Mom & Doc Talk: Healing PANS/PANDAS

Season 1 Summer Rewind: Episode #6 Chasing a Diagnosis

Listen Later

As the Mom & Doc Talk Podcast takes a break over the summer, we are excited to re-air some of our most popular episodes! In episode #6 "Chasing a Diagnosis", Jody shares all of the steps she took to get a diagnosis of PANS. It took a lot of doctors, a lot of medications, and some seriously challenging things for Jody.

 

Some of the things we cover are:

  • Expecting to see answers on an MRI and bloodwork
  • Asking for help from a provider that doesn’t “believe” in PANDAS or denies that it is real, even when there are positive tests for an infection with no typical signs of an infection
  • Providers still denying it, even when the antibiotics they prescribed get rid of all symptoms
  • Finding out a cough was a tic
  • Never-ending referrals to more specialists who don’t have answers but won’t talk about PANDAS
  • Never-ending antibiotics that have diminishing returns
  • Jody felt like maybe she was crazy and nothing was wrong, especially as doctors kept offering her excuses for why these sudden changes in her daughter were normal
  • Tonsils and adenoids and whether to remove them
  • Being told she didn’t have PANDAS even when strep was found and titers were elevated
  • Deciding to do the Cunningham panel (more details in the next episode!)
  • The frustration of seeing all the different providers and treating everything as if they were separate issues even though they came on all together
  • The challenge of taking a kid who could “hold it together” in the doctor’s office, making it look like Jody was crazy or making things up, and getting accused of Munchausen-by-proxy

    •  --------------------------------

    As always, we invite you to be our partners in advocacy and education by following, sharing, rating, and reviewing. Together, we can teach the world about PANS/PANDAS and homeopathy!

     

    If you want a place for support, join our FB group: Homeopathy For Pans & Pandas: https://www.facebook.com/groups/PANDAShomeopathy

     

    Facebook not your thing? Find us on Instagram @resiliencenaturopathic @drjenniferbahr

     

    You can also email us at [email protected]

    ...more
    View all episodesView all episodes
    Download on the App Store
    Mom & Doc Talk: Healing PANS/PANDASBy Resilience Naturopathic
    • 4.9
    • 4.9
    • 4.9
    • 4.9
    • 4.9

    4.9

    11 ratings

    More shows like Mom & Doc Talk: Healing PANS/PANDAS

    View all
    The Daily by The New York Times

    The Daily

    111,034 Listeners

    Up First from NPR by NPR

    Up First from NPR

    55,949 Listeners

    Crime Junkie by audiochuck

    Crime Junkie

    367,313 Listeners

    The Dr. Hyman Show by Dr. Mark Hyman

    The Dr. Hyman Show

    9,292 Listeners

    The Weekly Show with Jon Stewart by Comedy Central

    The Weekly Show with Jon Stewart

    10,626 Listeners

    New Heights with Jason & Travis Kelce by Wondery

    New Heights with Jason & Travis Kelce

    20,867 Listeners

    The Ultimate Human with Gary Brecka by Gary Brecka

    The Ultimate Human with Gary Brecka

    3,094 Listeners

    Khloé in Wonder Land by Khloé Kardashian

    Khloé in Wonder Land

    2,740 Listeners

    Demystifying PANS/PANDAS Podcast by Nancy O'Hara MD

    Demystifying PANS/PANDAS Podcast

    32 Listeners