A new study published today reveals a worrying trend: there are now 166,000 people in the UK living with Parkinson’s but a further 21,000 are estimated to be undiagnosed.. and unsupported.

The Parkinson's UK study, the largest of it's kind, also reveals more than a third (36%) were of working age when diagnosed.

Separately the number of people with a more complex form of Parkinsonism (e.g. Lewy Body Dementia, MSA, PSP) has increased to 28,000.

The study also finds stark differences in rates based on ethnicity.

Even more concerning, in some parts of the country people are waiting up to five years to see a neurologist. The charity has called it a “Parkinson’s diagnosis crisis.”

With someone in the UK diagnosed every 20 minutes, we ask: why are the numbers rising, what’s driving the crisis, and what needs to change?

Join us as we dig into the data, with 3 experts from Parkinson’s UK and explore what this means for the Parkinson’s community — now and for the future.

For more information:

Parkinson's UK News Article:

https://www.parkinsons.org.uk/news/thousands-are-living-parkinsons-undiagnosed-and-unsupported-our-new-research-finds

Read the Parkinson's UK Research Blog:

https://www.parkinsons.org.uk/research/research-blog/our-research/parkinsons-uk-what-do-we-know

Parkinson's UK Statistics:

https://www.parkinsons.org.uk/about-us/parkinsons-statistics

Research Paper:

https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mdc3.70368

www.parkinsons.org.uk

UK Helpline 0808 800 0303

Join the Research Support Network:

https://www.parkinsons.org.uk/research/research-blog/our-research/parkinsons-uk-research-support-network

https://www.parkinsons.org.uk/research/race-equality-research

Join the Black, Asian, Arab and Mixed Heritage Support Group:

https://localsupport.parkinsons.org.uk/activity/black-asian-arab-and-mixed-heritage-support-group-meeting

Listen to Will I Die from Parkinson's:

https://www.2parkiesinapod.com/podcast/episode/1e8a6b26/will-i-die-from-parkinsons

https://ourfuturehealth.org.uk/