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My apologies for this episode being a little late- I'm getting over my third (yes, third) illness of the month (when will it end?!)

This week I sat down with a dear friend of mine, Taylor Sabky, to talk all things IVF and family planning after a diagnosis. Taylor is a teacher and fellow ASMD mama whose brave warrior, Purnell, gained his wings back in 2019. Taylor is someone I have looked up to as a rare mother and sought out guidance from in the early days of Roman & Stella's diagnosis journey. What her and her family has been able to accomplish in regards to treatment advancement for ASMD and fundraising (they raised $750,000 in ONE month-yes, you read that right- ONE MONTH) has been nothing short of incredible. She continues to honor her son's memory by staying very active in the rare disease community and through her advocacy work by sitting on the board of the National Niemann Pick Disease Foundation.

Taylor tells us about the decision her and her husband made to continue to grow their family via IVF after receiving Nell's diagnosis and what the process was like being pregnant while simultaneously taking care of her medically complex child and all the feels that went along with it.

Learn more about the National Niemann Pick Disease Foundation and all the amazing work they do here.

Learn more about Purnell's brave fight with ASMD (otherwise known as Niemann Pick Disease Type A) here.

Resources & Links for this episode:

• Buy Soaring Together: Amazon, Barnes & Noble, or locally at Bike Trail Books in Loveland and the Cincinnati Zoo Gift Shop
• Learn more about our brave warriors: saveromanandstella.com
• Support our family: GoFundMe
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