When I was a kid, everyone in our neighborhood knew about sickle cell disease. That is...we all knew that it made Black kids sick, sick enough to go to the hospital sometimes. We knew that it was painful and that the bouts came on suddenly, and caused kids to miss school, families to miss work. The parents of kids with Sickle Cell Disease made a big deal out of every single sneeze and canceled long-awaited sleepovers during flu season, out of what felt like an overabundance of caution. Looking back, I realize that we who didn’t deal with it first hand didn’t really know that much about it. In fact, until long after I was an adult, and Prodigy from the hip-hop duo, Mobb Deep died in 2017, I don’t think I really comprehended Sickle Cell’s fatality.
In this very special episode of The Only One In The Room, we talk to Nahomie Acelin and Ronald Felix. Parents who have chosen to grapple with their family’s sickle cell disease in a very special way -- by making their three young sons the stars of a superhero comic book series.
The book is available on Amazon in English: https://www.amazon.ca/BATTLE-OTTOGATZ-SUPER-FELIX-BROTHERS/dp/1777248612
And also in French: https://www.amazon.ca/Bataille-dOttogatz-Super-Brothers-French-ebook/dp/B08CKJSHVD
Social medias :
Ronald Facebook : facebook.com/ronald.felix.18
Nahomie Facebook : facebook.com/nahomie.acelin
Nahomie Instagram: instagram.com/nahomieacelin
Be sure not to miss our weekly full episodes on Tuesdays and Scott Talks now released on Wednesdays by subscribing to the show wherever you listen to podcasts.
Join our Only One In The Room Facebook Group if you'd like to ask a question of any of our upcoming guests for this series.
Also visit the website www.theonlyonepod.com for the latest from our host Laura Cathcart Robbins like featured articles and more.
We love hearing from you in the comments on iTunes and while you're there don't forget to rate us, subscribe and share the show!
All of us at The Only One In The Room wish you safety and wellness during this challenging time.
Learn more about your ad choices. Visit megaphone.fm/adchoices