In this Complex Care Journal Club podcast episode, Dr. Ulfat Shaikh discusses the development of an implementation toolkit to prevent medication errors in the home and community using quality improvement methodology. She describes the process of translating recommendations from a policy statement into practice, opportunities for collaboration with the Council on Quality Improvement and Patient Safety, and next steps from this work.

SPEAKER

Ulfat Shaikh, MD, MPH, MS

Professor of Pediatrics and Medical Director for Healthcare Quality

University of California Davis Health

HOST

Kristina Malik, MD

Assistant Professor of Pediatrics,

University of Colorado School of Medicine

Medical Director, KidStreet

Pediatrician, Special Care Clinic,

Children's Hospital Colorado

DATES

Initial publication: March 11, 2024.

JOURNAL CLUB ARTICLE

Shaikh U, Kim JM, Yin SH. Implementing Strategies to Prevent Home Medication Administration Errors in Children With Medical Complexity. Clin Pediatr (Phila). 2023 Aug 29:99228231196750. doi: 10.1177/00099228231196750. Epub ahead of print. PMID: 37644803.

OTHER ARTICLES REFERENCED

Agency for Healthcare Research and Quality. Health Literacy Universal Precautions Toolkit, 3rd Edition. Use the Teach-Back Method: Tool 5. Content last reviewed February 2024. https://www.ahrq.gov/health-literacy/improve/precautions/tool5.html‌

‌‌American Academy of Pediatrics Council on Quality Improvement and Patient Safety. Preventing home medication administration errors implementation resources. Published November/December 2021. Accessed August 16, 2023. bit.ly/44kK68W.‌

‌

‌Yin HS, Neuspiel DR, Paul IM, Franklin W, Tieder JS, Adirim T, Alvarez F, Brown JM, Bundy DG, Ferguson LE, Gleeson SP, Leu M, Mueller BU, Connor Phillips S, Quinonez RA, Rea C, Rinke ML, Shaikh U, Shiffman RN, Vickers Saarel E, Spencer Cockerham SP, Mack Walsh K, Jones B, Adler AC, Foster JH, Green TP, Houck CS, Laughon MM, Neville K, Reigart JR, Shenoi R, Sullivan JE, Van Den Anker JN, Verhoef PA. Preventing Home Medication Administration Errors. Pediatrics. 2021 Dec 1;148(6):e2021054666. doi: 10.1542/peds.2021-054666. PMID: 34851406.

TRANSCRIPT

https://op-docebo-images.s3.amazonaws.com/Transcripts/Preventing+Pediatric+Medication+Errors+at+Home_Shaikh_030824.pdf

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]

CITATION

Shaikh U, Malik K. Preventing Pediatric Medication Errors at Home: Putting a Policy Statement into Practice. 3/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/preventing-pediatric-medication-errors-at-home-putting-a-policy-statement-into-practice

In this World Shared Practice Forum Podcast, Dr. Martin Kneyber discusses the implementation of the PALICC-2 guidelines in bedside monitoring and management of pediatric acute respiratory distress syndrome (PARDS). He shares insights on how the concepts of positive end-expiratory pressure (PEEP), driving pressure, patient self-inflicted lung injury (P-SILI), and the use of non-invasive ventilation are translated to the bedside management of PARDS.

LEARNING OBJECTIVES

- Explain the concept of driving pressure and its significance in the management of pediatric acute lung injury

- Identify the potential benefits and drawbacks of neuromuscular blockade in pediatric acute lung injury patients

- Describe the concept of non-invasive ventilation in the management of acute respiratory failure in pediatric patients, including its potential benefits, limitations, and challenges in implementation

AUTHORS

Martin Kneyber MD, PhD, FCCM

Chief of the Division of Paediatric Critical Care Medicine

Beatrix Children’s Hospital

University Medical Center Groningen, Groningen, the Netherlands

Jeffrey Burns MD, MPH

Chief and Shapiro Chair, Division of Critical Care Medicine; Executive Chair, International Health Services

Senior Associate in Critical Care Medicine; Department of Anesthesiology, Critical Care and Pain Medicine

Boston Children's Hospital

Professor of Anesthesia

Harvard Medical School

DATES

Initial Publication Date: February 26, 2024.

ARTICLES REFERENCED

00:58 https://pubmed.ncbi.nlm.nih.gov/36661420/

Emeriaud G, López-Fernández YM, Iyer NP, et al. Executive Summary of the Second International Guidelines for the Diagnosis and Management of Pediatric Acute Respiratory Distress Syndrome (PALICC-2). Pediatr Crit Care Med. 2023;24(2):143-168.

01:46 https://pubmed.ncbi.nlm.nih.gov/29373802/

Khemani RG, Parvathaneni K, Yehya N, Bhalla AK, Thomas NJ, Newth CJL. Positive End-Expiratory Pressure Lower Than the ARDS Network Protocol Is Associated with Higher Pediatric Acute Respiratory Distress Syndrome Mortality. Am J Respir Crit Care Med. 2018;198(1):77-89.

02:53 https://pubmed.ncbi.nlm.nih.gov/30361119/

Khemani RG, Smith L, Lopez-Fernandez YM, et al. Paediatric acute respiratory distress syndrome incidence and epidemiology (PARDIE): an international, observational study [published correction appears in Lancet Respir Med. 2018 Nov 13;:] [published correction appears in Lancet Respir Med. 2019 Mar;7(3):e12]. Lancet Respir Med. 2019;7(2):115-128.

07:45 https://pubmed.ncbi.nlm.nih.gov/25693014/

Amato MB, Meade MO, Slutsky AS, et al. Driving pressure and survival in the acute respiratory distress syndrome. N Engl J Med. 2015;372(8):747-755.

07:49 https://pubmed.ncbi.nlm.nih.gov/36661438/

Yehya N, Smith L, Thomas NJ, et al. Definition, Incidence, and Epidemiology of Pediatric Acute Respiratory Distress Syndrome: From the Second Pediatric Acute Lung Injury Consensus Conference. Pediatr Crit Care Med. 2023;24(12 Suppl 2):S87-S98.

18:09 https://pubmed.ncbi.nlm.nih.gov/20843245/

Papazian L, Forel JM, Gacouin A, et al. Neuromuscular blockers in early acute respiratory distress syndrome. N Engl J Med. 2010;363(12):1107-1116.

18:27 https://pubmed.ncbi.nlm.nih.gov/27779896/

Huang DT, Angus DC, Moss M, et al. Design and Rationale of the Reevaluation of Systemic Early Neuromuscular Blockade Trial for Acute Respiratory Distress Syndrome. Ann Am Thorac Soc. 2017;14(1):124-133.

19:26 https://pubmed.ncbi.nlm.nih.gov/27748627/

Doorduin J, Nollet JL, Roesthuis LH, et al. Partial Neuromuscular Blockade during Partial Ventilatory Support in Sedated Patients with High Tidal Volumes. Am J Respir Crit Care Med. 2017;195(8):1033-1042.

Kneyber MCJ, O’Hara JE, Burns JP. Bedside Implementation of the PALICC-2 Guidelines. 2/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/bedside-implementation-of-the-palicc-2-guidelines-by-m-kneyber-openpediatrics.

In this Complex Care Journal Club podcast episode, Dr. Julie Hauer and Ms. Jennifer Siedman discuss the development of an anticipatory guidance tool for children with severe neurologic impairment called NeuroJourney, an initiative of the Courageous Parents Network. They describe its grounding in palliative care principles and literature, opportunities to support collaborative relationships between clinicians and families, and next steps from this work.

SPEAKERS

Julie Hauer, MD

Pediatrician, Division of General Pediatrics

Boston Children's Hospital

Medical Director

Seven Hills Pediatrics Center

Jennifer Siedman, MEd

Director of Community Engagement

Courageous Parents Network

HOST

Emily Goodwin, MD

Clinical Associate Professor of Pediatrics, University of Missouri Kansas City School of Medicine

Pediatrician, General Academic Pediatrics Beacon Program, Children’s Mercy Kansas City

DATES

Initial publication: February 5, 2024.

JOURNAL ARTICLE

Hauer J, Siedman J, Trager C, Thienprayoon R. NeuroJourney. Courageous Parents Network. Accessed Jan 25th, 2024. https://neurojourney.courageousparentsnetwork.org/

OTHER REFERENCES

Thienprayoon, R; Lord, BT; Siedman, J; Hauer, J. Creating a “Journey Map” for Children with Severe Neurologic Impairment: A Collaboration Between Private and Academic Pediatric Palliative Care, Nonprofit Organizations, and Parents. Journal of Pain and Symptom Management. 2023; 65:e270-e271.

Orkin J, Beaune L, Moore C, Weiser N, Arje D, Rapoport A, Netten K, Adams S, Cohen E, Amin R. Toward an Understanding of Advance Care Planning in Children With Medical Complexity. Pediatrics. 2020 Mar;145(3):e20192241. doi: 10.1542/peds.2019-2241.

TRANSCRIPT

https://op-docebo-images.s3.amazonaws.com/Transcripts/Shared+Journeys_+Evidence-Based+Anticipatory+Guidance_020524.pdf

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]

CITATION

Hauer J, Siedman J, Goodwin EJ. Shared Journeys: Evidence-Based Anticipatory Guidance for Children with Severe Neurologic Impairment. 2/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/shared-journeys-evidence-based-anticipatory-guidance-for-children-with-severe-neurologic-impairment

In this World Shared Practice Forum Podcast, Dr. Robert Tasker, Editor-in-Chief of the journal Pediatric Critical Care Medicine, discusses his efforts to help scholars improve their writing and get published. He emphasizes the importance of reading contemporary literature, mastering the basics of scientific writing, and engaging with references critically in the age of AI.

LEARNING OBJECTIVES

Upon listening to the presentation, learners will be able to:

- Recognize the importance of reading and thoroughly engaging with references in scientific writing

- Discuss the limitations and uncertain place of AI-generated content in academic writing

- Identify the role of mentors, reviewers, and editors in ensuring academic rigor in scholarly work

- Preview upcoming innovations in the journal of PCCM

AUTHORS

Robert C. Tasker, MBBS, MD

ditor-in-Chief, Pediatric Critical Care Medicine

Pediatric Critical Care Medicine

Senior Associate in Critical Care Medicine, Department of Anesthesiology, Critical Care and Pain Medicine

Boston Children's Hospital

Professor of Anesthesia

Harvard Medical School

College Lecturer in Medicine and Graduate Tutor

Selwyn College, University of Cambridge

Traci Wolbrink, MD, MPH

Senior Associate in Critical Care Medicine; Department of Anesthesiology, Critical Care and Pain Medicine

Boston Children's Hospital

Associate Professor of Anesthesia

Harvard Medical School

DATES

Initial Publication Date: January 22, 2024.

ARTICLES REFERENCED

2:17 https://pubmed.ncbi.nlm.nih.gov/33657612/

Tasker RC. Writing for PCCM: The 3,000-Word Structured Clinical Research Report. Pediatr Crit Care Med. 2021;22(3):312-317. doi:10.1097/PCC.0000000000002700

2:36 https://pubmed.ncbi.nlm.nih.gov/33790209/

Tasker RC. PCCM Narratives, Letters, and Correspondence. Pediatr Crit Care Med. 2021;22(4):426-427. doi:10.1097/PCC.0000000000002732

2:50 https://pubmed.ncbi.nlm.nih.gov/36165939/

Tasker RC. Writing for PCCM: Instructions for Authors. Pediatr Crit Care Med. 2022;23(8):651-655. doi:10.1097/PCC.0000000000003032

2:56 https://journals.lww.com/pccmjournal/fulltext/2022/08000/writing_for_pccm__instructions_for_authors.9.aspx

Tasker, Robert C. MBBS, MD, FRCP1–3. Writing for PCCM: Instructions for Authors. Pediatric Critical Care Medicine 23(8):p 651-655, August 2022. | DOI: 10.1097/PCC.0000000000003032

5:21 https://pubmed.ncbi.nlm.nih.gov/35390115/

Horvat CM, Curley MAQ, Girard TD. Selecting Intermediate Respiratory Support Following Extubation in the Pediatric Intensive Care Unit. JAMA. 2022;327(16):1550-1552. doi:10.1001/jama.2022.4637

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access, thus at no expense to the user. For further information on how to enroll, please email: [email protected]

CITATION

Tasker RC, O’Hara JE, Wolbrink TA. The Future of Scholarly Writing in Pediatric Critical Care Medicine. 01/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/pccm-in-the-future-era-of-writing-and-reading-by-r-tasker-openpediatrics.

In this video, the viewer will learn the clinical basics of fever as well as the physiology of body temperature and the approach to evaluation and management of fever.

Initial publication: April 9, 2019.

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]

In this Complex Care Journal Club podcast episode, Dr. Arda Hotz discusses a cross-sectional study of the use of durable medical equipment and supplies by pediatric patients. She describes implications for the care of children with complex chronic conditions, key stakeholders involved in the analysis, and next steps from this work.

SPEAKERS

Arda Hotz, MD, MPH

Instructor of Pediatrics, Harvard Medical School

Pediatrician, Division of General Pediatrics, Boston Children's Hospital

HOST

Emily Goodwin, MD

Clinical Associate Professor of Pediatrics, University of Missouri Kansas City School of Medicine

Pediatrician, General Academic Pediatrics Beacon Program, Children’s Mercy Kansas City

DATES

Initial publication: January 5, 2024.

ARTICLES REFERENCED

Hotz A, Sprecher E, Bastianelli L, Rodean J, Stringfellow I, Barkoudah E, Cohen LE, Estrada C, Graham R, Greenwood J, Kyle J, Mann N, Pinkham M, Solari T, Rosen R, Saleeb S, Shah AS, Watters K, Wells S, Berry JG. Categorization of a Universal Coding System to Distinguish Use of Durable Medical Equipment and Supplies in Pediatric Patients. JAMA Netw Open. 2023 Oct 2;6(10):e2339449. doi: 10.1001/jamanetworkopen.2023.39449. PMID: 37874565; PMCID: PMC10599121.

Adegboro CO, Coller RJ. An Important Tool to Understand Durable Medical Equipment and Supply Use in Children. JAMA Netw Open. 2023 Oct 2;6(10):e2339581. doi: 10.1001/jamanetworkopen.2023.39581. PMID: 37874568

‌

Children and Youth with Special Health Care Needs National Research Network. Emerging Investigator Program. https://cyshcnet.org/emerging-investigator-program/‌‌‌

Feudtner C, Feinstein JA, Zhong W, Hall M, Dai D. Pediatric complex chronic conditions classification system version 2: updated for ICD-10 and complex medical technology dependence and transplantation. BMC Pediatr. 2014 Aug 8;14:199. doi: 10.1186/1471-2431-14-199. PMID: 25102958; PMCID: PMC4134331.‌‌‌‌

TRANSCRIPT

https://op-docebo-images.s3.amazonaws.com/Transcripts/Getting+Equipped_Understanding+the+Use+of+Durable+Medical+Equipment+in+Children_Hotz_010824.pdf

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access, thus at no expense to the user. For further information on how to enroll, please email: [email protected]

CITATION

Hotz A, Goodwin EJ. Getting Equipped: Understanding the Use of Durable Medical Equipment in Pediatrics. 1/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/getting-equipped-understanding-the-use-of-durable-medical-equipment-in-pediatrics.

In this Nursing World Shared Practice video, Dr. Ernest Grant discusses the catalysts that prompted the formation of the National Commission to Address Racism in Nursing. He identifies inequities within the nursing profession and provides examples of how nurses can become allies to confront individual and systemic racism.

LEARNING OBJECTIVES

Following this discussion, learners will be able to:

- Explain why the National Commission to Address Racism in Nursing was founded

- Define racism in nursing

- Discuss how racism in nursing is being addressed

- Identify ways to be an antiracist in nursing

- Provide examples of effective allyship in nursing

AUTHORS

Ernest J. Grant, PhD, DSc(h), RN, FAAN

Vice Dean for Diversity, Equity, Inclusion and Belonging

Duke University School of Nursing

Office of Diversity and Inclusion

Immediate Past President of the American Nurses Association

Laura J. Wood, DNP, RN, NEA-BC, FAAN

EVP Patient Care Operations & System CNO

Sporing Carpenter Chair for Nursing

Boston Children's Hospital

DATES

Initial publication: December 18, 2023.

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access and thus at no expense to the user. For further information on how to enroll, please email: [email protected]

CITATION

Grant EJ, DeGrazia M, Wood LJ. Antiracism in Nursing and the Importance of Allyship. 12/2023. OPENPediatrics. Online Podcast: https://soundcloud.com/openpediatrics/antiracism-in-nursing-and-the-importance-of-allyship-by-dr-ernest-grant-for-openpediatrics

This podcast discusses trauma-informed care (TIC) for children including 1) why patients may not endorse a history of trauma, 2) why providers might not screen for trauma, and 3) what to do if a patient has a positive screen for trauma.

LEARNING OBJECTIVES

- Recognize why a patient may not endorse a history of trauma

- Define reasons why a provider might not screen for trauma

- Identify and utilize strategies to respond to a patient who does screen positive for a trauma history

AUTHORS

Ayesha Dholakia, MD

Pediatrics Resident

Boston Combined Residency Program

Leadership in Equity and Advocacy (LEAD) Track

Boston Children's Hospital | Boston Medical Center

Katelin Blackburn, MD

Adolescent Medicine Fellow

Division of Adolescent and Young Adult Medicine

Boston Children's Hospital

Brenna Chase, MD

Chief Resident in Pediatrics

Boston Combined Residency Program

Urban Health and Advocacy Track

Boston Children's Hospital | Boston Medical Center

Daniel O'Meara, MD

Pediatrics Resident

Boston Combined Residency Program

Boston Children's Hospital | Boston Medical Center

DATES

Initial publication date: December 12, 2023

CITATION

Dholakia A, Perez C, Blackburn K, Chase B, Wills K, O'Meara D. Trauma Informed Care Part 2. 12/2023. OPENPediatrics. Podcast: https://soundcloud.com/openpediatrics/pediatric-behavioral-and-mental-health-trauma-informed-care-part-2.

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user. For further information on how to enroll, please email: [email protected]

This podcast discusses trauma-informed care (TIC) for children by 1) defining trauma, 2) discussing the common types of traumatic events children can experience, 3) detailing core principles of trauma-informed care, and 4) providing recommendations for how to incorporate TIC into pediatric practice.

LEARNING OBJECTIVES

- Recognize the ubiquitous nature of trauma

- Identify the core tenets of trauma-informed care

- Identify and utilize strategies to provide such care to our patients and families

AUTHORS

Ayesha Dholakia, MD

Pediatrics Resident

Boston Combined Residency Program

Leadership in Equity and Advocacy (LEAD) Track

Boston Children's Hospital | Boston Medical Center

Catherine Coughlin, MD

Emergency Medicine Fellow

Division of Emergency Medicine

Boston Children's Hospital

Katelin Blackburn, MD

Adolescent Medicine Fellow

Division of Adolescent and Young Adult Medicine

Boston Children's Hospital

Brenna Chase, MD

Chief Resident in Pediatrics

Boston Combined Residency Program

Urban Health and Advocacy Track

Boston Children's Hospital | Boston Medical Center

Daniel O'Meara, MD

Pediatrics Resident

Boston Combined Residency Program

Boston Children's Hospital | Boston Medical Center

DATES

Initial Publication: December 12, 2023

Please visit: www.openpediatrics.org

OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.

For further information on how to enroll, please email: [email protected]

CITATION

Dholakia A, Moye B, Blackburn K, Coughlin CG, Chase B, Wills K, O'Meara D. Trauma Informed Care Part 1. 12/2023. OPENPediatrics. Online Podcast: https://on.soundcloud.com/xZ1oU.

In this Complex Care Journal Club podcast episode, Dr. Lewis First and Ms. Cara Coleman discuss the role of the journal Pediatrics in disseminating emerging evidence in complex care and disability. They describe the unique Family Partnerships column, the inclusive decision-making process for publication, and opportunities for clinicians and families to engage with the journal.

SPEAKERS

Lewis R. First, MD, MS

Editor-In-Chief, Pediatrics

Professor and Chair, Department of Pediatrics,

The University of Vermont Robert Larner, M.D. College of Medicine

Cara L. Coleman, JD, MPH

Associate Editor, Pediatrics

Instructor of Medical Education,

UVA Medicine Inova campus

HOST

Kathleen Huth, MD, MMSc

Pediatrician, Complex Care Service, Division of General Pediatrics

Boston Children's Hospital

Assistant Professor of Pediatrics

Harvard Medical School

DATES

Initial publication: December 4, 2023.

ARTICLES REFERENCED

https://publications.aap.org/pediatrics/pages/author-instructions#family_partnerships

https://publications.aap.org/pediatrics/resources/26567/commentary-from-the-council-on-children-with

Cohen E, Kuo DZ, Agrawal R, Berry JG, Bhagat SK, Simon TD, Srivastava R. Children with medical complexity: an emerging population for clinical and research initiatives. Pediatrics. 2011 Mar;127(3):529-38. doi: 10.1542/peds.2010-0910. Epub 2011 Feb 21. PMID: 21339266; PMCID: PMC3387912.

Agrawal R, Stille C, Editors.

Building Systems That Work for Children With Complex Health Care Needs

March 2018, Vol 141, Supplement 3

https://publications.aap.org/pediatrics/issue/141/Supplement_3

Brown TW, McLellan SE, Mann MY, Scott JA. Guest Editors

Blueprint for Change: A National Framework for a System of Services for Children and Youth with Special Health Care Needs

June 2022, Vol 149, Supplement 7

https://publications.aap.org/pediatrics/issue/149/Supplement%207

TRANSCRIPT

https://op-docebo-images.s3.amazonaws.com/Transcripts/+Collective+Voice_A+Conversation+about+Complex+Care_120523+.pdf

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6

Please visit: www.openpediatrics.org

OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access and thus at no expense to the user.

CITATION

First LR, Coleman CL, Huth K. Collective Voice: A Conversation about Complex Care and Disability in the Journal Pediatrics. 12/2023. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/collective-voice-a-conversation-about-complex-care-and-disability-in-the-journal-pediatrics