Join me today as I sit down with guest, Jeremiah Robison of CIONIC! If you have struggles with walking, balance, foot drop, spasticity, etc. you'll want to listen to this! Jeremiah shares with us what sets the Neural Sleeve apart from other types of electrical current stimulation devices, how exactly it works & adapts to your progress as you go along, how it can be worn, and so much MORE! It is truly fascinating how this device works, and even more wonderful are the results it is already helping their clients achieve!

Jeremiah Robison is the Founder and CEO of CIONIC, an innovative company that builds lightweight and durable bionic clothing driven by powerful algorithms that adapt in real time to each individual's mobility needs. He started the company in 2018 after his daughter was diagnosed with cerebral palsy and he was frustrated at the lack of effective technology available to help improve her mobility. Four years later, CIONIC introduced the breakthrough, FDA-cleared Cionic Neural Sleeve, the first product to combine sensing, analysis and augmentation into a wearable garment, designed to help individuals living with MS, stroke, CP and other upper motor neuron diagnoses live more freely and independently. Prior to CIONIC, Jeremiah spent twenty years at the intersection of data, algorithms, and the human body, driving innovation in sensing and machine learning at Apple, Openwave Systems, Slide, and Jawbone. Jeremiah has a BS and MS in Computer Science from Stanford University.

Website:   https://www.cionic.com 

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: [email protected] 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

Do you struggle with sensory changes such as numbness, tingling, burning, or pins & needles?
Did you know that sensory changes and motor changes are DIFFERENT parts of your nerve being affected, and actually require DIFFERENT forms of therapy?! Join me today as I review the what makes sensory changes, and motor changes different, how you can treat them, and more.

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: [email protected] 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

Dr. Marco Vespignanii is a naturopath in Seattle, Washington where he focuses on treatment of neurological conditions. Dr. Marco is well known for his research based- holistic approach to medicine. 

On today’s episode, Dr. Marco gives us tons of guidance and recommendations to reduce inflammation, improve our immune function, and promote healing & repair of the systems in our body through his four pillar approach.

His main focus is managing MS through diet & supplements and you’ll learn the ins & outs of each of his recommendations so you’ll fully understand what is happening in our body & why his advice will make a difference. Make sure you have a piece of paper and a pen to take notes!

Dr. Vespignani (“Dr. Marco”) is well known for his innovative, compassionate, research based

approach to medicine. Dr. Vespignani believes in teaching patients to understand their bodies and

the symptoms they are experiencing with a goal of working as a team to resolve the matter at

hand. Dr. Vespignani is passionate about learning new things and teaching others, as he finds an

educated patient to be a more successful patient.

Education and Experience

Initially trained as a massage therapist, Dr. Vespignani first pursued a bachelor’s degree in

evolutionary biology from the University of Hawaii. While studying biology and ecology, Dr.

Vespignani became interested in the human role in the ecosystem and ultimately, natural medicine. Soon after, Dr. Vespignani graduated from Bastyr University with a degree in Naturopathic Medicine in 2004. After graduation, Dr. Vespignani was selected for a residency at the Bastyr Center for Natural Health in Seattle. Following his residency, Dr. Vespignani helped form and operate an integrative multidisplinary clinic in Davis, California in 2006 where he gained further experience in neurology and family medicine. In an effort to give back to his profession, Dr. Vespignani was selected as a clinic director for the STAIR residency in 2009, one of only two such sites nationwide. In 2010, Dr. Vespignani returned to Seattle to join Seattle Integrative Medicine and focus on treatment of neurological conditions. Dr. Vespignani is currently adjunct faculty at Bastyr University teaching clinical neurology.

Independent radio - KEXP in Seattle https://kexp.org/ 

Independent newsletter Tangle https://www.readtangle.com/

Seattle Integrative Medicine - www.seattleintegrativemedicine.com

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: [email protected] 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

Kathy Reagan Young is the founder of the FUMSnow.com site – whose mission is to provide information, inspiration, and motivation to help people with Multiple Sclerosis live their best lives. Diagnosed in 2008, Kathy found nothing uplifting about MS on the internet – only depressing, medically-dense sites. So – she built the site herself to show people that there was indeed life after diagnosis – and it could be a really good one!  

Over the course of 10+ years, she added a podcast, merchandise, and an ebook in an effort to monetize the site when she had to leave her full time employment due to her MS.  Once she added patient advocacy gigs to her portfolio, her online income surpassed her previous full time employment income. Upon that achievement, she knew she had to share her experience and resources – which is why she started the Patients Getting Paid membership community – to help people with chronic illness learn how to find and create flexible, remote work opportunities to better accommodate their health while generating an income. She added a podcast for PGP as well - all of which can be found at www.PatientsGettingPaid.com

Find Kathy's Podcasts on Social Media:

** Patients Getting Paid: Apple Podcast: https://podcasts.apple.com/us/podcast/patients-getting-paid/id1581141026

Google Podcast: https://open.spotify.com/show/325dx2GYuaipvbi8y3YTGz?si=XffG1ADOTcGYwtm5aK9C5w&utm_source=copy-link

Instagram: https://www.instagram.com/patientsgettingpaid/ 

 ** FUMS:  Apple Podcast: https://podcasts.apple.com/us/podcast/fums-giving-multiple-sclerosis-the-finger/id982388479

Google Podcast: https://open.spotify.com/show/1CRt6lX5imnKsnB02TgwXW?si=kNAfCHyJQ7ilIstfEuszyw&utm_source=copy-link

Instagram: https://www.instagram.com/fums.now/ 

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: [email protected] 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

 Today, I am joined by The MSing Link member, Amy! Her story is one that I feel many listeners can relate to filled with ups, downs, and many different approaches to managing her MS. Amy's resilience, and determination to continue to make progress has truly allowed her to find success even through challenging seasons of life. I know that you will find Amy's story inspiring, and it will uplift you to continue to keep going with your own journey. 

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: [email protected] 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

 Join me today as I sit down with the founder and CEO of byACRE! We chat about the details of the design process, and all the considerations taken into account when creating their ergonomic rollators, and so much MORE! 

Anders Berggreen is the founder and CEO of byACRE; A Danish company who designs and produces stylish, functional rollators. He founded the company in 2017 with a mission to break down the stigma related to reduced mobility and to help those it serves maintain an active lifestyle without compromise.

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: [email protected] 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

On today’s episode, I’m interviewing Dr. Barry Singer - He is an MS Neurologist as well as director and founder of the MS Center for Innovations in Care at Missouri Baptist Medical Center.

He’s very well known as being a top neurologist that stays up to date on research & newest medications and therapies. He has been an investigator in greater than 35 multiple sclerosis trials focused on new therapeutic options including remyelination. 

On today’s episode, we talk about advocacy and what to do if you feel like your neurologist (or anyone on your healthcare team isn’t listening to you or acting in your best interest) as well as access to care and sexual dysfunction, symptom management for fatigue, pain, and bladder. This episode is chock full of his best recommendations for therapies and medications. You’ll want to take notes or come  back to this episode for future reference.

Find Dr. Singer:

Website - www.mslivingwell.org

Twitter - @drbarrysinger

MS Living Well Podcast - *Apple Podcast https://apple.co/3N4DDWU *Spotify https://spoti.fi/3tpkxTx

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: [email protected] 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

Before sitting down to record this episode, I asked The MSing Link members as well as those in my public MS support Facebook page what topic they would like to hear more about. And there was a resounding response to know more about spasticity! So, join me today as I share with you what it is exactly, different techniques you can do at home to reduce it, and different ways your neurologist may approach treatment.

Learn more about The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink 

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: [email protected] 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

I’m joined by Kurtis Kracke, the co-founder and CEO of Thermapparel. They’re a cooling company that’s been helping keep people with MS cool for 5 years. Today, we chat about what sets Thermapparel apart from other cooling brands, the technology behind the cooling packs, sizing, all the considerations taken when creating this vest, and more! If you have heat intolerance, or even just feel like summer weather is too hot for you, you'll want to hear what Kurtis has to say! 

Find Thermapparel:

Website - https://www.thermapparel.com

Facebook - https://www.facebook.com/ThermApparel/

Twitter - @Thermapparel

Instagram - https://www.instagram.com/thermapparel/

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: [email protected] 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

 A lot of things come alongside a diagnosis of MS, but typically the emotion of grief and the trait of resilience are not the things in the forefront of your mind. But, they are two very important topics. Today, I chat with Dr. Rosalind Kalb about how to acknowledge and maintain resilience in the face of MS. And also about how it is important to allow yourself the feeling of grief in certain circumstances. She also gives some great tips on how to keep moving forward through difficult times!

Rosalind Kalb is a clinical psychologist who has worked in the MS field for 40 years – first at one of the earliest MS comprehensive care centers and then for 16 years at the National MS Society. Dr. Kalb is now a Senior Programs Consultant for Can Do Multiple Sclerosis with a special focus on cognitive and emotional wellness for people with MS and the unique needs of MS support partners. She has published books and articles about MS, with the two most recent papers being Recommendations for Cognitive Screening and Management in MS Care and Exercise & Lifestyle Physical Activity Recommendations for People with MS Throughout the Disease Course.

Resources:

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: [email protected] 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink