Confessions of a Rare Disease Mama

Learning when to let go of control (or as my Grandma always said, "que sera sera!")


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I was planning on talking about something totally different this episode and then my husband tested positive for COVID and my plans changed :)

We have successfully been keeping this dreaded virus out of our house for the past three years.... until now. The thought of our kids getting COVID has haunted us since this mess all began (much like every other parent of medically fragile children). This episode I talk all about how you can only control so much when it comes to your children's health and at a certain point you have to relinquish that control, remind yourself that you've done all you can do to protect your kids and accept that whatever will be, will be!


#GIVINGTUESDAY is coming up next week and there are a couple foundations that are VERY near and dear to my heart:

Donate to Wylder Nation Foundation to help in the fight for my children's lives:
https://wyldernation.org/join-the-fight/donate.html
you can also donate through our Go Fund Me:
https://www.gofundme.com/f/save-roman-and-stella

Donate to Parental Hope:
https://parentalhope.org/donate-now/


Resources & Links for this episode:

  • Buy Soaring Together: Amazon, Barnes & Noble, or locally at Bike Trail Books in Loveland and the Cincinnati Zoo Gift Shop
  • Learn more about our brave warriors: saveromanandstella.com
  • Support our family: GoFundMe
  • Follow us!
    • Instagram: @confessionsofararediseasemama
    • TikTok: @rare_mama
    • Facebook: Jillian Arnold & Confessions of a Rare Disease Mama
  • Get your FREE Positive Affirmations for the Medical Parent PDF here!
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Confessions of a Rare Disease MamaBy Jillian Arnold

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