Stylist Paula Hughes talks about her daughter Kayla being diagnosed with the rare degenerative brain disorder Rhett syndrome. About chasing a diagnosis, advocating for your child, how they taught Kayla to communicate, looking after your marriage while also caring for your child, raising a second child within this situation, about still finding the joy in life, and about how their daughter’s love of food led Aura and her husband to create their food delivery business Kayla’s Kitchen.