
Sign up to save your podcasts
Or


Three million Canadians live with a rare disease, but many still struggle to get treatment. Jeremy Harany was diagnosed as a child with hypophosphatasia, which weakens bones and can cause early tooth loss, but then spent decades without answers. A chance connection later in life led him to life-changing treatment. Now he’s pushing for faster, more consistent care for others with rare diseases.
By CBC4.8
6464 ratings
Three million Canadians live with a rare disease, but many still struggle to get treatment. Jeremy Harany was diagnosed as a child with hypophosphatasia, which weakens bones and can cause early tooth loss, but then spent decades without answers. A chance connection later in life led him to life-changing treatment. Now he’s pushing for faster, more consistent care for others with rare diseases.

430 Listeners

385 Listeners

162 Listeners

172 Listeners

380 Listeners

201 Listeners

66 Listeners

794 Listeners

473 Listeners

278 Listeners

195 Listeners

20 Listeners

419 Listeners

29 Listeners

87 Listeners

69 Listeners

156 Listeners

0 Listeners

113 Listeners

275 Listeners

2 Listeners

5 Listeners