Confessions of a Rare Disease Mama

A Rare Mama’s Reflections on the Holiday Season with Yours Truly


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In this solo stream of consciousness episode, I reflect on the unique challenges and joys that the holiday season brings for families navigating rare diseases and medical complexities. I share practical tips for managing expectations, creating meaningful traditions, and finding joy in the small moments. I'm here to offer encouragement for parents feeling the weight of the season, reminding them that connection and presence matter far more than perfection. Whether you’re scaling back traditions or adapting them entirely, this episode is a gentle reminder that the holidays can still hold magic, even when they look different.

Join the Conversation:
Have thoughts about today’s episode? Share your holiday tips, reflections, or just drop a note to connect! Send me a message or tag me on social media with your thoughts. Let’s navigate this season together, one moment at a time.

Don’t Forget:
If you enjoyed this episode, please take a moment to subscribe, leave a review, and share it with another parent who might need a little holiday encouragement. Your support means the world and helps us reach more families who need it most.

Listen to the TOP 3 episodes of 2024:
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2. Mini Ep: My EXCITING, BIG Announcement!
3. Talking About All the Things with The Rare Life's Madeline Cheney
 
Looking forward to seeing you all back here in 2025!

Resources & Links for this episode:

  • Buy Soaring Together: Amazon, Barnes & Noble, or locally at Bike Trail Books in Loveland and the Cincinnati Zoo Gift Shop
  • Learn more about our brave warriors: saveromanandstella.com
  • Support our family: GoFundMe
  • Follow us!
    • Instagram: @confessionsofararediseasemama
    • TikTok: @rare_mama
    • Facebook: Jillian Arnold & Confessions of a Rare Disease Mama
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Confessions of a Rare Disease MamaBy Jillian Arnold

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