OPENPediatrics

In this Complex Care Journal Club podcast episode, Ms. Pearce and Dr. Synnes discuss a series of patient-oriented research studies aimed at partnering with parents in reimagining meaningful outcomes for premature infants. They describe the inclusion of parents on the study team, recruitment of parent participants, lessons and challenges while conducting the study, messages for other researchers and parents, and the next steps from this work.

SPEAKERS

Rebecca Pearce, B. Ed, MSc

Vice Principal

Villa Maria High School

Parent Partner

CHU Sainte-Justine and Canadian Premature Babies Foundation‌

Anne Synnes, MDCM, MHSc

Clinical Professor, Neonatologist

University of British Columbia

British Columbia's Women's Hospital and British Columbia's Children's Hospital Research Institute

HOST

Kilby Mann, MD

Assistant Professor

Pediatric Rehabilitation Medicine

Children's Hospital Colorado

DATE

Initial publication date: February 10, 2025.

ARTICLES REFERENCED

Pearce R, Synnes A, Lam MM, Richter LL, Bacchini F, Jones M, Luu TM, Janvier A; PARENTS’ VOICE NETWORK. Partnering With Parents to Change Measurement and Reporting of Preterm Birth Outcomes. Pediatrics. 2024 Nov 1;154(5):e2024067093. doi: 10.1542/peds.2024-067093. PMID: 39354888.

Haslam MD, Lisonkova S, Creighton D, Church P, Yang J, Shah PS, Joseph KS, Synnes A; Canadian Neonatal Network and the Canadian Neonatal Follow-Up Network. Severe Neurodevelopmental Impairment in Neonates Born Preterm: Impact of Varying Definitions in a Canadian Cohort. J Pediatr. 2018 Jun;197:75-81.e4. doi: 10.1016/j.jpeds.2017.12.020. Epub 2018 Feb 3. PMID: 29398054.

TRANSCRIPT

https://cdn.bfldr.com/D6LGWP8S/as/p65m4p98gppf65mz3zhmm9g/February_Pearce_and_Synnes_ccjcp_final_revisions‌

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: [email protected]

CITATION

Pearce R, Synnes A, Mann K. Focus on Abilities: Parent-Identified Outcomes of Preterm Infants. 2/2025. OPENPediatrics. Online Podcast: https://soundcloud.com/openpediatrics/focus-on-abilities-parent-identified-outcomes-of-preterm-infants

In this World Shared Practice Forum podcast, Dr. Dennis Daniel discusses pediatric extracorporeal life support (ECLS) with experts Drs. Peta Alexander and Ryan Barbaro. They explore the differences between pediatric and adult extracorporeal cardiopulmonary resuscitation (ECPR), highlighting differing causes of cardiac arrest and the interpretation of recently published studies. The discussion also covers supply chain issues affecting ECMO availability, the importance of standardized, evidence-based practices to identifying ECMO-associated complications, and opportunities for future research into ECMO use and outcomes.

LEARNING OBJECTIVES

- Identify the key differences between pediatric and adult extracorporeal cardiopulmonary resuscitation (ECPR), focusing on technical challenges and typical causes of cardiac arrest

- Discuss the challenges facing standardization of pediatric ECMO care, including supply chain issues and approaches to capturing and classifying ECMO-associated complications

- Describe areas of need and opportunity for future research in pediatric ECMO

AUTHORS

Peta Alexander, MBBS, FRACP, FCICM

Senior Associate Cardiologist

Director of ECMO Program

Boston Children’s Hospital

Associate Professor in Pediatrics

Harvard Medical School

Ryan Barbaro, MD, MSc

Service Chief of Pediatric Critical Care Medicine

Director of Pediatric ECMO

C.S. Mott Children's Hospital

Clinical Associate Professor in Pediatric Critical Care

University of Michigan

Dennis Daniel, MD

ECMO Medical Director, Medical-Surgical ICU

Associate Director, OPENPediatrics

Boston Children’s Hospital

DATE

Initial publication date: January 27, 2025.

ARTICLES REFERENCED AND ADDITIONAL RESOURCES

- Alexander PMA, Di Nardo M, Combes A, et al. Definitions of adverse events associated with extracorporeal membrane oxygenation in children: results of n international Delphi process from the ECMO-CENTRAL ARC. Lancet Child Adolesc Health. 2024;8(10):773-780. https://pubmed.ncbi.nlm.nih.gov/39299748/

- UK collaborative randomised trial of neonatal extracorporeal membrane oxygenation. UK Collaborative ECMO Trail Group. Lancet. 1996;348(9020):75-82. https://pubmed.ncbi.nlm.nih.gov/8676720/

- Biomarkers of Brain Injury in Critically-Ill Children on Extracorporeal Membrane Oxygenation (ECMOhttps://reporter.nih.gov/project-details/10545733

- TITRE - Trial of Indication-based Transfusion of Red Blood Cells in ECMO, https://www.childrenshospital.org/clinical-trials/nct05405426

- ASCEND study: https://chear.org/our-research/projects/ascend-ards-children-and-ecmo-initiation-strategies-impact-neuro-development

TRANSCRIPT

https://cdn.bfldr.com/D6LGWP8S/at/bzpc2445cxrk9zch4wqvjjs5/012525_WSP_Updates_in_Pediatric_ECMO.pdf

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access, thus at no expense to the user. For further information on how to enroll, please email: [email protected]

CITATION

Alexander PMA, Barbaro RP, Daniel D. Updates in Pediatric ECMO: Challenges and Opportunities. 01/2025. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/updates-in-pediatric-ecmo-challenges-and-opportunities-by-p-alexander-r-barbaro-openpediatrics.

In this Nursing World Shared Practice Forum podcast, Dr. Felesia Bowen, president-elect of the National Association of Pediatric Nurse Practitioners (NAPNAP), discusses the evolving role of nurse practitioners (NPs) in healthcare, and emphasizes the importance of NPs in health promotion and policy. She highlights the need for a national standardized scope of practice for NPs and advocates for increased diversity in the nursing workforce to address health and educational disparities.

LEARNING OBJECTIVES

- Describe the nurse practitioner's role within healthcare

- Explain how current legislative and regulatory issues in the United States impact the nurse practitioner role

- Discuss NAPNAP’s plan to support health equity and expand global partnerships

- Describe ways to diversify and support the nursing workforce to reduce health disparities

AUTHORS

Felesia Bowen, PhD, DNP, PPCNP-BC, FADLN, FAAN

President-elect of NAPNAP, 2024-2027

Professor and Associate Dean for Access and Engagement

University of Alabama at Birmingham

Julia McSweeney, MSN, RN, CPNP

Senior Director of Advanced Nursing Practice

Boston Children’s Hospital

DATE

January 20, 2025.

TRANSCRIPT

https://cdn.bfldr.com/D6LGWP8S/as/ksm5qr297mrv3j8fkm7x6mtj/011624_NWSP_Bowen_The_Role_of_Nurse_Practitioners_in_Healthcare_and_Policy

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]

CITATION

Bowen FR, Marcley S, DeGrazia M, McSweeney JE. The Role of Nurse Practitioners in Healthcare and Policy 01/2025. OPENPediatrics. https://soundcloud.com/openpediatrics/the-role-of-nurse-practitioners-in-healthcare-and-policy-by-f-bowen-openpediatrics.

In this Complex Care Journal Club podcast episode, Dr. Kathleen C. Thomas discusses a cross-sectional study of associations between neighborhood context with psychotropic polypharmacy and psychotherapy among children with high-needs for medical or psychiatric care. She describes the inclusion of parent advisors on the study team, the inclusion of children with medical complexity in the study population, key insights including the importance of non-medical supports, and the next steps from this work.

SPEAKER

Kathleen C. Thomas, PhD, MPH

Professor and Vice Chair of Research and Graduate Education

Division of Pharmaceutical Outcomes and Policy

Eshelman School of Pharmacy

University of North Carolina at Chapel Hill

HOST

Kristina Malik, MD

Assistant Professor of Pediatrics,

University of Colorado School of Medicine

Medical Director, KidStreet

Pediatrician, Special Care Clinic,

Children's Hospital Colorado

DATE

Initial publication date: January 13, 2025.

ARTICLE REFERENCED

Thomas KC, Annis IE, deJong NA, Christian RB, Davis SA, Hughes PM, Prichard BA, Prichard JR, Allen PS, Gettinger JS, Morris DN, Eaker KB. Association Between Neighborhood Context and Psychotropic Polypharmacy Use Among High-Need Children. Psychiatr Serv. 2024 Sep 11:appips20230639. doi: 10.1176/appi.ps.20230639. Epub ahead of print. PMID: 39257315.

TRANSCRIPT

https://cdn.bfldr.com/D6LGWP8S/as/3rffshwp3q2km53w7xckq38/011025_CCJCP__Where_You_Live_Matters

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user. For further information on how to enroll, please email: [email protected]

CITATION

Thomas KC, Malik KE. Where You Live Matters: Psychotropic Polypharmacy and Psychotherapy in Children with High-Needs‌. 01/2025. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/where-you-live-matters-psychotropic-polypharmacy-and-psychotherapy-in-children-with-high-needs.

In this podcast, the viewer will learn the epidemiology, pathophysiology, clinical presentation and management of neonatal jaundice.

Direct links to chapters:

0:00 Chapter 1: Introduction

3:33 Chapter 2: Bilirubin Metabolism

5:41 Chapter 3: Pathophysiology

8:36 Chapter 4: History and Physical Exam

10:40 Chapter 5: Diagnostic Testing

12:29 Chapter 6: Management

Initial publication: January 10, 2019.

A multilingual transcript is available for this video, thanks to the generous support of our community members who volunteered their time to translate our content. Learn more about our OPENPediatrics translation campaign here: https://www.openpediatrics.org/content-translation

Please visit: www.openpediatrics.org

OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.

For further information on how to enroll, please email: [email protected]

In this video, the viewer will learn the epidemiology, pathophysiology, and clinical presentation of croup, and how to diagnose and care for affected children.

Initial publication: August 6, 2018.

A multilingual transcript is available for this video, thanks to the generous support of our community members who volunteered their time to translate our content. Learn more about our OPENPediatrics translation campaign here: https://www.openpediatrics.org/content-translation

Please visit: www.openpediatrics.org

OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.

For further information on how to enroll, please email: [email protected]

Please note: OPENPediatrics does not support nor control any related videos in the sidebar, these are placed by Youtube. We apologize for any inconvenience this may cause.

In this Complex Care Journal Club podcast episode, Drs. Marcella Luercio and Bianca Quiñones-Pérez discuss a qualitative study of barriers to communication perceived by Spanish-speaking families with children with medical complexity admitted to the hospital. They describe the importance of multilingual representation in research, individual and systems-level changes to improve communication with families who speak languages other than English, and next steps from this work.

SPEAKERS

Marcella Luercio, MD

Pediatric Hospitalist

Boston Children's Hospital

Bianca Quiñones-Pérez, MD

Pediatric Hospitalist, Complex Care Services,

Boston Children's Hospital

Instructor of Pediatrics,

Harvard Medical School

HOST

Kathleen Huth, MD, MMSc

Pediatrician, Complex Care Service, Division of General Pediatrics

Boston Children's Hospital

Assistant Professor of Pediatrics

Harvard Medical School

DATE

Initial publication date: December 9, 2024.

JOURNAL CLUB ARTICLE

Luercio M, Quiñones-Pérez B, Castellanos A, Ngo T, Elder B, Blaine K, Haskell H, Lopez K, Luff D, Mallick N, Mercer AN, Williams DN, Baird JD, Khan A. Communicating With Spanish-Speaking Families of Hospitalized Children With Medical Complexity. Hosp Pediatr. 2024 Aug 1;14(8):612-621. doi: 10.1542/hpeds.2023-007700. PMID: 39069815.

OTHER REFERENCES

Ames SG, Delaney RK, Houtrow AJ, Delgado-Corcoran C, Alvey J, Watt MH, Murphy N. Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity. Pediatrics. 2023 Jul 1;152(1):e2022060975. doi: 10.1542/peds.2022-060975. PMID: 37357731.

Khan A, Baird J, Kelly MM, Blaine K, Chieco D, Haskell H, Lopez K, Ngo T, Mercer A, Quiñones-Pérez B, Schuster MA, Singer SJ, Viswanath K, Landrigan CP, Williams D, Luff D. Family Safety Reporting in Medically Complex Children: Parent, Staff, and Leader Perspectives. Pediatrics. 2022 Jun 1;149(6):e2021053913. doi: 10.1542/peds.2021-053913. PMID: 35615941; PMCID: PMC11088436.

Nelson K, Huth K. Choice and Voice: Family Perspectives on Decision-making for Children with Medical Complexity. 8/2024. OPENPediatrics. Online Podcast. https://youtu.be/WN5u0T4UnEU, https://soundcloud.com/openpediatrics/choice-and-voice-family-perspectives-on-decision-making-for-children-with-medical-complexity

Ragavan MI, Méndez DD, Caballero TM. Promoting Language Justice for Children With Medical Complexity and Their Families: An Urgent Call to Action. Hosp Pediatr. 2024 Aug 1;14(8):e358-e361. doi: 10.1542/hpeds.2024-007792. PMID: 39069818; PMCID: PMC11287058.

"Strategies for Working Effectively With Interpreters", a free course on OPENPediatrics.org

https://learn.openpediatrics.org/learn/courses/5662/strategies-for-effectively-working-with-interpreters/lessons

TRANSCRIPTS

English: https://cdn.bfldr.com/D6LGWP8S/as/7zjc5vr6xxgqmsmn87pbfm/120924_CCJCP__Bridging_the_Communication_Gap__The_Role_of_Language_in_Complex_Care

Spanish:

https://cdn.bfldr.com/D6LGWP8S/as/7zjc5vr6xxgqmsmn87pbfm/120924_CCJCP__Bridging_the_Communication_Gap__The_Role_of_Language_in_Complex_Care?position=3

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6

CITATION

Luercio M, Quiñones-Pérez B, Huth K. Bridging the Communication Gap: The Role of Language in Complex Care. 12/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/bridging-the-communication-gap-the-role-of-language-in-complex-care.

In this World Shared Practice Forum podcast, Dr. Mark Peters discusses the Oxy-PICU trial, published in The Lancet in January 2024, which compared conservative to liberal oxygenation targets in critically ill children. The study highlighted the importance of pragmatic trial design and the need for larger trials to confirm these findings.

LEARNING OBJECTIVES

-Discuss the background driving the investigation of oxygenation in critically ill children

-Summarize the study design of the Oxy-PICU Trial

-Present the outcomes and challenges of the Oxy-PICU Trial

-Identify the key characteristics of pragmatic trial design and the implication of pragmatic trial results

AUTHORS

Mark Peters, MBChB, MRCP, FFICM, FRCPCH, PhD

Professor of Paediatric Intensive Care

NIHR Senior Investigator

UCL Great Ormond St Institute of Child Health

Hon. Consultant Paediatric Intensivist

Paediatric Intensive Care Unit and

Children’s Acute Transport Service

Great Ormond St Hospital

Jeffrey Burns, MD, MPH

Emeritus Chief

Division of Critical Care Medicine

Department of Anesthesiology, Critical Care and Pain Medicine

Boston Children's Hospital

Professor of Anesthesia

Harvard Medical School

DATE

Initial publication date: November 26, 2024.

ARTICLES REFERENCED AND ADDITIONAL RESOURCES

Peters MJ, Gould DW, Ray S, et al. Conservative versus liberal oxygenation targets in critically ill children (Oxy-PICU): a UK multicentre, open, parallel-group, randomised clinical trial [published correction appears in Lancet. 2024 Jan 27;403(10424):354. doi: 10.1016/S0140-6736(24)00100-4]. Lancet. 2024;403(10424):355-364. https://pubmed.ncbi.nlm.nih.gov/38048787/

Fan E, Del Sorbo L, Goligher EC, et al. An Official American Thoracic Society/European Society of Intensive Care Medicine/Society of Critical Care Medicine Clinical Practice Guideline: Mechanical Ventilation in Adult Patients with Acute Respiratory Distress Syndrome [published correction appears in Am J Respir Crit Care Med. 2017 Jun 1;195(11):1540. doi: 10.1164/rccm.19511erratum]. Am J Respir Crit Care Med. 2017;195(9):1253-1263. https://pubmed.ncbi.nlm.nih.gov/28459336/

Peters MJ, Ramnarayan P. Randomized Trials to Reduce Clinical Uncertainty: Gold Standard or Fool's Gold? Pediatr Crit Care Med. 2024;25(8):775-777. https://pubmed.ncbi.nlm.nih.gov/39101806/

Darnell R, Brown A, Laing E, et al. Protocol for a Randomized Controlled Trial to Evaluate a Permissive Blood Pressure Target Versus Usual Care in Critically Ill Children with Hypotension (PRESSURE). Pediatr Crit Care Med. 2024;25(7):629-637. https://pubmed.ncbi.nlm.nih.gov/38629915/

Taccone FS, Rynkowski Bittencourt C, Møller K, et al. Restrictive vs Liberal Transfusion Strategy in Patients With Acute Brain Injury: The TRAIN Randomized Clinical Trial. JAMA.Published online October 09, 2024. https://pubmed.ncbi.nlm.nih.gov/39382241/

Jones GAL, Eaton S, Orford M, et al. Randomization to a Liberal Versus Conservative Oxygenation Target: Redox Responses in Critically Ill Children. Pediatr Crit Care Med. 2023;24(3):e137-e146. https://pubmed.ncbi.nlm.nih.gov/36728001/

UK-ROX: https://www.icnarc.org/research-studies/uk-rox/

MegaROX: https://www.anzics.org/current-active-endorsed-research/mega-rox/

ICU-ROX: https://www.thebottomline.org.uk/summaries/icm/icu-rox/

TRANSCRIPT

https://cdn.bfldr.com/D6LGWP8S/as/rq7kgwqkh4hk4nk67584pfj/202411_-_WSP_-_Less_is_more_Oxygenation_Targets_in_Critically_Ill_Children_-_Transcript?position=2

CITATION

Peters MJ, Burns JP. Less is More: Oxygenation Targets in Critically Ill Children. 11/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/less-is-more-oxygenation-targets-in-critically-ill-children-by-m-peters-openpediatrics.

In this new Nursing World Shared Practice Forum podcast, Dr. Sharon Tucker reviews the foundations of Evidence-Based Practice and why it is important to nursing science. She discusses her body of work focusing on building evidence, implementing evidence into practice, and using frameworks that support Implementation Science. She explains how Implementation Science and Quality Improvement Science are related and how they can work together to improve nursing care.

LEARNING OBJECTIVES

- Explain the three elements that comprise evidence-based practice

- Discuss reasons for gaps between translating evidence into practice

- Explain Implementation Science

- Discuss similarities and differences between Quality Improvement and Implementation Science

AUTHORS

Sharon Tucker, PhD, RN, PMHCNS-BC, NC-BC, EBP-C, FNAP, FAAN

Professor and Chair of the Department of Nursing Practice

College of Nursing

University of Central Florida

Debra Lajoie, PhD, JD, MSN, RN, LNC, Nursing

Director of Nursing Research for Surgical Programs

Nurse Scientist Surgical Programs

Boston Children's Hospital

DATE

Initial publication date: November 18, 2024.

TRANSCRIPT

https://cdn.bfldr.com/D6LGWP8S/as/gcvz79mz5qt8k86bkgrqsrh4/Transcript_Template_NWSP_Tucker_111324

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]

CITATION

Tucker SJ, Marcley S, DeGrazia M, Lajoie D. Evidence-Based Practice and Implementation Science in Nursing. 11/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/evidence-based-practice-and-implementation-science-in-nursing-by-s-tucker-openpediatrics.

In this special Complex Care Journal Club podcast episode, co-hosts Drs. Kilby Mann and Kristie Malik interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 78th Annual Meeting in Quebec City, Canada that took place October 23rd-26th 2024. Speakers describe the implications of their study findings, messages for patients and families, and priority areas for research that they hope can be investigated further by the complex care community in the coming years.

SPEAKERS

Tori Bahr, MD

MedPeds Complex Care Physician

Section Chief of Pediatrics

Gillette Children's, St. Paul, Minnesota

Laura Brunton, PT, PhD

Associate Professor

School of Physical Therapy

Western University, London, Ontario

Caitlin Cassidy, MD

Associate Professor

Departments of Physical Medicine & Rehabilitation and Pediatrics

Western University, London, Ontario

Adam Rosenbloom, MD, MPH

Complex Care Pediatrician

Dell Children's Medical Center

University of Texas at Austin, Dell Medical School

Cristina Sarmiento, MD

Assistant Professor

Department of Physical Medicine and Rehabilitation

University of Colorado Anschutz Medical Campus, Aurora, Colorado

Julie Stutzbach, PT, DPT, PhD

Assistant Professor

School of Rehabilitative and Health Sciences

Regis University, Denver, Colorado

HOSTS

Kristina Malik, MD

Assistant Professor of Pediatrics,

University of Colorado School of Medicine

Medical Director, KidStreet

Pediatrician, Special Care Clinic,

Children's Hospital Colorado

Kilby Mann, MD

Assistant Professor

Pediatric Rehabilitation Medicine

Children's Hospital Colorado

DATE

Initial publication date: November 11, 2024.

ARTICLES AND ADDITIONAL REFERENCES

• American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), https://www.aacpdm.org/

• AACPDM Complex Care Committee (https://www.aacpdm.org/about-us/committees/complex-care)

• Houtrow AJ, Hurwitz MB. A dearth of disability-related competencies in Accreditation Council for Graduate Medical Education's Milestones 2.0. PM R. 2024 Aug 23. doi: 10.1002/pmrj.13257. Epub ahead of print. PMID: 39177053.

• Fehlings D, Agnew B, Gimeno H, Harvey A, Himmelmann K, Lin JP, Mink JW, Monbaliu E, Rice J, Bohn E, Falck-Ytter Y. Pharmacological and neurosurgical management of cerebral palsy and dystonia: Clinical practice guideline update. Dev Med Child Neurol. 2024 Sep;66(9):1133-1147. doi: 10.1111/dmcn.15921. Epub 2024 Apr 19. PMID: 38640091.

• AACPDM Care Pathway Dystonia in Cerebral Palsy, https://www.aacpdm.org/publications/care-pathways/dystonia-in-cerebral-palsy

TRANSCRIPT

https://cdn.bfldr.com/D6LGWP8S/as/p9pj6g7sxn5kjmmgps5wnk4/111124_-_Complex_Care_at_the_American_Academy_for_Cerebral_Palsy_and_Developmental_Medicine_Annual_Meeting

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6

CITATION

Malik K, Bahr T, Brunton L, Cassidy C, Rosenbloom A, Sarmiento C, Stutzbach J, Mann K. Complex Care at the American Academy for Cerebral Palsy and Developmental Medicine Annual Meeting. 11/2024. OPENPediatrics. Online Podcast.. https://soundcloud.com/openpediatrics/complex-care-at-the-aacpdm-2024.