Foot drop - a difficulty in lifting the front part of the foot - is one of the most common issues I see with the people I work with. It can be caused by muscle weakness caused by muscular dystrophy, spinal muscular atrophy or motor neurone disease, or damage to the brain or spinal cord caused by a stroke, cerebral palsy, Parkinson's disease, or multiple sclerosis.

There are many ways to manage foot drop - ranging from physiotherapy to electrical nerve stimulation - but my guest today is here to present what his company describes as the world's first truly adaptive shoes.

Dr. Tyler Susco of Cadense shares his journey from being an engineer to developing a split treadmill for gait therapy at MIT, which eventually led to the creation of an innovative shoe. The shoe features a variable friction surface that helps users move more comfortably and confidently.

The shoe underwent a pilot study, where participants experienced significant improvements in their gait mechanics and overall mobility. Feedback from beta testers, including individuals with MS and recovering from strokes, was overwhelmingly positive, with many expressing newfound confidence and mobility. The shoe's impact on users' lives inspired Dr. Susco and his team to continue their work.

Discover the story behind this revolutionary shoe designed to help individuals with foot problems due to stroke, MS, rheumatoid arthritis, and more. Listen to the episode for insights into the creation process and the impact on mobility, and learn about the research, trials, and get a glimpse into the future of mobility aids.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program
Visit Cadense

Want to learn more about The Pulse Device?
💻 Website: https://www.pulsedevice.com/
📸 Instagram:   / pulsedevice 
🎵 TikTok:   / pulsedevice 

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/ 

Cold bean bag Releafpack
 15% discount use code Disrupt15

https://www.releafpack.com 

I'm delighted to present my recent chat with my almost-namesake Cathy Chester and her husband Gary. Cathy and Gary began dating in 1985, the year before Cathy's diagnosis, which means that at the time of recording they have been together for nearly 40 years - incredible!

Cathy and Gary share valuable insights into the importance of communication and mutual respect in maintaining a happy and successful marriage, especially when facing the challenges of MS. They also emphasized the importance of empathy and understanding in their relationship. They acknowledge each other's needs and emotions, whether it's taking a break for self-care or providing support during difficult times.

As an award-winning writer and certified health advocate, Cathy is dedicated to helping other MSers feel less lonely, isolated and overwhelmed than she did when she was diagnosed. She is passionate about helping those with MS feel better about themselves and the world around them.

It was such an honor to be able to interview and meet them both. I hope that you'll be able to feel the love and support they give to each other.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Want to learn more about The Pulse Device?

💻 Website: https://www.pulsedevice.com/

📸 Instagram:   / pulsedevice  

🎵 TikTok:   / pulsedevice  

Sign up for the 10 Weeks to Disrupt MS Program

Connect with Cathy on Instagram
Read Cathy's blog, An Empowered Spirit
Watch Cathy's Ted-like talk, Cathy Chester—I Wish I Knew
Read Katie Couric's profile of Cathy, An MS Advocate On Raising Awareness of Living With a Chronic Illness

If you're interested in having Kathy speak at your event, learn more here

Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

Did you know that music can improve our cognitive abilities and even aid rehabilitation for people with neurological conditions?

Recently I had the pleasure of meeting Kirsten Smayda who holds a PhD in Auditory Cognitive Psychology, and we dove into the fascinating intersection of music, psychology, and health. Kirsten works at MedRhythms, and they are using the power of music and technology to redefine what's possible in brain health.

Kirsten discovered the therapeutic potential of music while studying at the University of Texas at Austin. Her research has shown that learning to play an instrument can significantly improve our auditory processing and listening skills, which is particularly relevant in the context of neurological health. Our conversation highlights the role of neurologic music therapy to adress various rehabilitation goals, including improving speech, mobility, and cognitive functions through music-based interventions.

Among other things, Kirsten underlines the importance of community in music-making, suggesting that engaging with others in musical activities can enhance motivation and provide emotional support for individuals facing health challenges.

I think you'll agree that the future of music as a healing tool is exciting and full of potential!

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Learn more about Disrupting MS Together
Check out the new MS Disrupted Merch

Visit MedRhythms
Connect with Kirsten on LinkedIn

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy beat the Heat and Migraines.
Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com

In a change from our regularly scheduled programming, today I had the pleasure of being interviewed by my wonderful colleague, Mollie Witt. We discussed our journey together, as she has been a personal training client of mine for nearly a year. She shared how our training sessions have transformed her life following her MS diagnosis.

We talked about my passion for podcasting and memorable moments and emotional stories from podcast guests, before going on to talk about our new Disrupting MS Together program.

Disrupting MS Together aims to empower individuals living with MS through functional movement and coaching. I’m excited about the group workouts and the supportive environment we’re creating, and I believe that by fostering a sense of community, we can help each other thrive.

As we wrapped up our conversation, I shared a story from my own experience that reinforced my commitment to staying active and encouraging others to do the same. It’s all about authenticity and connection, and I’m grateful for the opportunity to share my journey with you all.

DISCLAIMER

The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Learn more about Disrupting MS Together

Check out the new MS Disrupted Merch

If you're interested in having Kathy speak at your event, learn more here

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

In the second part of my conversation with former Michigan football player Brian Wallace, Brian shared his journey of coming to terms with his diagnosis and the emotional turmoil that accompanied it. He opened up about the initial fear and embarrassment he felt, especially as someone who had always been athletic.

He expressed the difficulty of disclosing such personal news, particularly in a work environment. For nearly a decade, he kept his condition private, only revealing it when it became unavoidable.

Throughout our conversation, we touched on the loneliness that often accompanies chronic illness. However, Brian has recently found his voice on social media, with his TikTok channel. Initially hesitant, he discovered that sharing his story not only helped him but also connected him with others facing similar challenges.

He discussed the duality of his experience with MS - what it has taken away from him and what it can never take. He emphasized that while the disease has impacted his physical abilities, it cannot erase his accomplishments or the essence of who he is.

As we wrapped up, Brian expressed his desire to start a podcast to further advocate for those with MS and to educate others about the realities of living with the disease. He is passionate about breaking down the stigma and ignorance surrounding MS, and I am excited to see where this journey takes him.

DISCLAIMER

The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Learn more about Disrupting MS Together

Connect with Brain Wallace on TikTok

If you're interested in having Kathy speak at your event, learn more here

Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

Brian Wallace is a former Michigan football player, who shared his incredible journey with multiple sclerosis. His story is not just about sports; it's about resilience, determination, and the power of movement, especially for those of us living with MS.

In the first of a two-part interview, Brian talked about growing up in a loving household, playing various sports, particularly hockey and football. His high school years were marked by recruitment from prestigious colleges, and he ultimately chose to play for the University of Michigan, where he had the opportunity to learn from legendary coaches like Bo Schembechler and Gary Moeller.

As we discussed his diagnosis, Brian recounted the troubling symptoms he experienced leading up to it. After finally learning he had MS, instead of feeling defeated, he felt a sense of relief. Knowing what he was up against allowed him to take control of his health and future.

Throughout our conversation, we touched on the importance of movement and how it can serve as a form of medicine. Brian's journey exemplifies the idea that even when faced with limitations, there are always ways to adapt and keep moving. His story is a testament to the belief that we can redefine our capabilities and find new ways to thrive, regardless of the challenges we face.

Don't miss Part Two, coming tomorrow.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Learn more about Disrupting MS Together

Connect with Brain Wallace on TikTok

If you're interested in having Kathy speak at your event, learn more here

Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store:
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

Did you know that vibration therapy can help with cognitive function and motor skills? Recently I had the pleasure of speaking to Ethan Pollak who has developed a revolutionary device that is making waves in the rehab space for MS and stroke patients, amongst many others.

As experienced weightlifters, Ethan and his co-founder, Cole, realized that many people struggle to engage certain muscles during workouts. They decided to create a product that could replicate the benefits of muscle tapping. After extensive research, they developed the Pulse Device, which uses vibration technology to improve performance and recovery.

However, feedback from physical therapists and users has shown that it can aid in rehabilitation for conditions such as ACL recovery, stroke recovery, and pain relief, particularly for MS patients experiencing symptoms like pins and needles.

Listen to learn about the mechanism used in the Pulse Device, its application for various health conditions, including Multiple Sclerosis, and upcoming features aimed at enhancing the experience of users.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Learn more about Disrupting MS Together

Visit Pulse Device
Connect with Pulse Device on Instagram, TikTok, and YouTube   

If you're interested in having Kathy speak at your event, learn more here

Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com

Lydia Guerrero founded Infusion Wear with a mission to create affordable adaptive wear, specifically designed for individuals undergoing medical treatments. Lydia was diagnosed with multiple sclerosis in 2011, and her DMT infusion process was made more uncomfortable by having to struggle with clothing that was either too tight or cumbersome.

After seeing an adaptive sweatshirt online that was priced at $140, she realized there was a gap in the market for affordable, functional clothing. With her husband's support, she took matters into her own hands, literally sewing zippers into sweatshirts to make her infusion experience more comfortable. Lydia's grassroots approach not only filled a personal need but also aimed to help others facing similar challenges.

In my conversation with Lydia, we talked about the emotional impact of receiving her MS diagnosis, the motivation behind creating adaptive clothing, and the collaborative effort with family and friends to bring her vision to life. We also discussed the importance of creating affordable, high-quality adaptive wear for those with medical needs and the exciting plans for the future of Infusion Wear.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Sign up for the 10 Weeks to Disrupt MS Program

Follow Infusion Wear on Instagram

Visit Infusion Wear

If you're interested in having Kathy speak at your event, learn more here

Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

In part two of my conversation with Dr. Summer, we dive deep into her journey of becoming a physician after facing significant life challenges, including a divorce and becoming a single parent to her two boys. As we covered in the first part of this conversation, Dr. Summer was misdiagnosed with MS before receiving the correct diagnosis of neuromyelitis optica (NMO).

After attending undergrad in Missouri and med school in Pennsylvania, Summer's path to becoming a physician was unconventional, marked by personal trials and triumphs. She shares her experience of transitioning to a power wheelchair and how it affected her work and interactions with patients.

Summer emphasizes that being a physician is not just about treating physical ailments but also about understanding the emotional and spiritual aspects of health. This perspective is crucial, especially for patients dealing with chronic conditions like MS and NMO.

Towards the end of our discussion, Dr. Summer shares her insights on the healthcare system and the challenges faced by both patients and providers. She addresses the frustrations of navigating insurance and the pressures that come with high patient loads. Despite these challenges, she remains committed to her patients and finds joy in her work.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Sign up for the 10 Weeks to Disrupt MS Program

Follow Dr. Summer on TikTok
Visit Summer Banzhaf, DO at Fairfield Medical Center

If you're interested in having Kathy speak at your event, learn more here

Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

I recently enjoyed speaking with the incredible Dr. Summer about her remarkable story. I’ve been following her journey on TikTok, and I was eager to dive into her experiences with neuromyelitis optica (NMO), a condition that was initially misdiagnosed as multiple sclerosis (MS). Summer's resilience and determination to overcome her challenges are truly inspiring.

In the first part of a two-part interview, Summer shared her journey from being misdiagnosed with MS to receiving the correct diagnosis of NMO. She explained that NMO is often confused with MS due to their similarities, but it has distinct characteristics that can lead to more severe symptoms. Summer described her initial experiences with various treatments, including Gilenya and Tysabri, and how they didn’t work for her condition. It was only after multiple attacks that her doctors reconsidered her diagnosis and adjusted her treatment plan.

During our conversation, we discussed Dr. Summer's journey through misdiagnosis and the impact of her condition on her medical career, the emotional challenges of living with a chronic illness and the fear of unpredictability, advances in treatment options for NMO and the hope they bring to patients, and the power of resilience and determination in overcoming health challenges.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Sign up for the 10 Weeks to Disrupt MS Program

Follow Dr. Summer on TikTok
Visit Summer Banzhaf, DO at Fairfield Medical Center

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected] 

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/ 

Cold bean bag Releafpack

15% discount use code Disrupt15

https://www.releafpack.com