Confessions of a Rare Disease Mama

My top travel tips for road tripping with your medically complex child


Listen Later

Send us a text

There was a time, back at the beginning of our children's diagnosis, where we thought traveling was just no longer an option for us. We just didn't see how it was doable to ever go on a vacation with not just one, but two children in wheelchairs (and A LOT of medical equipment). Just the thought of it alone was incredibly overwhelming. As we gear up for our third family road trip with our kids next week, I wanted to share some of my top travel tips with you on ways to decrease your pre-trip anxiety and ensure the smoothest trip possible with your kiddos. Traveling with medically complex kids may take a little more planning for us and strategic packing, but it's definitely doable! 

Resources & Links for this episode:

  • Buy Soaring Together: Amazon, Barnes & Noble, or locally at Bike Trail Books in Loveland and the Cincinnati Zoo Gift Shop
  • Learn more about our brave warriors: saveromanandstella.com
  • Support our family: GoFundMe
  • Follow us!
    • Instagram: @confessionsofararediseasemama
    • TikTok: @rare_mama
    • Facebook: Jillian Arnold & Confessions of a Rare Disease Mama
  • Get your FREE Positive Affirmations for the Medical Parent PDF here!
  • Shop our ...
...more
View all episodesView all episodes
Download on the App Store

Confessions of a Rare Disease MamaBy Jillian Arnold

  • 5
  • 5
  • 5
  • 5
  • 5

5

49 ratings


More shows like Confessions of a Rare Disease Mama

View all
Mamamia Out Loud by Mamamia Podcasts

Mamamia Out Loud

603 Listeners

Child Life On Call |  Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support by Katie Taylor, CCLS

Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support

142 Listeners

The Rare Life by Madeline Cheney

The Rare Life

142 Listeners