The Rare Life

170: Hospitalizations | Triggers, Shoddy Sleep and Food, + Discharge Hangover w/ Alyssa Nutile and Larisa Bothma


Listen Later

There are few things as intense as an inpatient stay with your child. The pressure is on, the anxiety is at an all-time high, and the hypervigilance is ever present. And honestly? It doesn’t even matter if it’s a planned observation or an emergency situation, it’s still so stressful.

In this episode, I talk through the whole experience of hospital stays with Alyssa Nutile and Larisa Bothma. We discuss experiences and thoughts shared from the community, as we cover topics like the lack of food and sleep, the triggers that are all over the hospital, the difficulties that continue as we come home, and so much more.

Plus, we cover those existential questions that come up during hospital stays... like if this might be the one we don’t all come home from, and how those around us can help out during a hospital stay.

If your child has ever had a hospital stay, this episode is going to be so relatable.
⠀⠀⠀⠀⠀⠀⠀⠀⠀

Links:

Get tickets to a special screening of The Zebra and The Bear just for The Rare Life listeners!

Get our packing list here!

Listen to our episode about when your child is inpatient during events and holidays.

Join The Rare Life newsletter and never miss an update!

Fill out our contact form to join upcoming discussion groups!

Follow Alyssa on Instagram @caffeinated_caregivers!

Follow Larisa on Instagram @sarmabothma!

Follow us on Instagram @the_rare_life!

Donate to the podcast or Contact me about sponsoring an episode.

Follow the Facebook page.

Join the Facebook group Parents of Children with Rare Conditions.

Access the transcript on the website here.

And if you love this podcast, please leave us a rating or review in your favorite podcast app!

...more
View all episodesView all episodes
Download on the App Store

The Rare LifeBy Madeline Cheney

  • 5
  • 5
  • 5
  • 5
  • 5

5

144 ratings


More shows like The Rare Life

View all
A Slob Comes Clean by Dana K. White: A Slob Comes Clean

A Slob Comes Clean

2,455 Listeners

Respectful Parenting: Janet Lansbury Unruffled by JLML Press

Respectful Parenting: Janet Lansbury Unruffled

3,652 Listeners

My Favorite Murder with Karen Kilgariff and Georgia Hardstark by Exactly Right and iHeartPodcasts

My Favorite Murder with Karen Kilgariff and Georgia Hardstark

171,784 Listeners

Full-Tilt Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children by Debbie Reber

Full-Tilt Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children

968 Listeners

Ologies with Alie Ward by Alie Ward

Ologies with Alie Ward

24,095 Listeners

Morbid by Morbid Network | Wondery

Morbid

98,420 Listeners

The Viall Files by Nick Viall

The Viall Files

25,420 Listeners

Once Upon A Gene by Effie Parks

Once Upon A Gene

273 Listeners

HERself by Abby and Amy

HERself

1,734 Listeners

Good Inside with Dr. Becky by Dr. Becky Kennedy

Good Inside with Dr. Becky

4,468 Listeners

Normal Gossip by Normal Gossip

Normal Gossip

5,722 Listeners

Oversharing by Betches Media

Oversharing

1,814 Listeners

Confessions of a Rare Disease Mama by Jillian Arnold

Confessions of a Rare Disease Mama

49 Listeners

The Really Very Crunchy Podcast by That Sounds Fun Network

The Really Very Crunchy Podcast

1,170 Listeners

Not Gonna Lie with Kylie Kelce by Wave Originals

Not Gonna Lie with Kylie Kelce

10,174 Listeners