Arthritis Life

Art, Advocacy, and Adaptation: Carrie’s Journey with Difficult to Treat Axial Spondyloarthritis


Listen Later

She discusses how she’s learned to adapt to life’s changes, uncover tools to improve her quality of life, and embrace creativity as a way to thrive. For instance, she shares how her power wheelchair allows her to explore her surroundings while conserving energy, and how her Spoonie Coloring Book brings joy and meaning to her daily life through art.

Carrie and Cheryl also dive into topics like self-acceptance, disability representation in media, and the role storytelling plays in processing challenges. With humor and vulnerability, they reflect on what it means to live a fulfilling life despite chronic illness, offering encouragement and inspiration for anyone newly diagnosed.

This episode is a heartfelt reminder that, while the journey may not go as planned, it can still be meaningful and empowering.

Episode at a glance:
  • Carrie's Diagnosis and Treatment Journey
  • The Power of Acceptance: Balancing grief for what’s lost with hope for what’s possible and finding empowerment in small, daily actions that improve quality of life.
  • Life on Wheels: Carrie shares how her power wheelchair helps her conserve energy and enables her to explore her environment in ways she wouldn’t if she had to walk. 
  • The Importance of Art and Creativity: Living with rheumatic disease and adapting to life's changes and embracing creativity, such as publishing a coloring book for spoonies, as a means to thrive.
  • Books, Media, and Disability Representation: Discussion of favorite authors, including Jenny Lawson and Lisa See, and their openness about health challenges; highlighting the importance of disability representation in books, movies, and other media.
  • Encouragement for Thriving with Arthritis: "Keep on going" mindset and recognizing the value of being present and finding meaning in the life you have.

Medical disclaimer: 

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

...more
View all episodesView all episodes
Download on the App Store

Arthritis LifeBy Cheryl Crow

  • 5
  • 5
  • 5
  • 5
  • 5

5

45 ratings


More shows like Arthritis Life

View all
The Chalene Show | Diet, Fitness & Life Balance by Chalene Johnson

The Chalene Show | Diet, Fitness & Life Balance

7,205 Listeners

Happier with Gretchen Rubin by Gretchen Rubin / The Onward Project

Happier with Gretchen Rubin

12,922 Listeners

The Rheumatoid Solutions Podcast by Clint Paddison

The Rheumatoid Solutions Podcast

109 Listeners

The Exam Room by the Physicians Committee by Physicians Committee

The Exam Room by the Physicians Committee

3,337 Listeners

Waist Away: The Intermittent Fasting & Weight Loss Podcast by Chantel Ray

Waist Away: The Intermittent Fasting & Weight Loss Podcast

532 Listeners

Everything Happens with Kate Bowler by Everything Happens Studios

Everything Happens with Kate Bowler

4,929 Listeners

Energized with Dr. Mariza by Dr. Mariza Snyder

Energized with Dr. Mariza

994 Listeners

Dhru Purohit Show by Dhru Purohit

Dhru Purohit Show

3,462 Listeners

The Dr. Hyman Show by Dr. Mark Hyman

The Dr. Hyman Show

9,167 Listeners

You Are Not Broken by Kelly Casperson, MD

You Are Not Broken

879 Listeners

We Can Do Hard Things by Glennon Doyle and Audacy

We Can Do Hard Things

40,873 Listeners

Warrior: A Survivor's Guide to Rheumatoid Arthritis by Amber W

Warrior: A Survivor's Guide to Rheumatoid Arthritis

7 Listeners

Thrive with RA by Dawn Laflin

Thrive with RA

12 Listeners

The Mel Robbins Podcast by Mel Robbins

The Mel Robbins Podcast

18,885 Listeners