Lupus Speaks Podcast

In this episode of the Lupus Speaks Podcast, host Shedrica Shant’e speaks with Jodie Young, who shares her 30-year journey with lupus, from her initial symptoms to her eventual diagnosis.

Jodie discusses the challenges she faced growing up with the disease, including severe pain and fatigue, and how she learned to manage her health over the years.

The conversation also delves into the importance of community support, the establishment of lupus support groups, and the ongoing challenges of balancing work, family, and health. Jodie emphasizes the significance of self-care, communication, and adapting to life's changes while living with a chronic illness.

In this conversation, Jodie shares her experiences managing lupus and the importance of mindfulness and stress management. She discusses her journey in writing the book 'Fabulupus' and her hopes for the future of the lupus community, emphasizing the need for better support and understanding.

Jodie encourages listeners to take care of themselves and to share their stories, as they can help others navigate their own challenges with chronic illness.

You can follow Jodie and her lupus journey

✉️ Email me at: [email protected]

🌐 Visit my website: www.lupusspeaks.org

💜 Show your support: Love what you’re hearing? Please take a moment to leave a review—it really helps!

🗣️ Want to share your journey? I’m always looking for inspiring stories. Reach out via email to be a guest on the show.

💻 Explore freebies & get Lupie Gems: Visit Beacons.ai Store for free downloads and to sign up for my monthly newsletter.

In this solo episode with Shedrica, we’re talking about the common wellness tips we know can help us manage lupus, but many of us tend to skip. Whether it's journaling our thoughts and emotions, getting outdoors, eating clean, or sticking to routines, these tips may seem simple, but they’re powerful tools in taking control of our health.

We’ll dive into how these wellness practices can impact our lupus journey and why it’s time to stop putting them off.

Plus, I’m celebrating a personal milestone this week—16 years living with lupus. I’m sharing how I’m honoring my journey, the lessons I’ve learned along the way, and how embracing these wellness tips has played a role in my story.

Journaling, going outside, eating clean, and creating routines aren’t just ‘nice-to-haves’—they’re essential tools that can support your health journey. And don’t forget to celebrate your milestones—each year, each day, is a victory.

Ever wish you had a personal coach helping you balance your health and business? With AI, you can! In this episode, we’ll show you how AI can act as your personal guide, helping you set boundaries, stay organized, and prioritize your health while still crushing your business goals.

From automated scheduling to task management, learn how AI can make balance feel less like a dream and more like a reality.

Takeaway Lupie Gem: Let AI coach you into a more balanced life where both your health and business thrive.

ChatGPT Prompt from the Episode:
"Help me create a weekly plan that balances my health and business priorities, factoring in time for rest and personal care."

Connect with me:
📲 Follow me on Instagram: @LupusSpeaks
✉️ Email me at: [email protected]
🌐 Visit my website: www.lupusspeaks.org

💜 Show your support: Love what you’re hearing? Please take a moment to leave a review—it really helps!

🗣️ Want to share your journey? I’m always looking for inspiring stories. Reach out via email to be a guest on the show.

💻 Explore freebies & get Lupie Gems: Visit Beacons.ai Store for free downloads and to sign up for my monthly newsletter.

ChatGPT Prompt from the Episode:

"Create a customized list of affirmations to help me stay grounded in my health and business while managing lupus."

OR YOU CAN USE THIS

"Hey ChatGPT! I want to align my mind, body, and business using the power of chakra affirmations.

Can you:"

"Let’s align and thrive!"

Manifesting Your Dream Life with AI: Practical Steps for Lupus Warriors

Discover actionable steps to design your dream life with the support of powerful AI tools. From simplifying daily tasks to boosting productivity, this episode offers insight into how AI can be your secret weapon in creating a future you love, while preserving your health and energy.

Takeaway Lupie Gem: AI is the tool that helps you focus on what truly matters—your health and your dreams.

ChatGPT Prompt from the Episode:
"Help me create a step-by-step daily routine to balance my health and my dream of [insert goal], considering my chronic illness."

Connect with me:
📲 Follow me on Instagram: @LupusSpeaks
✉️ Email me at: [email protected]
🌐 Visit my website: www.lupusspeaks.org
💜 Support the show: If you enjoy this episode, please leave a review and share it with fellow Lupus warriors!
🗣️ Want to be a guest? Email me your story and let’s connect!
💻 Grab freebies and sign up for my newsletter: Beacons.ai Store for exclusive Lupie Gems, podcast updates, and free resources.

Welcome to a special audio newsletter, Lupus Warriors! As we prepare for the launch of Season 3, I wanted to drop in with a quick update. October marks a special time for me, celebrating 16 years of my lupus journey, and this season is packed with episodes that honor both the highs and the challenges we face. I’ll also be sharing tips for balancing business while taking care of your health and inviting some incredible warriors who are doing just that. Can’t wait for you to tune in! Season 3 is coming in hot, so mark your calendars – October 16th is the big day!

Thank you for tuning in to this episode of Lupus Speaks! 💜 If you enjoyed today's conversation, make sure to hit that follow button so you never miss an episode. Stay connected with me on Instagram and TikTok @LupusSpeaks, where I share more tips, behind-the-scenes, and inspiring stories from fellow lupus warriors. And don’t forget to visit www.lupusspeaks.org for even more resources, updates, and our newsletter. Let’s continue to support and uplift each other on this journey. Until next time, keep shining, warriors!

n this conversation, Shedrica Shant’e interviews Semi Watson about her journey with lupus. Semi shares her experience of being diagnosed with lupus in 2013 and the challenges she faced, including fluid buildup around her heart and lungs. She discusses her treatment plans, including taking control of her own health and advocating for herself.

Semi also talks about the importance of setting boundaries and navigating social situations with lupus. She shares her perspective of referring to lupus as her child and the need to educate others about the condition.

Shedrica and Semi discuss the difficulties of balancing relationships and the mental challenges of living with lupus. They provide advice for navigating social anxiety and caring for others' feelings while prioritizing self-care. Spreading awareness about lupus is important, especially among children. There is a lack of targeted resources for children with lupus, and it is important to create awareness and support for them.

Seeking help from doctors can be challenging, as many doctors may not understand or believe the severity of the symptoms. It is important for newly diagnosed individuals to ask for help, advocate for themselves, and not let doctors dismiss their symptoms.

Taking notes and keeping track of symptoms can be helpful in communicating with doctors. It is also important to find a supportive community and not rely on unsolicited advice.

I want to extend an invitation to our amazing listeners. If you've been inspired by today's conversation and want to dive deeper into topics like chronic illness empowerment and entrepreneurship, there are several ways you can continue the journey with us.
Firstly, join our vibrant community over at the Lupie Boss Academy Facebook group. It's a space where warriors like us come together to share resources, support one another, and thrive despite the challenges we face. You can join by visiting https://www.facebook.com/groups/lupiebossacademy/
Next, if you want to stay updated on all things Lupus Speaks Podcast and engage in discussions with fellow listeners, be sure to join our Facebook group. Connect with like-minded individuals, share your thoughts, and continue the conversation by visiting https://www.facebook.com/lupusspeaks
And for those of you looking to take actionable steps towards building your digital business or expanding your knowledge, don't miss out on our UBC course and Lupus Speaks Digital Biz store. Whether you're interested in launching your own digital products or growing your online presence, we have resources tailored just for you. Learn more about the course and explore our digital products by visiting https://lupusspeaks.bio/shop/9209c6f1-517f-4980-a61e-6905ccf48784
If you're a part of a community event, workshop, or webinar related to chronic illness, entrepreneurship, or empowerment, we want to hear from you! Submit your event to us, and we'll share it on an upcoming episode of the Lupus Speaks Podcast. Simply reach out to us at [email protected] with details about your event.
Lastly, if you were inspired by our guest and want to learn more about their services or connect with them directly, you can reach out to them at Semi Watson @lightforlupus

lulielu

In this episode of the Lupus Speaks podcast, host Shedrica Shant’e interviews Charisma Atkins about her journey with lupus and lupus nephritis.

Charisma shares her experience of being diagnosed while in graduate school and the challenges she faced, including joint pain and fatigue. She emphasizes the importance of finding the right doctors and advocating for oneself.

Charisma also discusses the role of fitness and self-care in managing lupus and encourages others to focus on their own healing. She provides her contact information for those who want to connect with her.

Chastity Corbett shares her personal journey with lupus and how it has impacted her life. She emphasizes the importance of advocating for oneself and finding the right healthcare professionals.

Chastity also discusses the Social Butterflies Foundation, which provides direct assistance to lupus and fibromyalgia survivors and their families. The foundation offers emergency financial assistance, college scholarships, support groups, and outreach programs.

Chastity encourages newly diagnosed individuals to not see lupus as a life sentence and to seek support from organizations like hers. She hopes to expand the foundation's reach and have a dedicated staff in the future.

Takeaways

Advocate for yourself and seek multiple opinions from healthcare professionals.

The Social Butterflies Foundation provides direct assistance to lupus and fibromyalgia survivors and their families.

Lupus is not a life sentence and individuals can live a healthy life with proper management.

The foundation offers emergency financial assistance, college scholarships, support groups, and outreach programs.

Newly diagnosed individuals should seek support from organizations like the Social Butterflies Foundation.

Chastity Corbett hopes to expand the foundation's reach and have a dedicated staff in the future.

I want to extend an invitation to our amazing listeners. If you've been inspired by today's conversation and want to dive deeper into topics like chronic illness empowerment and entrepreneurship, there are several ways you can continue the journey with us.
Firstly, join our vibrant community over at the Lupie Boss Academy Facebook group. It's a space where warriors like us come together to share resources, support one another, and thrive despite the challenges we face. You can join by visiting https://www.facebook.com/groups/lupiebossacademy/
Next, if you want to stay updated on all things Lupus Speaks Podcast and engage in discussions with fellow listeners, be sure to join our Facebook group. Connect with like-minded individuals, share your thoughts, and continue the conversation by visiting https://www.facebook.com/lupusspeaks
And for those of you looking to take actionable steps towards building your digital business or expanding your knowledge, don't miss out on our UBC course and Lupus Speaks Digital Biz store. Whether you're interested in launching your own digital products or growing your online presence, we have resources tailored just for you. Learn more about the course and explore our digital products by visiting https://lupusspeaks.bio/shop/9209c6f1-517f-4980-a61e-6905ccf48784
If you're a part of a community event, workshop, or webinar related to chronic illness, entrepreneurship, or empowerment, we want to hear from you! Submit your event to us, and we'll share it on an upcoming episode of the Lupus Speaks Podcast. Simply reach out to us at [email protected] with details about your event.
Lastly, if you were inspired by our guest and want to learn more about their services or connect with them directly, you can reach out to them at Chastity Corbett @socialbutterfliesfoundation or socialbutterfliesfoundation.org

Thank you for tuning in today! Your support means the world to us. Remember, together, we are unstoppable. Until next time, peace and be intentional.
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In this episode of the Lupus Beats podcast, Shedrica Shant’e interviews Amanda Chay, author of The Girlfriend's Guide to Lupus. Amanda shares her journey with lupus and her motivation for writing the book. She emphasizes the importance of self-awareness, education, and being tenacious in managing one's health.

Amanda also discusses the challenges of getting a diagnosis and the impact of lupus on relationships and sex life. She provides dietary tips and recommendations for managing lupus symptoms.

Amanda encourages readers to remember that their life is not over because of lupus and to build a support network that understands and respects their needs.

Takeaways

Self-awareness and education are key in managing lupus and regaining control of one's health.

Building a support network of understanding and respectful individuals is essential for navigating the challenges of lupus.

Dietary choices, such as consuming fruits and vegetables, whole grains, and limiting sugar, can help manage lupus symptoms.

Lupus does not define a person's identity, and life can still be fulfilling and meaningful with the condition.

There is no quick fix for lupus, but small daily actions can have a significant impact on overall well-being.

It is important to be choosy about who is part of one's support network and to prioritize self-care and boundaries.

Having a diagnosis at a younger age and starting treatment early can lead to better management of lupus symptoms.

Misconceptions about lupus include the belief that life is over with the diagnosis and that there is a quick fix for the condition.