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Guest: Alisa Roth,author :

Alisa Roth is a print and radio journalist who has reported extensively on the criminal justice system. Her first book, Insane: America’s Criminal Treatment of Mental Illness, investigated the mental health crisis in our courts, jails, and prisons. The New Yorker called it an “essential exposé” and The New York Times said it “is rife with sharp, brutal details that pull the reader beyond the realms of abstract policy debates.” She is former mental health correspondent for American Public Media.

1. Describe one example of the worst (e.g. solitary confinement or punishment for self harm) and the best (e.g. PACE, program for accelerated  clinical effectiveness) you saw in your travels. How did we get here?

2. What is it like for the officers who work in prisons? What is in their training or lack of it that stands out? This isn’t what they signed up for…yet they are asked to do it.

3.Is it hard to identify those with mental illness at first?

4. What works , and what could help make it work better?

5. Could family involvement help?  Do prisons request or get histories of patients?

6. We often hear that during deinstitutionalization we took people out of institutions and the mirror image number people are now in jails and prisons. In “Insane,” you contend that the story is far more complicated. Please explain.

7. You note that race, poverty, and mental illness overlap in the criminal justice system, but of all the gross imbalances of our current approach to criminal justice, perhaps no group has been hurt as much as people with mental illness. Why is that your conclusion?

8. Why is society more willing to spend money on jails and prisons (e.g., mental health units) than regular mental health care?

9. You write that about 80 percent of people with mental illness in the criminal justice system have a substance use disorder in addition to the mental illness. Have we made any progress in treating these illnesses in tandem?

10. You write that 30 % of those with serious mental illness receive no treatment at all. What kinds of mental health care do we need more of?

11. You note that in many states, much of the inventory of beds is reserved for forensic patients, at the expense of civilian ones, thus sending more people with mental illness to jail and prison. Do we need more inpatient care and long-term care?

12. What should a better mental health care system look like?

13. You write that since the changes of the 1970s, many cite the barriers to involuntary commitment as one of the reasons for the increased criminalization of mental illness. Do you also subscribe to that theory?

14. Why is enrollment in mental health courts so limited, making them, as you write, unable to make a dent in the number of people with mental illness who end up in the criminal court system.

Links:

AlisaRoth on twitter/X - @alisa_roth

Website: http://alisaroth.com/

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://www.randyekaye.com

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

Guest: Charla Collins

Charla’s daughter Kylee lives with severe mental illness. After suffering a traumatic brain injury in her teens she eventually turned to drugs, and with little resources available to get her the long term mental health care she needs, she often disappears into the streets, going long periods without contact. During a particular instance in 2021, Charla went out to look for her.

Here, she shares the knowledge and wisdom she has gained through her many searches to find, and help, her daughter.

Be prepared.

Tips include:

• Calling the Police
• Databases of Missing Persons
• Providing Photographs
• Flyers
• Getting Help
• Budgeting your Money and Time
• What Happens When You find Them?

and more.

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://www.randyekaye.com/

Miriam and her book: https://www.miriam-feldman.com/

Hosts:

Who:

Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (Ben Behind his Voices, Happier Made Simple)

Miriam Feldman -  is an artist, writer, and the mother of an adult son with schizophrenia. Her book, He Came in With It chronicles her family's story and was released to rave reviews on July 21st, 2020.

Mindy Greiling - Mindy Greiling was a member of the Minnesota House of Representatives for twenty years. She helped found the nation's first state mental health caucus, which successfully lobbied for a significant increase in Minnesota's mental health funding Her acclaimed memoir is Fix What You Can.

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

The last time we invited our listeners to share their stories, the response was incredible - so we are doing it again!

Here are stories from families dealing with SMI (serious mental illness), including one gentleman who lives with the diagnosis himself.

You are not alone.

You’ll hear about early symptoms, incarcerations, fear, finances, the roller coaster of diagnoses, medications, and relapses…second hits, good periods, HIPAA barriers, and more….including, yes, some success and hope.

We end with ways we care for ourselves. Here is the list from the chat:

• outdoors/nature
• family and friends
• faith
• Swim
• walk, talk with friends, family
• inside Schizophrenia podcast
• NAMI/ Family to Family
• help others
• cry when you need to
• research
• Being an advocate!!!
• enjoy the good moments
• vacations...breaks
• 1. Antipsychotic drug 2. Family and friends 3. Disclosure - talking with people
• walk, podcasts, audiobooks, escape
• celebrate the small
• every little moment is big
• mindfulness
• LEAP is the best communication tool to help with your relationship with loved one with SMI
• connecting with people
• permission to have joy
• Meditation… chanting monks…
•  Dr. Jeffrey Thompson has some great CD’s with brainwaves that help to calm the rough waters and bring peace.
• you don't have to give up joy just because you have grief

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://www.randyekaye.com/

Miriam and her book: https://www.miriam-feldman.com/

Hosts:

Who:

Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (Ben Behind his Voices, Happier Made Simple)

Miriam Feldman -  is an artist, writer, and the mother of an adult son with schizophrenia. Her book, He Came in With It chronicles her family's story and was released to rave reviews on July 21st, 2020.

Mindy Greiling - Mindy Greiling was a member of the Minnesota House of Representatives for twenty years. She helped found the nation's first state mental health caucus, which successfully lobbied for a significant increase in Minnesota's mental health funding Her acclaimed memoir is Fix What You Can.

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

Guest: Kathy Day, Senior Family Resource and Advocacy Manager,Treatment advocacy center

In her role as the senior family resources and advocacy manager at Treatment Advocacy Center*, Kathy Day helps families across the country find resources and strategies to work within the system of mental healthcare for their loved ones who have severe mental illnesses. She supports, coaches, strategizes, and listens to people whose loved ones live with SMI. She helps families help their loved ones help themselves. 

Kathy shares her own journey through the process of getting her family member conserved in CA on her public Facebook blog, Broken.

We Ask:

1. What 2 or 3 things would you most like families to know as you tell us about your work?
2. The immediate catalyst was when a listener asked us to address: why do so many people with schizophrenia "choose" to live on the street? What are your thoughts? (Related issues:  Anosognosia, Substance abuse, Criminalization)
3. Are there other reasons family members contact you?
4. What have you found helps families most?
5. What help and tips can you offer  families who have family members living on the street?
6. Any success stories?
7. What resources do you most often refer people to?How did you get into this work (a bit of your story),?

*The Treatment Advocacy Center is dedicated to eliminating legal and other barriers to the timely and effective treatment of severe mental illness. The organization promotes laws, policies and practices for the delivery of psychiatric care and supports the development of innovative treatments for and research into the causes of severe and persistent psychiatric illnesses, such as schizophrenia and bipolar disorder.

Links:

[email protected]

https://www.treatmentadvocacycenter.org/

“Broken” Blog:

www.facebook.com/ourbrokensystem

TAC Gala:

https://tac25thanniversarygala.org/

Want us to cover a topic? comment to share?

Facebook page @Schizophrenia3Moms

@SZ3MomsTrenches -  twitter

Randye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”, “Happier Made Simple”)

Miriam Feldman – Artist, Mom, Author “He Came in With It”

Mindy Greiling – member of the Minnesota House of Representatives for twenty years. Activist, Legislator, Author (“Fix What You Can“)

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

Guest: Dani Page
§  SOAR (SSI/SSDI, Outreach, Access and Recovery) certified Retired attorney. Instructor on implicit bias in the space of disability
§  Juris Doctorate
§  Certified Family to Family facilitator for National Alliance on Mental Illness
§  SOAR (SSI/SSDI, Outreach, Access and Recovery) certified—for individuals with behavioral health challenges who are homeless or at risk
§  Presenter and facilitator on implicit bias in the space of disability


We learn:
SSI/SSDI/SSA - review (for full info, see episode 50)
Adult Function Reports - part of application - tips and instruction
Resources and info on Trusts for our loved one with disability:
ABLE
Spendthrift trusts or provisions
Pooled Trusts
Resource for employment help: Ability One


Links:
https://specialneedsanswers.com/poole...

https://abilityone.gov/

https://soarworks.samhsa.gov/

https://www.ablenrc.org/


Want us to cover a topic? comment to share?
Facebook page @Schizophrenia3Moms
@SZ3MomsTrenches -  twitter
Randye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”, “Happier Made Simple”)
Miriam Feldman – Artist, Mom, Author “He Came in With It”
Mindy Greiling – member of the Minnesota House of Representatives for twenty years. Activist, Legislator, Author (“Fix What You Can“)

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

Guest: Jeffrey Lieberman,M.D., author of Malady of the Mind

Dr. Jeffrey Lieberman draws on his four-decade career to illuminate the past, present, and future of schizophrenia.

Of the many myths and misconceptions that obscure our understanding of schizophrenia, the most pernicious is that there is no effective treatment or cure. Though that may have been true in the past, the current reality couldn’t be more different: today’s treatments have the potential to be game-changing—and often lifesaving.

For the first time in history, we can effectively treat schizophrenia, limiting its disabling effects—and we’re on the verge of being able to prevent the disease’s onset entirely.

----

We ask about:

What can families do to get more psychiatrists on board? 

Hope for today’s young people who are in First Episode programs after their first psychosis. 

 Is true recovery possible or what do you mean by recovery?

What can families do to promote housing that heals/works for people like our sons? Why is there so little of it?

The leap that cannabis can cause not only psychosis but also schizophrenia. 

Assisted Outpatient Treatment and the right to treatment despite

Anosognosia.

…and much more!

LINKS:

https://jeffreyliebermanmd.com/

https://www.simonandschuster.com/books/Malady-of-the-Mind/Jeffrey-A-Lieberman/9781982136420

https://www.amazon.com/Malady-Mind-Schizophrenia-Path-Prevention/dp/1982136421

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://benbehindhisvoices.com/

Miriam (Mimi) and her book: https://www.miriam-feldman.com/ 

Hosts:

 Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (Ben Behind his Voices, Happier Made Simple)

Miriam (Mimi) Feldman -  is an artist, writer, and the mother of an adult son with schizophrenia. Her book, He Came in With It chronicles her family's story and was released to rave reviews on July 21st, 2020.

Mindy Greiling - Mindy Greiling was a member of the Minnesota House of Representatives for twenty years. She helped found the nation's first state mental health caucus, which successfully lobbied for a significant increase in Minnesota's mental health funding Her acclaimed memoir is Fix What You Can.

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

Thanks to the Schizophrenia & Psychosis Action Alliance for choosing us to be the first to share this important event.

On May 24th, 2023, The Angry Moms joined the Schizophrenia & Psychosis Action Alliance and other advocacy groups for A Day of Action at the U.S. Capitol, in recognition of World Schizophrenia Awareness Day.

In a briefing dedicated to discussing barriers to clozapine treatment, two courageous survivors of psychosis disorders spoke about their experience with the FDA’s restrictions against clozapine treatment. Hear what they had to say in this moving and important episode.

Links:

Angry moms testimonials:

https://drive.google.com/drive/folders/1px4dkTi_ncNM7hxCj6ODJDDo1CZW1nlm

 Schizophrenia & Psychosis Action Alliance: https://sczaction.org

https://www.facebook.com/sczaction/?locale=ms_MY

https://www.theangrymoms.com/post/in-their-own-words-analisa-and-michael

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://benbehindhisvoices.com/

Miriam (Mimi) and her book: https://www.miriam-feldman.com/

Hosts:

 Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (Ben Behind his Voices, Happier Made Simple)

Miriam Feldman -  is an artist, writer, and the mother of an adult son with schizophrenia. Her book, He Came in With It chronicles her family's story and was released to rave reviews on July 21st, 2020.

Mindy Greiling - Mindy Greiling was a member of the Minnesota House of Representatives for twenty years. She helped found the nation's first state mental health caucus, which successfully lobbied for a significant increase in Minnesota's mental health funding Her acclaimed memoir is Fix What You Can.

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

First, updates:

Dr. Jeff Lieberman book event, Malady of the Mind  ( episode 68 June 13)(and can we talk about teeth?)

Mindy: NAMI convention- update, , Joel Corcoran, CEO of Clubhouse International. 

Mimi: Angry Moms, and introduce GUEST Sue Maida!

Links:

https://www.webmd.com/schizophrenia/features/schizophrenia-fda-hindering-clozapine?fbclid=IwAR2__DmXdnmuHqOqgc-myG4szJOfMfMyZt62uxeRHXyHKkmygQakkggw2X8

Team Daniel (facebook):

https://www.facebook.com/groups/www.teamdanielrunningforrecover.org?locale=ms_MY

Angry moms testimonials:

https://drive.google.com/drive/folders/1px4dkTi_ncNM7hxCj6ODJDDo1CZW1nlm

 Schizophrenia & Psychosis Action Alliance: https://sczaction.org

https://www.facebook.com/sczaction/?locale=ms_MY

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://benbehindhisvoices.com/

Miriam and her book: https://www.miriam-feldman.com/

Hosts:

 Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (Ben Behind his Voices, Happier Made Simple)

Miriam Feldman -  is an artist, writer, and the mother of an adult son with schizophrenia. Her book, He Came in With It chronicles her family's story and was released to rave reviews on July 21st, 2020.

Mindy Greiling - Mindy Greiling was a member of the Minnesota House of Representatives for twenty years. She helped found the nation's first state mental health caucus, which successfully lobbied for a significant increase in Minnesota's mental health funding Her acclaimed memoir is Fix What You Can.

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

We interview the author of Safe, Wanted and Loved - (Patrick Dylan)

Winner of seven awards, including a National Indie Excellence Award and Best Indie Book Award.

"Anyone out there struggling to navigate mental illness should read this thoughtful book."

—Former U.S. Rep. Patrick J. Kennedy, founder of the Kennedy Forum

 "Pat, we need to kill the dog." A chill ran down Patrick Dylan's spine as his wife spoke—psychosis had found their family again.

When a sudden mental illness struck his wife, Patrick Dylan found himself living with an eerie stranger. Scared and unprepared, he began a desperate battle to protect her from a mysterious disease, shelter their children from her bizarre behavior, and recover the woman he loved.

Patrick Dylan joins the voices calling for an end to the stigma surrounding mental illness. He and his wife, Mia, live in Florida and have two college-age children. They hope that sharing their family's story will spread awareness of the realities of mental illness and offer support to others who are either experiencing a mental health crisis or providing care to an affected loved one.

We Ask:

1. Before you share your story, can you tell us what you most hope people learn from hearing it?
2. So - tell us about Mia and your family, “before” during, and “after”? 
3. How has her illness affected your kids?
4. We know SMI from a parental POV - what would you most like our listeners to know about what’s the same, and different, when it’s your spouse that becomes ill?
5. You used pen names for yourself and for Mia, yet were amazed at how many were inspired to share their own stories. - What is your dream in fighting stigma? -
6. What do you most worry about?
7. What are Mia’s strengths?
8. What do you wish you had known earlier?
9. What else do you want us to know?

Links:

https://www.safewantedloved.com/

Audiobook: https://www.audible.com/pd/Safe-Wanted-and-Loved-Audiobook/B0B7VLPJFY?action_code=ASSGB149080119000H&share_location=pdp

Amazon:

https://a.co/d/9uIxFta

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://benbehindhisvoices.com/

Miriam and her book: https://www.miriam-feldman.com/

Hosts:

 Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (Ben Behind his Voices, Happier Made Simple)

Miriam Feldman -  is an artist, writer, and the mother of an adult son with schizophrenia. Her book, He Came in With It chronicles her family's story and was released to rave reviews on July 21st, 2020.

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

Social worker by heart, therapist by trade, Kat Thompson earned her MSW in 2022. She’s a mental health professional specializing in helping those in crisis. She also is a founder of Cascadia Cares ,”:building a world where it’s normal to help others.” 

1. Tell us what a case manager's scope of work and responsibilities are.

2. What made you want to pursue this line of work?

3. What do you believe are the most challenging aspects of dealing with people who have SMI?

4. What changes would you most like to see in the system?

5. What is the hardest thing about your work?

6. How do you find the job as crisis line counselor as compared to case manager?

7. Tell us what else you are doing (ie. your non-profit and political work) and how it fits in to the big  picture.

8. If there was one message you'd like to get across about mental health/illness and the system, what would it be?

9. what kind of training you received before each of your positions?

Links:

https://cascadiacares.org/

Hope for Troubled Minds: https://delightindisorder.org/hftm-call-for-submissions/

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://benbehindhisvoices.com/

Miriam and her book: https://www.miriam-feldman.com/

Hosts:

 Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (Ben Behind his Voices, Happier Made Simple)

Miriam Feldman -  is an artist, writer, and the mother of an adult son with schizophrenia. Her book, He Came in With It chronicles her family's story and was released to rave reviews on July 21st, 2020.

Mindy Greiling - Mindy Greiling was a member of the Minnesota House of Representatives for twenty years. She helped found the nation's first state mental health caucus, which successfully lobbied for a significant increase in Minnesota's mental health funding Her acclaimed memoir is Fix What You Can.

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman