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When the map doesn’t match the terrain, sometimes you just make your own path. Natalia Bartlomowicz was born with a rare congenital condition so unique it doesn’t even have a name—just a stack of medical files and a body doctors still can’t quite predict. In this episode, she opens up about navigating childhood surgeries, a 16-hour operation in Boston, and the emotional toll of being called a “medical mystery.” From discovering she has two uteri to building a safe space for youth with chronic illness, Natalia’s story is one of resilience, radical self-advocacy, and finding strength in the unexpected. She talks dating, dignity, and how the healthcare system can better treat patients as people. It’s a heartfelt ride through one woman’s no-name diagnosis—and the superpower she’s made of it.
Links:
together-we-thrive.ca
Follow Sickboy:
Instagram: https://www.instagram.com/sickboypodcast
Tiktok: https://www.tiktok.com/@sickboypodcast
Discord: https://discord.gg/expeUDN
By CBC4.8
469469 ratings
When the map doesn’t match the terrain, sometimes you just make your own path. Natalia Bartlomowicz was born with a rare congenital condition so unique it doesn’t even have a name—just a stack of medical files and a body doctors still can’t quite predict. In this episode, she opens up about navigating childhood surgeries, a 16-hour operation in Boston, and the emotional toll of being called a “medical mystery.” From discovering she has two uteri to building a safe space for youth with chronic illness, Natalia’s story is one of resilience, radical self-advocacy, and finding strength in the unexpected. She talks dating, dignity, and how the healthcare system can better treat patients as people. It’s a heartfelt ride through one woman’s no-name diagnosis—and the superpower she’s made of it.
Links:
together-we-thrive.ca
Follow Sickboy:
Instagram: https://www.instagram.com/sickboypodcast
Tiktok: https://www.tiktok.com/@sickboypodcast
Discord: https://discord.gg/expeUDN

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