Lupus Speaks Podcast

n this conversation, Shedrica Shant’e interviews Semi Watson about her journey with lupus. Semi shares her experience of being diagnosed with lupus in 2013 and the challenges she faced, including fluid buildup around her heart and lungs. She discusses her treatment plans, including taking control of her own health and advocating for herself.

Semi also talks about the importance of setting boundaries and navigating social situations with lupus. She shares her perspective of referring to lupus as her child and the need to educate others about the condition.

Shedrica and Semi discuss the difficulties of balancing relationships and the mental challenges of living with lupus. They provide advice for navigating social anxiety and caring for others' feelings while prioritizing self-care. Spreading awareness about lupus is important, especially among children. There is a lack of targeted resources for children with lupus, and it is important to create awareness and support for them.

Seeking help from doctors can be challenging, as many doctors may not understand or believe the severity of the symptoms. It is important for newly diagnosed individuals to ask for help, advocate for themselves, and not let doctors dismiss their symptoms.

Taking notes and keeping track of symptoms can be helpful in communicating with doctors. It is also important to find a supportive community and not rely on unsolicited advice.

I want to extend an invitation to our amazing listeners. If you've been inspired by today's conversation and want to dive deeper into topics like chronic illness empowerment and entrepreneurship, there are several ways you can continue the journey with us.
Firstly, join our vibrant community over at the Lupie Boss Academy Facebook group. It's a space where warriors like us come together to share resources, support one another, and thrive despite the challenges we face. You can join by visiting https://www.facebook.com/groups/lupiebossacademy/
Next, if you want to stay updated on all things Lupus Speaks Podcast and engage in discussions with fellow listeners, be sure to join our Facebook group. Connect with like-minded individuals, share your thoughts, and continue the conversation by visiting https://www.facebook.com/lupusspeaks
And for those of you looking to take actionable steps towards building your digital business or expanding your knowledge, don't miss out on our UBC course and Lupus Speaks Digital Biz store. Whether you're interested in launching your own digital products or growing your online presence, we have resources tailored just for you. Learn more about the course and explore our digital products by visiting https://lupusspeaks.bio/shop/9209c6f1-517f-4980-a61e-6905ccf48784
If you're a part of a community event, workshop, or webinar related to chronic illness, entrepreneurship, or empowerment, we want to hear from you! Submit your event to us, and we'll share it on an upcoming episode of the Lupus Speaks Podcast. Simply reach out to us at [email protected] with details about your event.
Lastly, if you were inspired by our guest and want to learn more about their services or connect with them directly, you can reach out to them at Semi Watson @lightforlupus

lulielu

In this episode of the Lupus Speaks podcast, host Shedrica Shant’e interviews Charisma Atkins about her journey with lupus and lupus nephritis.

Charisma shares her experience of being diagnosed while in graduate school and the challenges she faced, including joint pain and fatigue. She emphasizes the importance of finding the right doctors and advocating for oneself.

Charisma also discusses the role of fitness and self-care in managing lupus and encourages others to focus on their own healing. She provides her contact information for those who want to connect with her.

Chastity Corbett shares her personal journey with lupus and how it has impacted her life. She emphasizes the importance of advocating for oneself and finding the right healthcare professionals.

Chastity also discusses the Social Butterflies Foundation, which provides direct assistance to lupus and fibromyalgia survivors and their families. The foundation offers emergency financial assistance, college scholarships, support groups, and outreach programs.

Chastity encourages newly diagnosed individuals to not see lupus as a life sentence and to seek support from organizations like hers. She hopes to expand the foundation's reach and have a dedicated staff in the future.

Takeaways

Advocate for yourself and seek multiple opinions from healthcare professionals.

The Social Butterflies Foundation provides direct assistance to lupus and fibromyalgia survivors and their families.

Lupus is not a life sentence and individuals can live a healthy life with proper management.

The foundation offers emergency financial assistance, college scholarships, support groups, and outreach programs.

Newly diagnosed individuals should seek support from organizations like the Social Butterflies Foundation.

Chastity Corbett hopes to expand the foundation's reach and have a dedicated staff in the future.

I want to extend an invitation to our amazing listeners. If you've been inspired by today's conversation and want to dive deeper into topics like chronic illness empowerment and entrepreneurship, there are several ways you can continue the journey with us.
Firstly, join our vibrant community over at the Lupie Boss Academy Facebook group. It's a space where warriors like us come together to share resources, support one another, and thrive despite the challenges we face. You can join by visiting https://www.facebook.com/groups/lupiebossacademy/
Next, if you want to stay updated on all things Lupus Speaks Podcast and engage in discussions with fellow listeners, be sure to join our Facebook group. Connect with like-minded individuals, share your thoughts, and continue the conversation by visiting https://www.facebook.com/lupusspeaks
And for those of you looking to take actionable steps towards building your digital business or expanding your knowledge, don't miss out on our UBC course and Lupus Speaks Digital Biz store. Whether you're interested in launching your own digital products or growing your online presence, we have resources tailored just for you. Learn more about the course and explore our digital products by visiting https://lupusspeaks.bio/shop/9209c6f1-517f-4980-a61e-6905ccf48784
If you're a part of a community event, workshop, or webinar related to chronic illness, entrepreneurship, or empowerment, we want to hear from you! Submit your event to us, and we'll share it on an upcoming episode of the Lupus Speaks Podcast. Simply reach out to us at [email protected] with details about your event.
Lastly, if you were inspired by our guest and want to learn more about their services or connect with them directly, you can reach out to them at Chastity Corbett @socialbutterfliesfoundation or socialbutterfliesfoundation.org

Thank you for tuning in today! Your support means the world to us. Remember, together, we are unstoppable. Until next time, peace and be intentional.
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In this episode of the Lupus Beats podcast, Shedrica Shant’e interviews Amanda Chay, author of The Girlfriend's Guide to Lupus. Amanda shares her journey with lupus and her motivation for writing the book. She emphasizes the importance of self-awareness, education, and being tenacious in managing one's health.

Amanda also discusses the challenges of getting a diagnosis and the impact of lupus on relationships and sex life. She provides dietary tips and recommendations for managing lupus symptoms.

Amanda encourages readers to remember that their life is not over because of lupus and to build a support network that understands and respects their needs.

Takeaways

Self-awareness and education are key in managing lupus and regaining control of one's health.

Building a support network of understanding and respectful individuals is essential for navigating the challenges of lupus.

Dietary choices, such as consuming fruits and vegetables, whole grains, and limiting sugar, can help manage lupus symptoms.

Lupus does not define a person's identity, and life can still be fulfilling and meaningful with the condition.

There is no quick fix for lupus, but small daily actions can have a significant impact on overall well-being.

It is important to be choosy about who is part of one's support network and to prioritize self-care and boundaries.

Having a diagnosis at a younger age and starting treatment early can lead to better management of lupus symptoms.

Misconceptions about lupus include the belief that life is over with the diagnosis and that there is a quick fix for the condition.

This solo episode is an audio version of the June monthly newsletter, filled with updates, announcements, and gratitude for the Lupus community.

It also includes information about upcoming guests, tips for staying safe in the sun, and an announcement about the end of season two and the upcoming season three of the Lupus Speaks podcast.

Takeaways

The episode provides updates, announcements, and gratitude for the Lupus community.

Information about upcoming guests and their contributions to the Lupus community is shared.

Tips for staying safe in the sun, especially for individuals with Lupus, are discussed.

An announcement is made about a digital marketing mentorship program for Lupus Warriors.

The host shares her experience of speaking at an AARP chapter meeting and her plans for reading a book.

The episode concludes with an announcement about the end of season two and the upcoming season three of the Lupus Speaks podcast.

The host expresses gratitude for the support and engagement of the listeners and encourages them to stay tuned for season three.

The episode emphasizes the importance of community, support, and intentional living for Lupus Warriors.

The host shares her personal experiences and plans, creating a relatable and engaging connection with the audience.