In this podcast, the viewer will learn the epidemiology, pathophysiology, clinical presentation and management of neonatal jaundice.

Direct links to chapters:

0:00 Chapter 1: Introduction

3:33 Chapter 2: Bilirubin Metabolism

5:41 Chapter 3: Pathophysiology

8:36 Chapter 4: History and Physical Exam

10:40 Chapter 5: Diagnostic Testing

12:29 Chapter 6: Management

Initial publication: January 10, 2019.

A multilingual transcript is available for this video, thanks to the generous support of our community members who volunteered their time to translate our content. Learn more about our OPENPediatrics translation campaign here: https://www.openpediatrics.org/content-translation

Please visit: www.openpediatrics.org

OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.

For further information on how to enroll, please email: [email protected]

In this video, the viewer will learn the epidemiology, pathophysiology, and clinical presentation of croup, and how to diagnose and care for affected children.

Initial publication: August 6, 2018.

A multilingual transcript is available for this video, thanks to the generous support of our community members who volunteered their time to translate our content. Learn more about our OPENPediatrics translation campaign here: https://www.openpediatrics.org/content-translation

Please visit: www.openpediatrics.org

OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.

For further information on how to enroll, please email: [email protected]

Please note: OPENPediatrics does not support nor control any related videos in the sidebar, these are placed by Youtube. We apologize for any inconvenience this may cause.

In this Complex Care Journal Club podcast episode, Drs. Marcella Luercio and Bianca Quiñones-Pérez discuss a qualitative study of barriers to communication perceived by Spanish-speaking families with children with medical complexity admitted to the hospital. They describe the importance of multilingual representation in research, individual and systems-level changes to improve communication with families who speak languages other than English, and next steps from this work.

SPEAKERS

Marcella Luercio, MD

Pediatric Hospitalist

Boston Children's Hospital

Bianca Quiñones-Pérez, MD

Pediatric Hospitalist, Complex Care Services,

Boston Children's Hospital

Instructor of Pediatrics,

Harvard Medical School

HOST

Kathleen Huth, MD, MMSc

Pediatrician, Complex Care Service, Division of General Pediatrics

Boston Children's Hospital

Assistant Professor of Pediatrics

Harvard Medical School

DATE

Initial publication date: December 9, 2024.

JOURNAL CLUB ARTICLE

Luercio M, Quiñones-Pérez B, Castellanos A, Ngo T, Elder B, Blaine K, Haskell H, Lopez K, Luff D, Mallick N, Mercer AN, Williams DN, Baird JD, Khan A. Communicating With Spanish-Speaking Families of Hospitalized Children With Medical Complexity. Hosp Pediatr. 2024 Aug 1;14(8):612-621. doi: 10.1542/hpeds.2023-007700. PMID: 39069815.

OTHER REFERENCES

Ames SG, Delaney RK, Houtrow AJ, Delgado-Corcoran C, Alvey J, Watt MH, Murphy N. Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity. Pediatrics. 2023 Jul 1;152(1):e2022060975. doi: 10.1542/peds.2022-060975. PMID: 37357731.

Khan A, Baird J, Kelly MM, Blaine K, Chieco D, Haskell H, Lopez K, Ngo T, Mercer A, Quiñones-Pérez B, Schuster MA, Singer SJ, Viswanath K, Landrigan CP, Williams D, Luff D. Family Safety Reporting in Medically Complex Children: Parent, Staff, and Leader Perspectives. Pediatrics. 2022 Jun 1;149(6):e2021053913. doi: 10.1542/peds.2021-053913. PMID: 35615941; PMCID: PMC11088436.

Nelson K, Huth K. Choice and Voice: Family Perspectives on Decision-making for Children with Medical Complexity. 8/2024. OPENPediatrics. Online Podcast. https://youtu.be/WN5u0T4UnEU, https://soundcloud.com/openpediatrics/choice-and-voice-family-perspectives-on-decision-making-for-children-with-medical-complexity

Ragavan MI, Méndez DD, Caballero TM. Promoting Language Justice for Children With Medical Complexity and Their Families: An Urgent Call to Action. Hosp Pediatr. 2024 Aug 1;14(8):e358-e361. doi: 10.1542/hpeds.2024-007792. PMID: 39069818; PMCID: PMC11287058.

"Strategies for Working Effectively With Interpreters", a free course on OPENPediatrics.org

https://learn.openpediatrics.org/learn/courses/5662/strategies-for-effectively-working-with-interpreters/lessons

TRANSCRIPTS

English: https://cdn.bfldr.com/D6LGWP8S/at/phv45ptj67wp4c8j876qhvt/120924_CCJCP__Bridging_the_Communication_Gap__The_Role_of_Language_in_Complex_Care.pdf?format=pdf

Spanish:

https://cdn.bfldr.com/D6LGWP8S/at/tv9jkxcn34h3j9mhpxh7p3t/Spanish_120924_CCJCP__Bridging_the_Communication_Gap__The_Role_of_Language_in_Complex_Care.pdf?format=pdf

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6

CITATION

Luercio M, Quiñones-Pérez B, Huth K. Bridging the Communication Gap: The Role of Language in Complex Care. 12/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/bridging-the-communication-gap-the-role-of-language-in-complex-care.

In this World Shared Practice Forum podcast, Dr. Mark Peters discusses the Oxy-PICU trial, published in The Lancet in January 2024, which compared conservative to liberal oxygenation targets in critically ill children. The study highlighted the importance of pragmatic trial design and the need for larger trials to confirm these findings.

LEARNING OBJECTIVES

-Discuss the background driving the investigation of oxygenation in critically ill children

-Summarize the study design of the Oxy-PICU Trial

-Present the outcomes and challenges of the Oxy-PICU Trial

-Identify the key characteristics of pragmatic trial design and the implication of pragmatic trial results

AUTHORS

Mark Peters, MBChB, MRCP, FFICM, FRCPCH, PhD

Professor of Paediatric Intensive Care

NIHR Senior Investigator

UCL Great Ormond St Institute of Child Health

Hon. Consultant Paediatric Intensivist

Paediatric Intensive Care Unit and

Children’s Acute Transport Service

Great Ormond St Hospital

Jeffrey Burns, MD, MPH

Emeritus Chief

Division of Critical Care Medicine

Department of Anesthesiology, Critical Care and Pain Medicine

Boston Children's Hospital

Professor of Anesthesia

Harvard Medical School

DATE

Initial publication date: November 26, 2024.

ARTICLES REFERENCED AND ADDITIONAL RESOURCES

Peters MJ, Gould DW, Ray S, et al. Conservative versus liberal oxygenation targets in critically ill children (Oxy-PICU): a UK multicentre, open, parallel-group, randomised clinical trial [published correction appears in Lancet. 2024 Jan 27;403(10424):354. doi: 10.1016/S0140-6736(24)00100-4]. Lancet. 2024;403(10424):355-364. https://pubmed.ncbi.nlm.nih.gov/38048787/

Fan E, Del Sorbo L, Goligher EC, et al. An Official American Thoracic Society/European Society of Intensive Care Medicine/Society of Critical Care Medicine Clinical Practice Guideline: Mechanical Ventilation in Adult Patients with Acute Respiratory Distress Syndrome [published correction appears in Am J Respir Crit Care Med. 2017 Jun 1;195(11):1540. doi: 10.1164/rccm.19511erratum]. Am J Respir Crit Care Med. 2017;195(9):1253-1263. https://pubmed.ncbi.nlm.nih.gov/28459336/

Peters MJ, Ramnarayan P. Randomized Trials to Reduce Clinical Uncertainty: Gold Standard or Fool's Gold? Pediatr Crit Care Med. 2024;25(8):775-777. https://pubmed.ncbi.nlm.nih.gov/39101806/

Darnell R, Brown A, Laing E, et al. Protocol for a Randomized Controlled Trial to Evaluate a Permissive Blood Pressure Target Versus Usual Care in Critically Ill Children with Hypotension (PRESSURE). Pediatr Crit Care Med. 2024;25(7):629-637. https://pubmed.ncbi.nlm.nih.gov/38629915/

Taccone FS, Rynkowski Bittencourt C, Møller K, et al. Restrictive vs Liberal Transfusion Strategy in Patients With Acute Brain Injury: The TRAIN Randomized Clinical Trial. JAMA.Published online October 09, 2024. https://pubmed.ncbi.nlm.nih.gov/39382241/

Jones GAL, Eaton S, Orford M, et al. Randomization to a Liberal Versus Conservative Oxygenation Target: Redox Responses in Critically Ill Children. Pediatr Crit Care Med. 2023;24(3):e137-e146. https://pubmed.ncbi.nlm.nih.gov/36728001/

UK-ROX: https://www.icnarc.org/research-studies/uk-rox/

MegaROX: https://www.anzics.org/current-active-endorsed-research/mega-rox/

ICU-ROX: https://www.thebottomline.org.uk/summaries/icm/icu-rox/

TRANSCRIPT

https://cdn.bfldr.com/D6LGWP8S/as/rq7kgwqkh4hk4nk67584pfj/202411_-_WSP_-_Less_is_more_Oxygenation_Targets_in_Critically_Ill_Children_-_Transcript?position=2

CITATION

Peters MJ, Burns JP. Less is More: Oxygenation Targets in Critically Ill Children. 11/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/less-is-more-oxygenation-targets-in-critically-ill-children-by-m-peters-openpediatrics.

In this new Nursing World Shared Practice Forum podcast, Dr. Sharon Tucker reviews the foundations of Evidence-Based Practice and why it is important to nursing science. She discusses her body of work focusing on building evidence, implementing evidence into practice, and using frameworks that support Implementation Science. She explains how Implementation Science and Quality Improvement Science are related and how they can work together to improve nursing care.

LEARNING OBJECTIVES

- Explain the three elements that comprise evidence-based practice

- Discuss reasons for gaps between translating evidence into practice

- Explain Implementation Science

- Discuss similarities and differences between Quality Improvement and Implementation Science

AUTHORS

Sharon Tucker, PhD, RN, PMHCNS-BC, NC-BC, EBP-C, FNAP, FAAN

Professor and Chair of the Department of Nursing Practice

College of Nursing

University of Central Florida

Debra Lajoie, PhD, JD, MSN, RN, LNC, Nursing

Director of Nursing Research for Surgical Programs

Nurse Scientist Surgical Programs

Boston Children's Hospital

DATE

Initial publication date: November 18, 2024.

TRANSCRIPT

https://cdn.bfldr.com/D6LGWP8S/as/gcvz79mz5qt8k86bkgrqsrh4/Transcript_Template_NWSP_Tucker_111324

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]

CITATION

Tucker SJ, Marcley S, DeGrazia M, Lajoie D. Evidence-Based Practice and Implementation Science in Nursing. 11/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/evidence-based-practice-and-implementation-science-in-nursing-by-s-tucker-openpediatrics.

In this special Complex Care Journal Club podcast episode, co-hosts Drs. Kilby Mann and Kristie Malik interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 78th Annual Meeting in Quebec City, Canada that took place October 23rd-26th 2024. Speakers describe the implications of their study findings, messages for patients and families, and priority areas for research that they hope can be investigated further by the complex care community in the coming years.

SPEAKERS

Tori Bahr, MD

MedPeds Complex Care Physician

Section Chief of Pediatrics

Gillette Children's, St. Paul, Minnesota

Laura Brunton, PT, PhD

Associate Professor

School of Physical Therapy

Western University, London, Ontario

Caitlin Cassidy, MD

Associate Professor

Departments of Physical Medicine & Rehabilitation and Pediatrics

Western University, London, Ontario

Adam Rosenbloom, MD, MPH

Complex Care Pediatrician

Dell Children's Medical Center

University of Texas at Austin, Dell Medical School

Cristina Sarmiento, MD

Assistant Professor

Department of Physical Medicine and Rehabilitation

University of Colorado Anschutz Medical Campus, Aurora, Colorado

Julie Stutzbach, PT, DPT, PhD

Assistant Professor

School of Rehabilitative and Health Sciences

Regis University, Denver, Colorado

HOSTS

Kristina Malik, MD

Assistant Professor of Pediatrics,

University of Colorado School of Medicine

Medical Director, KidStreet

Pediatrician, Special Care Clinic,

Children's Hospital Colorado

Kilby Mann, MD

Assistant Professor

Pediatric Rehabilitation Medicine

Children's Hospital Colorado

DATE

Initial publication date: November 11, 2024.

ARTICLES AND ADDITIONAL REFERENCES

• American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), https://www.aacpdm.org/

• AACPDM Complex Care Committee (https://www.aacpdm.org/about-us/committees/complex-care)

• Houtrow AJ, Hurwitz MB. A dearth of disability-related competencies in Accreditation Council for Graduate Medical Education's Milestones 2.0. PM R. 2024 Aug 23. doi: 10.1002/pmrj.13257. Epub ahead of print. PMID: 39177053.

• Fehlings D, Agnew B, Gimeno H, Harvey A, Himmelmann K, Lin JP, Mink JW, Monbaliu E, Rice J, Bohn E, Falck-Ytter Y. Pharmacological and neurosurgical management of cerebral palsy and dystonia: Clinical practice guideline update. Dev Med Child Neurol. 2024 Sep;66(9):1133-1147. doi: 10.1111/dmcn.15921. Epub 2024 Apr 19. PMID: 38640091.

• AACPDM Care Pathway Dystonia in Cerebral Palsy, https://www.aacpdm.org/publications/care-pathways/dystonia-in-cerebral-palsy

TRANSCRIPT

https://cdn.bfldr.com/D6LGWP8S/as/p9pj6g7sxn5kjmmgps5wnk4/111124_-_Complex_Care_at_the_American_Academy_for_Cerebral_Palsy_and_Developmental_Medicine_Annual_Meeting

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6

CITATION

Malik K, Bahr T, Brunton L, Cassidy C, Rosenbloom A, Sarmiento C, Stuzbach J, Mann K. Complex Care at the American Academy for Cerebral Palsy and Developmental Medicine Annual Meeting. 11/2024. OPENPediatrics. Online Podcast.. https://soundcloud.com/openpediatrics/complex-care-at-the-aacpdm-2024.

In this World Shared Practice Forum podcast, we discuss the Pediatric Sepsis Data CoLaboratory (Sepsis CoLab), an international open data-sharing network to address pediatric sepsis mortality and morbidity. Drs. Kissoon, Ansermino, and Akech discuss the challenges related to the collection and sharing of data in a global context, the latest advancements in sepsis research and treatment, and how they believe this work will drive better patient outcomes.

LEARNING OBJECTIVES

- Recognize the role of the Sepsis CoLab in global sepsis care

- Describe the challenges and strategies for data sharing in healthcare

- Summarize the importance of standardized data collection in sepsis research

- Discuss some specific examples of how data can be used to support initiatives to improve the care of children with sepsis

AUTHORS

Niranjan "Tex" Kissoon, MBBS, FRCP(C), MCCM, FACPE

Professor, Department of Pediatrics,

University of British Columbia,

Investigator, BCCH Research Institute

President, Global Sepsis Alliance

Institute for Global Health

BC Children's Hospital and BC Women's Hospital & Health Centre

Mark Ansermino, MBBCh

Professor

University of British Columbia

Executive Medical Director for Global Health

BC Children's Hospital

Samuel Akech, MD,

Consultant Pediatrician & Epidemiologist

KEMRI-Wellcome Trust

DATE

Initial publication date: October 21, 2024.

ADDITIONAL RESOURCES

Sepsis CoLab: https://wfpiccs.org/pediatric-sepsis-colab/

Pediatric Sepsis CoLab Membership Application: https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]

CITATION

Kissoon NT, Ansermino JM, Akech S, Wolkbrink TA. Improving Sepsis Care: A Data-Driven Approach. 10/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/improving-sepsis-care-a-data-driven-approach-openpediatrics.

In this Complex Care Journal Club podcast episode, Dr. Renee Turchi discusses an intervention study to improve emergency preparedness for families with children and youth with special health care needs. She describes the multiple community partners involved in intervention development, key insights gained while conducting the study, and next steps from this work.

SPEAKER

Renee M. Turchi, MD, MPH, FAAP

Professor and Chair of Pediatrics,

Pediatrician in Chief

St. Christopher's Hospital for Children

HOST

Emily Goodwin, MD

Clinical Associate Professor of Pediatrics,

University of Missouri Kansas City School of Medicine

Pediatrician, General Academic Pediatrics Beacon Program,

Children’s Mercy Kansas City

DATE

Initial publication date: October 7, 2024.

JOURNAL ARTICLE

Griffin JS, Hipper TJ, Chernak E, Berhane Z, Davis RK, Popek L, Kurapati P, Kim J, Turchi RM. A Virtual Home Preparedness Intervention Centered on Children and Youth With Special Health Care Needs. Acad Pediatr. 2024 Jun 10:S1876-2859(24)00167-0. doi: 10.1016/j.acap.2024.06.002. Epub ahead of print. PMID: 38866363. https://www.academicpedsjnl.net/article/S1876-2859(24)00167-0/fulltext

OTHER REFERENCES

Hipper TJ, Davis R, Massey PM, Turchi RM, Lubell KM, Pechta LE, Rose DA, Wolkin A, Briseño L, Franks JL, Chernak E. The Disaster Information Needs of Families of Children with Special Healthcare Needs: A Scoping Review. Health Secur. 2018 May/Jun;16(3):178-192. doi: 10.1089/hs.2018.0007. Epub 2018 Jun 8. PMID: 29883200; PMCID: PMC11015856. https://pubmed.ncbi.nlm.nih.gov/29883200/

TRANSCRIPT

https://op-docebo-images.s3.amazonaws.com/Transcripts/Preparing+for+Emergencies+Planning+and+Partnerships+with+Families_Turchi_100824.pdf

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]

CITATION

Turchi RM, Goodwin EJ. Preparing for Emergencies: Planning and Partnerships with Families. 10/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/preparing-for-emergencies-planning-and-partnerships-with-families.

In this World Shared Practice Forum Podcast, Drs. Adrienne Randolph and Aaron Bodansky explore the groundbreaking research findings that uncover the pathophysiological mechanism behind multisystem inflammatory syndrome in children (MIS-C). These findings shed light on the characteristic immune response of patients who develop MIS-C, and provide insight into the development of post-infectious auto-immune disease phenotypes.

LEARNING OBJECTIVES

- Describe the pathophysiology of MIS-C, including the clinical features and molecular immune response

- Describe the immune dysregulation that results in MIS-C, including the role of autoantibodies and T-cell responses

- Identify the potential connections between SARS-CoV-2 infection and the development of autoimmune responses

- Recognize the implications of the study findings for other related conditions such as long COVID and sepsis

AUTHORS

Adrienne Randolph, MD, MSc

Senior Associate in Critical Care Medicine, Department of Anesthesiology, Critical Care and Pain Medicine

Boston Children's Hospital

Professor of Anaesthesia and Pediatrics

Harvard Medical School

Aaron Bodansky, MD

Assistant Professor

Pediatric Critical Care

University of California, San Francisco School of Medicine

DATES

Initial publication: September 24, 2024.

ARTICLES REFERENCED

Bodansky A, Mettelman RC, Sabatino JJ Jr, et al. Molecular mimicry in multisystem inflammatory syndrome in children. Nature. 2024;632(8025):622-629. doi:10.1038/s41586-024-07722-4.

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]

CITATION

Randolph AG, Bodansky A, Burns JP. Unveiling MIS-C's Immune Response: Molecular Mimicry. 09/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/unveiling-mis-cs-immune-response-molecular-mimicry-by-a-randolph-and-a-bodansky-openpediatrics

In this Complex Care Journal Club podcast episode, Ms. de Pins and Dr. Lin discuss a quality improvement initiative to standardize post-visit written communication in a multidisciplinary clinic. They describe stakeholder involvement in defining project goals, effective interventions to reduce the use of medical jargon in after-visit summaries, and next steps from this work.

SPEAKERS

Agathe de Pins, BSc, MSc

Medical Student

Icahn School of Medicine at Mount Sinai

Elaine Lin, MD

Co-Director, Cerebral Palsy and Spasticity Center

Pediatrician, Complex Care Service,

Boston Children's Hospital

HOST

Kristina Malik, MD

Assistant Professor of Pediatrics,

University of Colorado School of Medicine

Medical Director, KidStreet

Pediatrician, Special Care Clinic,

Children's Hospital Colorado

DATE

Initial publication: September 9, 2024.

JOURNAL ARTICLE

de Pins AM, Adu-Amankwah D, Shadman KA, Hess SM, Elaiho CR, Butler LR, Ranade SC, Shah BJ, Fields R, Lin EP. A Quality Improvement Project to Improve After-visit Summary Patient Instructions in a Pediatric Multidisciplinary Neuromuscular Program. Pediatr Qual Saf. 2024 Jul 10;9(4):e743. doi: 10.1097/pq9.0000000000000743. PMID: 38993270; PMCID: PMC11236396.

OTHER REFERENCES

Gidengil C, Parast L, Burkhart Q, Brown J, Elliott MN, Lion KC, McGlynn EA, Schneider EC, Mangione-Smith R. Development and Implementation of the Family Experiences With Coordination of Care Survey Quality Measures. Acad Pediatr. 2017 Nov-Dec;17(8):863-870. doi: 10.1016/j.acap.2017.03.012. Epub 2017 Mar 31. PMID: 28373108.

Hess SM, Adu-Amankwah D, Elaiho CR, Butler LR, Ranade SC, Shah BJ, Shadman K, Fields R, Lin EP. Qualitative feedback from caregivers in a multidisciplinary pediatric neuromuscular clinic. J Pediatr Rehabil Med. 2024;17(2):237-246. doi: 10.3233/PRM-230011. PMID: 38427510; PMCID: PMC11306999.

TRANSCRIPT

https://op-docebo-images.s3.amazonaws.com/Transcripts/Drop+the+Jargon_Lin+and+de+Pins_090924.pdf

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]

CITATION

de Pins AM, Lin EP, Malik K. Drop the Jargon: Improving Written Communication to Families After Multidisciplinary Care. 9/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/drop-the-jargon-improving-written-communication-to-families-after-multidisciplinary-care