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Today's episode of Breast Cancer Conversations features Rachel Burns, an incredible musician, singer, songwriter, and founder of the nonprofit Cancer Culture. Celebrating 10 years since her initial diagnosis, Rachel dives into her identity beyond cancer, highlighting her roles as a mom, daughter, and advocate. As a musician, Rachel describes the healing power of music and how it helped her process her emotions and experiences with cancer. Rachel's songs, which blend various genres, serve as a source of hope and inspiration for others facing similar challenges. Welcome to the Conversation
Rache's story is a powerful reminder that while cancer can change our lives, it doesn't have to define them. We can find strength in our passions, support in our communities, and hope in our continued efforts to live fulfilling lives.
Topics Covered:
00:02:17 - Living with Breast Cancer Post-Diagnosis
00:05:35 - Identity and Breast Cancer
00:12:36 - Mental Health and Cancer Diagnosis
00:16:02 - Lifestyle and Diet Before Cancer
00:24:29 - Finding Flow State Through Music
00:28:20 - The Healing Power of Art and Music
00:33:59 - Involvement with Cancer Culture
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Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events
Follow us on Instagram
Laura and Will: https://www.instagram.com/laura_and_will/
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/
About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.
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Today, we have the pleasure of speaking with Jacquie Carter Angell, a remarkable woman who has not only survived non-Hodgkin's lymphoma as a teenager but is now living with metastatic triple-negative breast cancer (mTBBC).
Jacquie shares her incredible journey with us, from being told she wouldn't live past her early 20s to becoming a mother, a wife, and a successful entrepreneur in the beauty industry. Despite her initial diagnosis of HER2-positive breast cancer and later, the more challenging triple-negative metastatic disease, Jacquie's spirit remains unbroken.
In our conversation, 's emphasized the importance of self-examination, noting that both times she discovered her breast cancer, it was through accidental self-discovery rather than routine mammograms. She highlighted the need for women, regardless of age, to be vigilant about their breast health.
Jacquie also opens up about the difficult decision of whether to disclose her cancer diagnosis to colleagues at work. She reflected on her first experience with breast cancer, where she prioritized her career over her health, and contrasted it with her current approach, which puts her well-being first! Welcome to the Conversation.
00:02:05 - Jacquie's Personal Story and Cancer Experiences
00:09:06 - Deciding Whether to Share Diagnosis at Work
00:18:28 - Discovering the Recurrence of Cancer
00:23:06 - Experience on Trodelvy
00:24:01 - Understanding Triple Negative Breast Cancer
00:29:19 - Finding Positivity and New Interests During Cancer
00:31:28 - The Role of Caregivers and Family Support
00:32:38 - Advice for Those Recently Diagnosed
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Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events
Follow us on Instagram
Laura and Will: https://www.instagram.com/laura_and_will/
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/
About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.
Tell Cancer To Take A Hike this October!
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Listener Feedback
Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars!
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Today, we had the pleasure of having Melanie Sisk on the show to demystify the complex world of emerging endocrine therapies, often referred to as the "alphabet soup" of treatments. Melanie provided clarity on the different classes of drugs and how they interact with tumors, particularly focusing on those that target estrogen receptors.
We discussed:
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Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events
Follow us on Instagram
Laura and Will: https://www.instagram.com/laura_and_will/
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/
About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.
Tell Cancer To Take A Hike this October!
It's free to sign up! Click here to sign up, start your team, and Tell Cancer To Take A Hike!
Support the show
Listener Feedback
Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars!
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Sanya has been conducting interviews with breast cancer patients and medical professionals to provide a comprehensive understanding of the treatment process. In this episode, Sanya interviews Gracita, a dedicated chemotherapy nurse who shares her own breast cancer journey and her passion for helping others. Gracita's story from the Bahamas to Haiti and eventually to the US serves as a testament to her commitment to making a difference. Tune in to hear her inspiring story and insights into the patient-medical team relationship.
Gracita, a chemotherapy nurse and breast cancer survivor, shares her perspective on the significance of building a strong relationship between patients and their medical team. As a chemotherapy nurse, she empathizes deeply with her patients, rejoicing in their victories and sharing their sorrows. This level of personalized care and empathy is a testament to the dedication of healthcare professionals involved in the treatment process.
The episode also highlights the different treatment modalities and recommendations for breast cancer, taking into account factors such as tumor size and characteristics (estrogen-positive, HER2-positive, or triple negative). This further underscores the need for tailored treatment plans that consider the specific characteristics of each individual's cancer.
Furthermore, the episode emphasizes the importance of staying up-to-date with the latest guidelines and research when creating treatment plans. This reflects the continuous evolution and refinement of treatment plans based on the latest evidence and advancements in breast cancer treatment.
[00:01:30] Gracita's breast cancer journey.
[00:08:06] Cancer treatment journey.
[00:09:30] Working with cancer patients.
[00:17:23] Religion and family in cancer journey.
[00:19:18] Importance of having support.
[00:23:47] The mystery of cancer.
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Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events
Follow us on Instagram
Laura and Will: https://www.instagram.com/laura_and_will/
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/
About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.
Tell Cancer To Take A Hike this October!
It's free to sign up! Click here to sign up, start your team, and Tell Cancer To Take A Hike!
Support the show
Listener Feedback
Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars!
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In this episode, we delve into the exciting developments in antibody drug conjugates (ADCs) presented at the 2023 San Antonio Breast Cancer Symposium.
ADCs are a promising class of treatment that combines an antibody with a chemotherapy drug, aiming to target and kill cancer cells more effectively while reducing side effects. We discuss approved ADCs like Enhertu and Trodelvy, and highlight that there's an ADC available for every breast cancer subtype. With many more ADCs in clinical and preclinical trials, the future looks hopeful for breast cancer treatment.
We explain the structure of ADCs, which includes the antibody that targets cancer cells, the cytotoxic drug that kills the cells, and the linker that holds them together. We also touch on the importance of choosing treatment types based on personal circumstances, such as age and family responsibilities, as different treatments come with varying side effects.
During the episode, we cover two clinical trials in detail. The first is about Datopotamab Deruxtecan (DATO-DXD), which showed promising results in hormone receptor-positive, HER2-negative patients, offering increased progression-free survival and different side effect profiles compared to traditional chemotherapy. The second trial combined DATO-DXD with the immunotherapy drug Durvalumab for advanced and metastatic triple-negative breast cancer, showing a high response rate and manageable side effects.
Our guest, Katie, shares her personal experiences with ADCs and provides insights into side effect management. She emphasizes the importance of dose adjustments and monitoring for specific side effects like nausea, vomiting, and interstitial lung disease. Katie also mentions the ongoing research to optimize dosing, detect side effects earlier, and engineer drugs with lower toxicity.
As always, we remind our listeners that the information shared on our podcast is based on personal experiences and is not a substitute for professional medical advice. We encourage you to reach out to your medical care team with any questions or concerns.
00:00:47 - Overview of Antibody Drug Conjugates (ADCs)
00:03:37 - FDA-Approved ADC Examples
00:04:49 - Datopotamab Deruxtecan (DATO-DXD) Clinical Trial Insights
00:07:10 - Combining DATO-DXD with Immunotherapy
00:08:23 - Managing ADC Side Effects
00:09:53 - Specific Recommendations for Current ADCs
00:11:09 - Future Directions in ADC Development
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Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events
Follow us on Instagram
Laura and Will: https://www.instagram.com/laura_and_will/
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/
About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.
Tell Cancer To Take A Hike this October!
It's free to sign up! Click here to sign up, start your team, and Tell Cancer To Take A Hike!
Support the show
Listener Feedback
Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars!
You can also click the link in the show notes that says "Love this episode? Send us a text" to share feedback.
Messages are completely anonymous.
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This podcast episode is part of our MBC webinar series with survivingbreastcancer.org, and focuses on resources for parents living with stage four metastatic breast cancer. The panel includes Carissa Hodgson from Bright Spot Network, Airn Ahlum Hanson from Living Beyond Breast Cancer, Kelsey Mora from the Pickles Group, and Sara Olsher from Mighty and Bright. All of these organizations offer support and resources for parents and children affected by a cancer diagnosis. In this episode, we emphasize the impact of a cancer diagnosis on parenting and highlight the need for resources to help parents navigate this difficult situation.
00:00:15 - Resources for parents with stage four metastatic breast cancer.
00:11:58 - Books help children understand illness.
00:17:05 - Support and resources for families.
00:22:49 - Virtual programs build a greater community.
00:29:04 - Parenting resources for families affected by cancer.
00:40:01 - Importance of supporting clinicians and patients.
00:47:15 - Plan A and Plan B.
00:52:49 - Navigating chronic metastatic disease together.
00:57:39 - Children are more aware than we realize.
Bright Spot Network
https://www.brightspotnetwork.org/
Living Beyond Breast Cancer:
https://www.lbbc.org/about-breast-cancer/family-relationships/parenting
Mighty and Bright
https://mightyandbright.com/
Pickles Group
https://www.picklesgroup.org/
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Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events
Follow us on Instagram
Laura and Will: https://www.instagram.com/laura_and_will/
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/
About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.
Tell Cancer To Take A Hike this October!
It's free to sign up! Click here to sign up, start your team, and Tell Cancer To Take A Hike!
Support the show
Listener Feedback
Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars!
You can also click the link in the show notes that says "Love this episode? Send us a text" to share feedback.
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Welcome back to another episode of Breast Cancer Conversations, where we continue to share valuable insights from the San Antonio Breast Cancer Symposium. As a breast cancer survivor and the founder of survivingbreastcancer.org, I'm thrilled to bring you key takeaways from one of the world's largest breast cancer conferences.
In this episode, we focus on what to do when CDK4-6 inhibitors, such as Ibrance, Kisqali, and Verzenio, stop working. Our guest, Amy Bremer, highlights the importance of getting a biopsy to check for mutations, which can be done through a liquid biopsy or a tissue biopsy. This step is crucial for determining the next course of action.
We delve into the various treatment options available based on specific mutations. For instance, if your cancer has a PIK3CA mutation, a combination of PIQRAY and Faslodex might be recommended. Other drugs like Trucap, Orserdo, and LSS strontosome are also discussed as potential options for different mutations.
For those without mutations, there are still choices available, such as Affinitor plus Faslodex, or considering a switch to a different CDK4-6 inhibitor. We also discuss the possibility of continuing treatment beyond progression or, in cases of aggressive progression, looking into chemotherapy or antibody drug conjugates (ADCs).
Stay tuned for our next episode, "on SERDs, SERMs, CERANs, and PROTACs" and remember to subscribe to Breast Cancer Conversations. Please note that our podcast shares personal experiences and is not a substitute for professional medical advice. If you have specific topics in mind or want to be a guest, feel free to reach out to me.
Thank you for listening, and let's continue to empower each other through community, education, and resources.
00:02:44 - Topic: CDK4-6 Inhibitor Efficacy
00:03:31 - Options After Endocrine Therapy and CDK4-6 Inhibitors
00:04:35 - Treatment Options Based on Specific Mutations
00:05:40 - Options Without Identified Mutations
00:06:43 - Inherited Mutations and Treatment Choices
00:07:09 - Expert Opinions on Treatment Complexity
00:08:44 - Importance of Clinical Trials
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Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events
Follow us on Instagram
Laura and Will: https://www.instagram.com/laura_and_will/
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/
About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.
Tell Cancer To Take A Hike this October!
It's free to sign up! Click here to sign up, start your team, and Tell Cancer To Take A Hike!
Support the show
Listener Feedback
Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars!
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In today's episode, part of our MBC webinar series, we delve into the San Antonio Breast Cancer Symposium (SABCS). We aim to break down the overwhelming amount of information into digestible insights. We discuss key findings, particularly on inflammatory breast cancer (IBC) and invasive lobular carcinoma (ILC), with insights from Amy Parliman, a member of our MBC leadership team.
Amy highlights the advancements in technology that outpace current treatment options and the importance of recognizing the unique challenges of diagnosing IBC and ILC due to their imaging difficulties. She shares that the symposium acknowledged these challenges and that there's growing research focusing on the genomic mutations specific to these types of breast cancer.
We also touch on the significance of patient-centric care, reminding listeners that they have the ultimate say in their treatment decisions. Amy shares her personal experience with her treatment regimen and the importance of sticking with what works unless there's a compelling reason to change.
The episode also covers the potential of contrasted mammograms and the need for different types of PET-CT scans for accurate diagnosis. We stress the importance of being informed and advocating for oneself, as treatments can vary based on individual cancer properties.
As always, we remind our listeners that the information shared is from personal experiences and not a substitute for professional medical advice. We encourage reaching out to your medical care team with any questions or concerns.
00:02:46 - Dr. Mankoff's Research on Imaging Technology
00:04:02 - Genomic Mutations in Different Breast Cancer Types
00:04:34 - Clinical Trials and Research Timelines
00:04:56 - Genes Implicated in Inflammatory Breast Cancer
00:06:02 - Imaging Challenges with Lobular Breast Cancer
00:07:07 - Amino Acid Studies and PET-CT Imaging
00:09:19 - Personalized Treatment and Informed Questions
Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events
SurvivingBreastCancer.org's Mission: To empower those diagnosed with breast cancer and their families from day one and beyond.
Follow us on Instagram
Laura and Will: https://www.instagram.com/laura_and_will/
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/
About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.
Tell Cancer To Take A Hike this October!
It's free to sign up! Click here to sign up, start your team, and Tell Cancer To Take A Hike!
Support the show
Listener Feedback
Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars!
You can also click the link in the show notes that says "Love this episode? Send us a text" to share feedback.
Messages are completely anonymous.
If you would like us to follow up directly, please include your email address in your message so we can respond.
Latest News:
Love the podcast? Send us a text!
In today's episode, part of our MBC webinar series, we delve into the San Antonio Breast Cancer Symposium (SABCS). We aim to break down the overwhelming amount of information into digestible insights. Over the next week, we will be releasing short snippets and key take-aways from SABCS. If you are thinking about attending this conference, today's patient advocate panelists share tips and tricks for making the most of your SABCS experience!
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Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events
Follow us on Instagram
Laura and Will: https://www.instagram.com/laura_and_will/
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/
About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.
Tell Cancer To Take A Hike this October!
It's free to sign up! Click here to sign up, start your team, and Tell Cancer To Take A Hike!
Support the show
Listener Feedback
Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars!
You can also click the link in the show notes that says "Love this episode? Send us a text" to share feedback.
Messages are completely anonymous.
If you would like us to follow up directly, please include your email address in your message so we can respond.
Latest News:
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In today's episode of Breast Cancer Conversations, we dive deep into oral health!
Before undergoing cancer treatment, it is crucial for individuals to prioritize their dental health. This is because cancer treatments, such as chemotherapy, can have significant effects on oral health, specifically how bisphosphonates may lead to Osteonecrosis of the Jaw (ONJ). In this podcast episode, we discuss the importance of visiting a dentist and dental hygienist before starting cancer treatment to achieve optimal oral hygiene.
Topics Covered in this Episode:
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Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events
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SurvivingBreastCancer.org's Mission: To empower those diagnosed with breast cancer and their families from day one and beyond.
About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.
+++++++++++++++++++++
Follow us on Instagram
Laura and Will: https://www.instagram.com/laura_and_will/
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Tell Cancer To Take A Hike this October!
It's free to sign up! Click here to sign up, start your team, and Tell Cancer To Take A Hike!
Support the show
Listener Feedback
Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars!
You can also click the link in the show notes that says "Love this episode? Send us a text" to share feedback.
Messages are completely anonymous.
If you would like us to follow up directly, please include your email address in your message so we can respond.
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