The Parkinson's Podcast

What Not to Say to a Person with Parkinson's


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In this episode, Living with Parkinson's Meetup (formerly the YOPD Council) panelists discuss:

  • Common hurtful phrases they hear from people without Parkinson's including, "I know how you feel" and "everybody's got something"
  • The importance of "listening for the love"
  • The fact that many hurtful comments come from the people we love and can often stem from misunderstanding
  • How to use hurtful comments as a teaching moment
  • Communicating to others that Parkinson's doesn't always have to be the topic of conversation
  • Dealing with people who try to ascribe meaning to their Parkinson's, who don't understand the non-motor symptoms they struggle with, and who misinterpret going on disability
  • Being asked to "stop shaking" during medical appointments
  • When and how to share your Parkinson's diagnosis with others
  • How to explain the "inconsistencies" with Parkinson's
  • Their favorite things that people without Parkinson's have said

Visit the accompanying blog post for this episode here: http://davisphinneyfoundation.org/podcast-recording-what-not-to-say-to-a-person-with-parkinsons

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The Parkinson's PodcastBy Davis Phinney Foundation

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