09.20.2022 - By Davis Phinney Foundation
In this episode, Living with Parkinson’s Meetup (formerly the YOPD Council) panelists discuss: Common hurtful phrases they hear from people without Parkinson’s including, “I know how you feel” and “everybody’s got something” The importance of “listening for the love” The fact that many hurtful comments come from the people we love and can often stem from misunderstanding How to use hurtful comments as a teaching moment Communicating to others that Parkinson’s doesn’t always have to be the topic of conversation Dealing with people who try to ascribe meaning to their Parkinson’s, who don’t understand the non-motor symptoms they struggle with, and who misinterpret going on disability Being asked to “stop shaking” during medical appointments When and how to share your Parkinson’s diagnosis with others How to explain the “inconsistencies” with Parkinson’s Their favorite things that people without Parkinson’s have said Visit the accompanying blog post for this episode here: http://davisphinneyfoundation.org/podcast-recording-what-not-to-say-to-a-person-with-parkinsons