Before being diagnosed with Ehlers-Danlos syndrome at 24 years old, Lara Bloom endured 12 years of undiagnosed pain and mysterious symptoms. According to Lara, who is now the president and CEO of The Ehlers-Danlos Society, this experience isn't uncommon. On today's episode, Lara and I talk about why she's dedicated her career to EDS awareness, why it's important to her that The Ehlers-Danlos Society is in it for the long haul, and how her life changed when she stopped waiting for a cure for EDS.

Learn more about Lara and check out the show notes here.

Follow Made Visible on Instagram.

We want to learn more about you! Tell us about you and what got you listening to Made Visible here.