It’s no secret that parenthood is expensive. But when it comes to parenting a medically complex kid, the dial is turned up to 100. Everything with an “accessible” label is marked up 10x. We have to make renovations to our homes and vehicles with little to no financial assistance. And that’s often on top of career and work changes that have made our finances tighter to begin with.

In this episode, I’m bringing back Alyssa Nutile and Amanda Griffith-Atkins to sort through the thoughts, feelings, and anxieties from this community about the financial aspect of this life. We cover many of the stressors, the guilt and shame associated with feeling like you can’t provide for your child, and some of the resources and routes other parents have used to ease some of the financial stress.

This episode touches on some deeply personal territory for many of us, but I think it’ll leave us all feeling less shame and loneliness. Let’s dive in!

Links:

Visit the ABLEnow website to learn how to open an account for your child!

Visit SupportNow to start a registry and share with your community.

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Fill out our contact form to join upcoming discussion groups!

Follow Alyssa on Instagram @caffeinated_caregivers!

Follow Amanda on Instagram @amanda.griffith.atkins!

Follow us on Instagram @the_rare_life!

Listen to previous episodes with Alyssa:

Ep 170 on Hospitalizations

Ep 140 on Alyssa’s Story

Ep 125 on Traveling with Disabled Children

& on our recent season opener and finale episodes!

Listen to previous episodes with Amanda:

Ep 159 on Sharing the Mental Load

Ep 156 on Getting a Divorce

Ep 153 on Hurtful Things Loved Ones Say

Ep 147 on Sex and Disability Parenting

Ep 142 on If My Disabled Child Outlives Me

Ep 135 on Career and Family Roles

Ep 132 on Self-Care

Ep 131 on Chronic Stress

Ep 130 on Anticipatory Grief

Ep 99 on Family Planning

Ep 85 on Parental Identity

Ep 81 on Health Anxiety

& our holiday season eps: Being Hospitalized During Holidays - Isolating at Home During Holidays & Why Holidays Can Suck.

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Join the Facebook group Parents of Children with Rare Conditions.

Access the transcript on the website here.

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