Confessions of a Rare Disease Mama

Where I have been the past two months


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I am back from my unexpected break and I am here to catch you all up on what has been happening in our family the past two months. For those of you who are unaware, our son, Roman, just got back home after a 55 day stay  at our children's hospital (49 of which were spent in the PICU). He was intubated two times during his hospitalization (yes, two) for a total of 19 days while battling viruses that turned into a viral pneumonia and then developed a bacterial pneumonia which led to a very scary episode of septic shock. This was a pretty emotional episode for me to record, as this whole situation is still pretty fresh so I do want to put a *content warning* in for those who are triggered by hospitals, ICU, or just have medical trauma in general.

Although this experience was the toughest and scariest that our little family has had to endure, it serves as a good reminder that even during our darkest times, there is always light to be seen if you look close enough. We are overjoyed that Roman is back home now and doing well. It is nothing short of miraculous! Thank you all for bearing with me as we contiunue to settle back in to "normal" life after having everything on pause during Roman's recovery!

Watch our reel of the day we got to bring Roman home!

Resources & Links for this episode:

  • Buy Soaring Together: Amazon, Barnes & Noble, or locally at Bike Trail Books in Loveland and the Cincinnati Zoo Gift Shop
  • Learn more about our brave warriors: saveromanandstella.com
  • Support our family: GoFundMe
  • Follow us!
    • Instagram: @confessionsofararediseasemama
    • TikTok: @rare_mama
    • Facebook: Jillian Arnold & Confessions of a Rare Disease Mama
  • Get your FREE Positive Affirmations for the Medical Parent PDF here!
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Confessions of a Rare Disease MamaBy Jillian Arnold

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