The Recovery Room with Jackie Baxter

Episode 72 of the Long Covid Podcast is a chat with Professor Amitava Banerjee about the STIMULATE-ICP study which he is co-lead of. We chat a load about the different "arms" of the study itself, how it has been developed and the role of patient involvement.

We also chat about how you might be able to get involved in different parts of the study.

Link to website: https://stimulate-icp.org/

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For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

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Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 71 of the Long Covid Podcast is a chat with Nic Wray from Tinnitus UK (formerly the British Tinnitus Association) about all things Tinnitus. We chat about possible triggers, the ups and downs, what can be done about it and research that is ongoing into the condition.


This episode ties in with Tinnitus Week which is this week - February 6-10 2023. More information in the episode, or the links below.

Tinnitus UK

Your Covid Recovery tinnitus information

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For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 70 of the Long Covid Podcast is a chat with the fabulous Lorrie Rivers. Lorrie has herself recovered from Me/CFS as well as Long Covid & Fibromyalgia and is helping others to do the same.

Lorrie has been helping people manage their illnesses for years and has seen a lot of success stories, but feels she has made a break-through recently which she is really excited to share.

Useful links below:

What’s the Root Cause of My Illness? 

Lorrie Rivers - Living from Inspiration

Join Facebook group

Lorrie is also offering a few free workshops with sex and relationship therapists in February about Sex, Pleasure and Intimacy with Long Covid and ME/CFS and how to navigate it (for people who are single or in a couple).  At least one of the workshops will be live and participants can submit their questions beforehand or during the session.  

The first is February 14 at 1pm Eastern US (New York time) on her IG channel (lorrierivers_).  More details via the website link above.

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For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 69 of the Long Covid Podcast is a chat with Fiona Lowenstein, Journalist, writer, Long Covid Advocate and now author/editor of "The Long Covid Survival Guide".

We chat through Fiona's early experiences of Covid & Long Covid which led them to create the Body Politic support group which is such a lifeline to so many. We also discuss the book and the idea behind it, as well as so much more.

Purchase "The Long Covid Survival Guide"

Long COVID Survival Guide book exchange

The book's page on Fiona's website (has an updated list of upcoming and past book talks people can attend or watch recorded videos of)

Jennifer Brea "Unrest"

Headshot - credit JJ Geiger

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For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 68 of the Long Covid Podcast is a chat with Dr David Saperstein from the Center of Complex Neurology, EDS & PoTS based in Phoenix, Arizona. Dr Saperstein has been working with complex conditions for over 20 years and is now also helping those with Long Covid and post-vaccine symptoms.

This is a fascinating discussion about approaches to diagnoses & treatment, how certain conditions can affect one another as well as what can be done.

I hope you enjoy as much as I did.

Center for Complex Neurology Long Covid page

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For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 67 of the Long Covid Podcast is a chat with two wonderful people from the Decode ME genetics study – Professor Chris Ponting who is the lead on the study, and Andy Devereux-Cooke, co-founder of the Science for ME forum and also an investigator (PPI) on the DecodeME Management Group.

We discuss the study itself as well as some of the background behind it.

If you are interested in signing up (or would just like some more information about the study) please go to DecodeME.org.uk

Science for ME Forum

Action for ME

NICE guideline for ME/CFS

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 66 of the Long Covid Podcast is a chat with the fabulous Lauren Stiles, President & co-founder of Dysautonomia Internation. Lauren describes herself as a "very high functioning sick person" and has so much amazing knowledge to impart about all forms of Dysautonomia itself, as well as the diagnostic journeys that many of us find ourselves on.

This was a hugely enjoyable conversation - I hope you enjoy it as much as I did!

Dysautonomia International Website

Dysautonomiainternational.org/doctors

longcovidresearchfund.org

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 65 of the Long Covid Podcast is a wonderful collection of creativity inspired by Long Covid, from children to adults and all across the world. It's an inspiring listen as these talented people tell their own stories and perform their own work.

If you're inspired - please get in touch - I always love to hear from you and do join the FB group - link below.

Long Covid Choir - "When we sing together" by Vicky Jacobs (Sound engineer Nick Westoby)

Julia's plants & artwork - see the Long Covid Podcast Creativity Page

Colin Pidgeon - "Stormy" (Follow Rosie on FB & Insta)

Zara - "Thank you" music video

Janne Cecilie - "Long Covid" & "I'm so tired"

Tabi - "You are not alone" collaboration reel with Rosie Pidgeon (hear Rosie speak in episode 61)

Carol Barwick - "Choose Joy" "Long Covid is a frenemy" & "A Chronic Christmas Plea"

Long Covid Kids Choir - "Winter Fantasy" by Jill Gallina

Long Covid Kids website

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 64 of the Long Covid Podcast is some personal reflections on the last 6 months and this year. Things I've learned, and what has helped me.

Of course, I am not a medical professional, and this is not advice.

I'm not recovered yet, but have seen some improvement. Always very happy to hear from you - what's helped you and how are you doing?

My Vedicinals blog

Food Intolerance test

Episode 40 - Dr Boon Lim

Episode 49 - Adrian & Leanne (wild swimming)


Safe & Sound Protocol (SSP)

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Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 63 of the Long Covid Podcast is a chat with Dr Michael Bagnell, Functional Neurologist & Chiropractic Physician based in Miami, Florida. We talk about all things Long Covid and the brain - what's causing things to go wrong and how to fix them!

Useful links below.

www.bagnellbraincenter.com
https://www.bagnellbraincenter.com/online-forms.html
"Persistent Brainstem Dysfunction in Long Covid - a Hypothesis" 

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**