The exhaustion that comes with disability parenting isn’t just about sleep deprivation.

It’s everything else too: the mental exhaustion of managing a child’s entire medical life. The weight of being the only one who knows all the details. The grief. The fear. The constant pressure of doing everything right with so little support. And that’s just scratching the surface.

In this episode of The Rare Life, I’m joined by our producer, Alyssa Nutile, to share responses from the community about all the things contributing to our collective exhaustion and why, some days, it does feel like too much for one person to carry.

If you’ve ever wondered how you’ll keep going when you’re just so drained, you are not alone. This episode is for you.

Also, huge thank you to our sponsorFunctional Formularies! They make incredible, nutritious food for our tube-fed kids that’s easy to access and use. Honestly, if our kids are eating Functional Formularies formula, they’re probably eating better than us!

Links:

Visit the Functional Formularies website and get easy, nutritious, tube-friendly meals for your child!

Fill out our contact form to join upcoming discussion groups!

Follow Alyssa at@caffeinated_caregivers!

Follow us on Instagram@the_rare_life!

Donate to the podcast orContact me about sponsoring an episode.

Followthe Facebook page.

Join the Facebook groupParents of Children with Rare Conditions.

Access the transcript on the websitehere.

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