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As International #NASHDay 2023 approaches on June 8th, Surfing NASH dedicates a session to explore what makes this year’s occasion incredibly important for patient advocacy and what we all can consider in preparation. Founder, President and Chief Executive Officer of the Global Liver Institute (GLI), Donna Cryer, shares her anticipations alongside Pamela Danagher (Terns Pharmaceuticals) and co-hosts Jörn Schattenberg and Roger Green.

This session starts with Roger asking Donna to point to one thing that happened in 2022 that had ripples in the pond of liver disease. He also wonders what will stimulate folks to think about what to do this year in terms of having an effect on 2024. Donna highlights distributing over $100,000 in community grants to support organizations in hosting events around the world for NASH education and advocacy. This investment has since led to strengthening partnerships and programs to promote liver health in places like Africa and India. One such activity that has seen an explosion in energy as a result of these partnerships is NASH clinical trial recruitment. For example, a San Diego chapter of GLI’s Liver Action Network identified 26 patients in a single day at one of their events. Donna and her team are digging deep to learn what worked so well that day and how to replicate results like this in the future. Pamela emphasizes the utility of strong clinical trial recruitment for continued drug development in a post-approval environment. Donna speaks to the need of connecting and diversifying the networks of care providers so that patients have referral access to endocrinologists in addition to hepatologists and gastroenterologists. Jörn underscores the untapped potential of the liver community in its ability to enable patients to take control of their liver conditions.

If you enjoy the episode, have questions or interest around its contents and Fatty Liver disease, we kindly ask that you submit reviews wherever you download our discussions. Further, if you have questions or interest around participating in #NASHDay 2023, please let us know your ideas by writing to [email protected].

Stay Safe and Surf On!