since you're someone I care about, I wanted to share this discovery with you. You can order it with my code: FM15 & get 15% OFF your order.

With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan.

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If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links.

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Contact Jen at [email protected]

or Visit us at www.FadingMemoriesPodcast.com

Exhausted from caring for someone with dementia? You're not alone. This episode, More Caring for the Caregiver dives deep into practical self-care strategies specifically for dementia caregivers. Learn how to prioritize your own well-being,manage stress, and avoid burnout. 

We'll explore tips for finding pockets of time for yourself, setting boundaries, and fostering a support network. Discover how caring for yourself can actually make you a better caregiver for your loved one.

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Related Episodes:

Alzheimer’s Caregivers-Sending You Encouragement Today

Yoga for Busy Caregivers

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Feeling overwhelmed? HelpTexts can be your pocket therapist.

Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice.

Sign up for a year of support and get:

Daily or twice-weekly texts tailored to your situation

Actionable strategies to cope and move forward

Support for those who care about you (optional)

HelpTexts makes getting help easy and convenient.

++++++++++++++++++++++++++++++++++++++++

Make Your Brain Span Match Your LifeSpan

Relevate from NeuroReserve

I've been focusing a lot on taking care of my brain health, & I've found this supplement called RELEVATE to be incredibly helpful. It provides me with 17 nutrients that support brain function & help keep me sharp. Since you're someone I care about, I wanted to share this discovery with you. You can order it with my code: FM15 & get 15% OFF your order.

With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan.

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If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links.

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Contact Jen at [email protected]

or Visit us at www.FadingMemoriesPodcast.com

When a family gets a diagnosis of a dementia causing disease, it's normal to want to shield kids and even teens from the news. However, with the right support, they can be an invaluable supportive caregiver to their loved one. Here are some tips on how to help them navigate that role.

Open Communication:

Talk Honestly: Explain dementia in an age-appropriate way. Address their fears and frustrations openly.

Listen Actively: Validate their feelings. Let them know it's okay to feel sad, angry, or confused.

Supportive Caregiving:

Find Age-Appropriate Tasks: Let them help with simple tasks like setting reminders or engaging in familiar activities with their loved one.

Focus on Strengths: Highlight their unique ability to connect with their loved one through shared interests or hobbies.

Maintaining Balance:

Set Boundaries: Acknowledge their need for social time and hobbies. Schedule respite care or involve other family members.

Support Groups: Connect them with online or in-person groups for young caregivers. They'll find others facing similar situations.

By involving them in care while respecting their needs, teens can be amazing caregivers while still chasing their dreams.

Our Guest: Alex Schumacher

Alex was a tween when his family learned his grandmother had Alzheimer's. As an adult, he is now the author of the graphic novel "The Effects of Pickled Herring". This novel is a warm and funny, coming of age story. It's a story that reminds s that life pulls us in many directions yet the one thing that can ground us is the ones we love.

Grab the book here!

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CHAPTERS:

00:00 - Intro00:22 - The Pickled Herring05:24 - Alex's Caregiving Experience10:00 - You Need Your Grandma12:44 - Talking to Kids about Alzheimer's18:39 - Education and Training for Caregivers22:58 - Caregiver Advice for Families27:58 - Encouraging Kids to Share Joys31:05 - Kids' Impact on Dementia Care34:43 - Importance of Communication38:57 - Adult Day Programs for Families45:55 - Sequel

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Related Episodes:

Kids as Alzheimer’s Caregivers

My Grandma Has Dementia – Helping Kids Understand

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Feeling overwhelmed? HelpTexts can be your pocket therapist.

Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice.

Sign up for a year of support and get:

Daily or twice-weekly texts tailored to your situation

Actionable strategies to cope and move forward

Support for those who care about you (optional)

HelpTexts makes getting help easy and convenient.

++++++++++++++++++++++++++++++++++++++++

Make Your Brain Span Match Your LifeSpan

Relevate from NeuroReserve

I've been focusing a lot on taking care of my brain health, & I've found this supplement called RELEVATE to be incredibly helpful. It provides me with 17 nutrients that support brain function & help keep me sharp. Since you're someone I care about, I wanted to share this discovery with you. You can order it with my code: FM15 & get 15% OFF your order.

With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan.

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Time Out Caregiver: Resilience, Compassion & Self-Care. Seventy percent of us will need care before we die. When you're already living with a challenging disease, taking on the role of caregiving is hard. We do it anyway and rarely think of the consequences to ourselves. What happens when you can no longer manage the day-to-day responsibility?

"One thing that has become increasingly evident to me is the unexpected outcome of providing exceptional care: the continuation of life. It makes me question whether it is always the right decision, but how can I possibly do otherwise?"

These words were spoken by Dave Iverson, our guest this week, in his thought-provoking book Winter Stars. Within its pages, he delves deep into the circumstances that led him to realize when it was time to step away from being his mother's primary caregiver. He painfully recognized that his mother and her care had become the fulcrum on which his life teetered precariously. This soul-searching occurred twelve years after his Parkinson's disease diagnosis, a condition he had managed quite well. However, the prospect of countless more days dedicated to caregiving left him feeling despondent.

Their life together was straightforward—two individuals dependent on Social Security and Medicare, residing under the same roof. The activities that used to rejuvenate Dave no longer held the same effect. The coping mechanisms he had relied on for years appeared insufficient to sustain his sense of self. Despite receiving every form of support available to a caregiver, he couldn't shake the feeling of being perpetually bound.

Eventually, after exploring every facet of his role as a primary caregiver, Dave arrived at a profound realization. He understood that he needed to step out the front door and return not as a caregiver but as a son. He recognized that he could no longer undertake the impossible, albeit fulfilling, excruciating, and life-altering job.

Learn more about Dave & get his book here!

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Related episodes:

Finding Comfort in Caregiving

The Heart of Caregiving: From Denial to Self-Care and Fulfillment

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Please help us keep our show going by supporting our sponsors. Thank you.

Stop 100% of Unwanted Calls with imp.

Did you know people with Alzheimer's can receive nearly 200 spam calls a week? You can put a stop to those now.

++++++++++++++++++++++++++++++++++++++++

Make Your Brain Span Match Your LifeSpan

Relevate from NeuroReserve

With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan.

++++++++++++++++++++++++++++++++++++++++

Join Fading Memories On Social Media!

If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links.

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LinkedIn 

Facebook

Contact Jen at [email protected]

or Visit us at www.FadingMemoriesPodcast.com

Frontotemporal dementia (FTD) is a dementia distinct from Alzheimer's in the brain regions affected and symptoms that arise. While memory loss is a key feature of Alzheimer's, FTD often presents with personality changes, behavioral issues,and difficulty with language.

This difference significantly impacts caregiving. An FTD patient might require more assistance with managing emotions or navigating social situations compared to someone with Alzheimer's. Recognizing these unique aspects of FTD is crucial for providing the best care and support to both patients and their families.

Our Guest: Allyson Schrier

Allyson is the co-founder of Zinnia TV. She created this resource because her husband had dementia. She wanted videos that would:

Keep him occupied and happy

Give her a break

Distract him when he was anxious

Calm them both down

Encourage him to drink water, bathe, get dressed, use the toilet

Remind him of activities he loves

It didn't exist so she built it. You know how much I love featuring caregivers turned creators!

ZinniaTV Website

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Related Episodes:

Living with FTD Feat. Janice Swink (part 1)

Living with FTD Feat. Janice Swink (part 2)

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Feeling overwhelmed? HelpTexts can be your pocket therapist.

Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice.

Sign up for a year of support and get:

Daily or twice-weekly texts tailored to your situation

Actionable strategies to cope and move forward

Support for those who care about you (optional)

HelpTexts makes getting help easy and convenient.

++++++++++++++++++++++++++++++++++++++++

Make Your Brain Span Match Your LifeSpan

Relevate from NeuroReserve

I've been focusing a lot on taking care of my brain health, & I've found this supplement called RELEVATE to be incredibly helpful. It provides me with 17 nutrients that support brain function & help keep me sharp. Since you're someone I care about, I wanted to share this discovery with you. You can order it with my code: FM15 & get 15% OFF your order.

With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan.

++++++++++++++++++++++++++++++++++++++++

Join Fading Memories On Social Media!

If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links.

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LinkedIn 

Facebook

Contact Jen at [email protected]

or Visit us at www.FadingMemoriesPodcast.com

A Path Revealed, Carlen Maddux

Elevate your well-being and sense of accomplishment through caregiver goals, a crucial aspect of self-care. Delve into the transformative power of meditation as a self-care technique, exploring its benefits in the context of caregiving. Discover how setting goals can provide a guiding light in the challenging landscape of caregiving.

Meet our guest, Carlen, as he shares a poignant journey. Just days after Martha Maddux, a spirited mother, and civic activist, turns fifty, she is diagnosed with Alzheimer's disease. Carlen and Martha find themselves freefalling, with no safety net but each other. However, this is not a story about Alzheimer's; it's about the emergence of a path in their darkest hours. Carlen's travels to the backwoods of Kentucky, encounters with a Catholic nun, and a journey to Australia are woven into a narrative of resilience and self-discovery.

As caregivers, finding a path forward is a universal challenge. Carlen's story offers insights into slowing down, embracing meditation, and seeking solace in unexpected places, including Thomas Merton's cabin. This conversation with Carlen is a guide on setting goals and implementing self-care methods, emphasizing the importance of navigating the caregiver's life and lifestyle.

Join us in exploring the intersection of caregiver goals, self-care, and the broader realms of psychology and health. Gain valuable perspectives and practical tips for your own caregiving journey.

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Related Episodes:

Alzheimer’s Caregivers-Sending You Encouragement Today

Yoga for Busy Caregivers

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++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Feeling overwhelmed? HelpTexts can be your pocket therapist.

Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice.

Sign up for a year of support and get:

Daily or twice-weekly texts tailored to your situation

Actionable strategies to cope and move forward

Support for those who care about you (optional)

HelpTexts makes getting help easy and convenient.

++++++++++++++++++++++++++++++++++++++++

Make Your Brain Span Match Your LifeSpan

Relevate from NeuroReserve

I've been focusing a lot on taking care of my brain health, & I've found this supplement called RELEVATE to be incredibly helpful. It provides me with 17 nutrients that support brain function & help keep me sharp. Since you're someone I care about, I wanted to share this discovery with you. You can order it with my code: FM15 & get 15% OFF your order.

With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan.

++++++++++++++++++++++++++++++++++++++++

Join Fading Memories On Social Media!

If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links.

Instagram

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LinkedIn 

Facebook

Contact Jen at [email protected]

or Visit us at www.FadingMemoriesPodcast.com

Navigating modern, meaningful caregiving. When caring for someone with dementia, their past is key to their present. Understanding their life story – their passions, values, and beliefs before diagnosis – equips caregivers to navigate a more meaningful care journey.

These details aren't relics of the past; they are the very essence of who your loved one is, even when memories dim. By sharing this personal narrative with healthcare professionals, you empower them to make choices that resonate with your loved one's core identity. Imagine, for instance, a former teacher with a passion for literature. Music therapy sessions featuring classic poems could spark joy and connection, even if they can't recall the author's name. This is the power of weaving your loved one's story into the fabric of their care.

Our Guest

Dr. Allison Applebaum is an Associate Attending Psychologist in the Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center (MSK), and an Associate Professor of Psychology in Psychiatry at Weill Cornell Medicine. She is the Founding Director of the Caregivers Clinic at MSK, the first program of its kind to provide comprehensive psychosocial care to family members and friends of patients who are in the caregiving role.

Dr. Applebaum’s program of research focuses broadly on the development and dissemination of supportive services for family caregivers. She has published over 100 articles, reviews, and book chapters on caregiving, and is the editor of the textbook Cancer Caregivers (Oxford University Press, 2019). Dr. Applebaum has received competitive funding for her research, including awards from the National Cancer Institute, the National Institute of Nursing Research, and the American Cancer Society. She is also the author of the recently published narrative nonfiction book, Stand By Me: A Guide to Navigating Modern, Meaningful Caregiving (Simon Element, 2024).

Grab Stand By Me Here

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Related Episodes:

Love & Dementia: The Challenges of Caregiving Together

Yes, And: Experience Comedy in Dementia Caregiving

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Feeling overwhelmed? HelpTexts can be your pocket therapist.

Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice.

Sign up for a year of support and get:

Daily or twice-weekly texts tailored to your situation

Actionable strategies to cope and move forward

Support for those who care about you (optional)

HelpTexts makes getting help easy and convenient.

++++++++++++++++++++++++++++++++++++++++

Make Your Brain Span Match Your LifeSpan

Relevate from NeuroReserve

I've been focusing a lot on taking care of my brain health, & I've found this supplement called RELEVATE to be incredibly helpful. It provides me with 17 nutrients that support brain function & help keep me sharp. Since you're someone I care about, I wanted to share this discovery with you. You can order it with my code: FM15 & get 15% OFF your order.

With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan.

++++++++++++++++++++++++++++++++++++++++

Join Fading Memories On Social Media!

If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links.

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LinkedIn

Self care is more than bubble baths & wine.

Self-care is more than a bubble bath or a glass of wine. Caregivers frequently hear, “you have to take care of yourself,” but they seldom hear how to make that happen. They're also rarely offered the assistance they need that would allow them time for self-care.

If you want to demolish the feelings of guilt, overwhelm, and bitterness, you need to learn how to become a Warrior of Light. That is the title of my guest's book. Eileen Silverberg is a caregiver, author, and teacher of self-care. She emphasizes meditation and Hawaiian practices, and after listening to this episode, you will have new tools that will help you find peace and happiness and form a stronger bond with your loved one. Self-care will no longer be solely bubble baths & wine.

Through A Warrior of Light, Eileen guides all types of caregivers as they face challenges. She helps them relinquish self-sabotage, forgive themselves, deepen their spiritual practice, engage in self-care, and ultimately, find their own Inner Warrior. As you read her journey, you will repair your connection with yourself and become the best you.So choose today to get rid of those judgments and limiting beliefs surrounding Alzheimer's patients and their caregivers.

Eileen will help you redefine how you view self-care to help you overcome burnouts and anxiety. She will advise you on how to think with a more positive mindset about who you are, how you perceive others and the world.

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Related Episodes:

Alzheimer’s Caregivers-Sending You Encouragement Today

Yoga for Busy Caregivers

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++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Feeling overwhelmed? HelpTexts can be your pocket therapist.

Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice.

Sign up for a year of support and get:

Daily or twice-weekly texts tailored to your situation

Actionable strategies to cope and move forward

Support for those who care about you (optional)

HelpTexts makes getting help easy and convenient.

++++++++++++++++++++++++++++++++++++++++

Make Your Brain Span Match Your LifeSpan

Relevate from NeuroReserve

I've been focusing a lot on taking care of my brain health, & I've found this supplement called RELEVATE to be incredibly helpful. It provides me with 17 nutrients that support brain function & help keep me sharp. Since you're someone I care about, I wanted to share this discovery with you. You can order it with my code: FM15 & get 15% OFF your order.

With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan.

++++++++++++++++++++++++++++++++++++++++

Join Fading Memories On Social Media!

If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links.

Instagram

Twitter

LinkedIn 

Facebook

Contact Jen at [email protected]

or Visit us at www.FadingMemoriesPodcast.com

Parkinson's disease advocacy is vital in the fight for a cure. Without public awareness and ongoing funding, research progress can stall. Advocacy efforts raise money for crucial research, educate the public about the disease, and create a sense of urgency. Every conversation about Parkinson's disease brings us closer to a future without this debilitating condition.

Our Guest: Dr. George Ackerman

Dr. George Ackerman (Sharon’s son) is from Brooklyn, N.Y. Now residing in Florida, he works in the fields of law, police, and education. George lost his mother, Sharon Riff Ackerman on 1/1/2020 due to Parkinson’s Disease. 

George wanted to honor his mother and continue to help in the Parkinson’s awareness cause and did not know how to bring change. We started TogetherForSharon® as a family for the purpose of keeping my mother, Sharon Riff Ackerman’s, memory alive and to share the message of Parkinson’s Awareness and hope for a cure.

Today https://www.togetherforsharon.com/ reaches thousands of individuals across the country for PD Awareness. George currently interviews individuals throughout the Parkinson’s community including various foundations, caregivers, and Parkinson’s warriors to help share their stories and causes. 

I am on a mission, and nothing will ever stop me until there is a PD Cure.... nothing. Join me, share and we are a family in this mission toward a cure, always! https://www.togetherforsharon.com/about-us/#mission

Author, A Son’s Journey from Parkinson’s Disease Caregiver to Advocate. To order your copy click  https://a.co/d/gqUwKJX  

Also available in kindle/eBook and Hardcover at https://www.togetherforsharon.com/my-book/

Together For Sharon Website

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Related Episodes:

Dementia: Signs, Symptoms & Stories of Lewy Body

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++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Feeling overwhelmed? HelpTexts can be your pocket therapist.

Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice.

Sign up for a year of support and get:

Daily or twice-weekly texts tailored to your situation

Actionable strategies to cope and move forward

Support for those who care about you (optional)

HelpTexts makes getting help easy and convenient.

++++++++++++++++++++++++++++++++++++++++

Make Your Brain Span Match Your LifeSpan

Relevate from NeuroReserve

I've been focusing a lot on taking care of my brain health, & I've found this supplement called RELEVATE to be incredibly helpful. It provides me with 17 nutrients that support brain function & help keep me sharp. Since you're someone I care about, I wanted to share this discovery with you. You can order it with my code: FM15 & get 15% OFF your order.

With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan.

++++++++++++++++++++++++++++++++++++++++

Join Fading Memories On Social Media!

If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links.

Instagram

Twitter

LinkedIn 

Facebook

Contact Jen at [email protected]

or Visit us at www.FadingMemoriesPodcast.com