Breast Cancer Conversations

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Dr. Monique Gary | We deserve to be kind to ourselves. This is how. by SurvivingBreastCancer.org

Summary: Laura and Dr. Monique Gary discuss the challenges that women face in the aftermath of their cancer diagnosis and treatment. Dr. Gary highlights vaginal dryness and how to take steps to ease into intimacy again. In addition, Laura and Dr. Gary discuss how women can feel empowered and how their doctors can support them on their journey to empowerment.

Topics:
7:50 Vaginal dryness and intimacy
19:46 Being vulnerable
22:54 Dr. Gary’s approach to communicating with patients
34:04 Ever changing diagnoses
38:31 Sex and feeling empowered

Resources:
0:57 Patreon https://www.patreon.com/

Quotes:
8:54 Laura: “You know, we've heard terrible stories of just like relationships falling apart because, not because of the breast cancer, but because of the aftermath of the breast cancer diagnosis, you know, how do we empower the women to feel confident in their bodies and their skin and their new, like breast forms, or however they're going about it? I was talking to another gentleman, and he was like you were going through chemo, you were so sensitive, I could barely hug you. Yeah. Now, how am I supposed to make love to you, because I don't want to hurt you. And so how can we find these new ways of pressing each other and new ways of just appreciating each other? In intimate ways?”

44:20 Dr. Gary“But the, you know, the best thing that we can do is to be loving with yourself, you know, and to lovingly do that and say, you know what, I'm doing this, this is my coping mechanism right now, because I need to, I would like to see myself here. And it's not saying that I'm not doing, you know, you got to get rid of the negative self talk. But to say the person that I am that I want to be I see myself being more balanced. I see myself being, you know, having time for pleasure and redefining pleasure. I see myself making more time in my day for these things, and I'm not there right now. I'm starting to see why I'm not there right now. And it's really unpack that but just be really loving with yourself and say, You know what, that's where I want to be.” 

Socials:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

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In today's podcast Breast Cancer Conversations, we speak with breast cancer thriver, Kandace McMenomy from Laguna Beach, CA. It is such a pleasure speaking with Kandace. She is full of positivity, experiences, and a great outlook on life. As a marathon runner, she never imaged that she would be diagnosed with breast cancer at the age of 30. 5 years later, it had metastasized throughout her body. She still runs, appreciates every day, and is responding well to her current treatments. Welcome to the conversation.

Podcast with Kandace:
Lupron side effects 3:30
Lymphedema 4:40
Marathon runner and finding out I had cancer at the age 30. 10:12
What just happened to me (Kandace)? 13:45
How did Laura find out she had cancer 27:50
Lymph node involvement 33:00
Fertility and harvesting eggs 38:00
Kadance’s treatment plan with chemo and radiation 40:00
Don’t take things for granted 45:00
Remaining on Lupron and Stopping the Aromatases Inhibitors (Exemestane) 48:00
5-year mark diagnosed with metastatic 6 months after having a clear pet scan 51:34
Ibrance 55:00
Should we have our ovaries removed? 58:00
How am I handling treatment, how do you define tired? 1:01:00
Did you ever get back into running marathons after your diagnosis? 1:08:00

Related Podcasts: With Krystle Hensley: https://soundcloud.com/user-870312088/diagnosed-at-27-brca-an

0:35 Store my tumor https://storemytumor.com/

Quotes:
1:11:05 Kandace: “So I remember coming up to, you know, towards the end of the race, and about a mile and a half, yet to the finish line, I just come up to this crowd of people that are stopped. And I don't run with my phone. And I thought, oh my god, what? Why are we stopped and not none of us knew what we're going what was going on? We started to hear the helicopters and I thought something weird is going on. So I asked somebody that was standing next to me if I could borrow their phone to call my mom because my mom and her girlfriend, my aunt and uncle were at the finish line . And I couldn't get through, right. So I use the phone to call my dad in LA. And I said, you need to get ahold of mom and you need to tell me where I'm supposed to go.”

Socials:
Say Hi on Social:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

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Dr. Amy Comander | Lifestyle Medicine and Breast Cancer by SurvivingBreastCancer.org

Summary: In this episode, Laura and Dr. Amy Comander, the director of breast oncology and cancer survivorship at MGH Waltham and Newton Wellesley hospital discuss the topic of lifestyle medicine and how to holistically remain healthy during and after cancer treatment. They discuss the flexibility of a patient’s treatment and how doctors often alter plans slightly during the treatment depending on how the patient responds to a specific medicine or treatment plan. Lastly, Dr. Comander describes how her survivorship program was created and her work as a medical advisor to the one in forty non-profit organization.

Topics:
0:03 Introduction
10:22 The flexibility of breast cancer treatment plans
17:04 Finding support during and after treatment
36:07 Lifestyle medicine
42:00 Dr. Comander survivorship program
52:18 Individuals with Ashkenazi Jewish ancestry and their likelihood of a breast cancer diagnosis

Resources:
Store My Tumor: https://storemytumor.com/
Lifestyle Medicine Handbook: https://www.amazon.com/Lifestyle-Medicine-Handbook-Introduction-Healthy/dp/1606794132
One in forty: https://oneinforty.org/ 

Quotes:
Dr. Comander 43:08: Right. I hear this a lot from patients for sure that you look normal, right? They don't feel quite normal inside. And so sometimes that's really hard to navigate. Yeah, but yeah, so I was really for a few years now, I've been really excited about launching my own breast cancer survivorship program for my patients. And I've met Dr. Beth Frates a few years ago, and we've been meeting about this for a while. And so it was really excited to get this started this fall. And I was fortunate to get a number to run for Team Newton Wellesley hospital to raise money for this particular program. And by the way, I don't tell my patients they have to run a marathon, a few asked if they could join the marathon team and I was like, maybe not right now finish chemotherapy first. Certainly, I have some of my patients have really taken up running which is pretty inspiring. 

Socials:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

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Life Coaching after Breast Cancer with Andrea Magni and Laura Dubois by SurvivingBreastCancer.org

Summary: In this episode, Laura and the surviving breast cancer team discuss career coaching with Andrea Magni and Laura Dubois, two breast cancer survivors who chose to begin career coaching after their cancer diagnosis and treatment. Both individuals express how they felt off track after their breast cancer diagnosis and treatment, but found their calling again through career coaching. In the middle of the episode, Laura leads us through a breathing exercise. Lastly, they both discuss the specifics of their diagnosis and treatment and how they were able to deal with going through the difficult times during treatment.

Topics:
6:15 Introductions
17:11 How Laura got into Career Coaching
20:23 How Andrea got into Career Coaching
31:23 Breathing exercise
36:06 Laura’s experience going in for an x-ray
40:06 Laura’s breast cancer diagnosis
56:32 Andrea’s breast cancer diagnosis

Resources:
Store My Tumor https://storemytumor.com/
Laura’s blog https://lauraslandingplace.blogspot.com/
Laura’s website https://www.headcoachlaura.com/ 

Quotes:
14:16 Andrea: And within that should also be a, I think what you're saying is being held, especially like in in, in a work environment, you don't want to be constantly looking for sympathy. There is an element of you do want to be included in some of those projects. And you do want to be asked for your input. So you don't want to be excluded. And how do you bridge between suffering from these the fact that these people don't understand what I'm going through, and I'm sitting here and I'm in pain or I’m uncomfortable and actually being productive, but you have to balance, you have to find something. So there must be tools that you can work with and I think that's what coaches are good for, is to find tools for that resilience or to build it up. To build boundaries for yourself. 

Socials:
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• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

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Listener Feedback

Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars! 

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Molecular Breast Imaging with Dr. Ha and Breast Cancer Thriver Leslie Yerger by SurvivingBreastCancer.org

Summary: In this episode, Laura discusses molecular breast imaging (MBI) with Dr. Ha and breast cancer survivor Leslie Yerger. Dr. Ha explains the various options for breast cancer imaging along with the pros of using MBIs versus other forms of imaging. In addition, Laura, Dr. Ha, and Leslie discuss the lack of education around MBIs and how patients should advocate for themselves if they feel they need to obtain an MBI specifically instead of a mammogram or a PET scan, for example. Lastly, Laura, Dr. Ha, and Leslie discuss the importance of genetic testing to determine whether an individual is at risk for breast cancer and screening for 5 years post breast cancer diagnosis and treatment.

Topics:
2:43 Dr. Ha’s introduction
3:44 Leslie’s introduction
9:47 Breast cancer imaging options and molecular breast imaging specifically
19:37 Lobular breast cancer imaging and what to look for in x-rays
21:24 How to perform self-checks for breast cancer and an explanation of how molecular breast imaging works
43:46 Providing resources for molecular breast imaging education
46:37 Genetic testing
52:22 High-risk screening

Resources:
Store My Tumor https://storemytumor.com/ 

Quotes:
42:00: Dr. Ha: My only job is to find breast cancer. And if it means that I, you know, I'm whatever I need to do. So that's really why like, I feel like I need to know what what's your history, I need to know, you know, if I see that you have a very high risk, right, and I just don't see anything and I'm sure that, you know, I feel like you're going to get breast cancer at some point, you can bet your you know, but that I'm, I'm gonna, I'm gonna do everything that I need to do to make sure that it's not there when I look. And that if it pops up between the time that I see you today, and the next time that you come that I'm going to catch it at the earliest point, I mean, this is the best that we can do. But I have an extra toy that nobody else has, and you know, I use it. And it helps me you know, so I think that when people see that it really is helpful when we get this information out to people. When doctors see how helpful it is when patients realize that there's something else that they can use, and they basically say listen I want this test. I think that you know, with education that we will get better.

Social:
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• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

_________________________

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Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars! 

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What You Need To Know About Tumor Preservation, with Michel Sadaka. by SurvivingBreastCancer.org

Summary: In this episode, Laura and the surviving breast cancer team discuss tumor preservation with Michel Sadaka, the founder of Store My Tumor. Sadaka explains what exactly immunotherapy is and also goes into detail about what happens behind the scenes at Store My Tumor and how scientists will analyze an individual’s tumor and come up with a personalized treatment for that individual. Lastly, the surviving breast cancer team and Sadaka discuss how cancer is not a perfect science, and the technology in the cancer world along with the knowledge regarding cancers and tumors is always growing.

Topics:
2:14 What scientists do at Store My Tumor
9:19 Immunotherapies
19:19 Finding clinical trials
22:41 Access to Store My Tumor resources
27:42 Misconceptions heard about tumors
32:16 Personalized treatment and cross-referencing results during a diagnosis
41:14 Cancer is not a perfect science
47:15 Getting in touch with store my tumor

Resources:
Patreon https://www.patreon.com/
Store My Tumor https://storemytumor.com/ 

Quotes:
13:38 Michel Sadaka: “This is personalized medicine. So we have to consider different tools and we have these different applications or tools that we can juggle, but we have to right size it to the right to the patient at the right stage.”

Socials:
Say Hi on Social:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

_________________________

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Listener Feedback

Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars! 

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Emily Garnett & Laura Carfang; When Two Breast Cancer Podcasters Finally Connect by SurvivingBreastCancer.org

Summary: In this episode, Laura and Emily interview each other about their respective podcasts and organizations. They each explain what inspired them to create these organizations, their diagnosis, and many of the struggles they have been through. Emily provides insight into how to tell your children about your breast cancer diagnosis and how to provide support for individuals with a stage 4 cancer diagnosis.

Topics:
8:28 Why Emily decided to start her podcast
11:41 Emily’s diagnosis
12:56 Metastatic de novo breast cancer
25:00 Emily’s biopsy and PET scan
29:40 Telling children about your breast cancer diagnosis
39:21 Creating dialogue
41:55 Origins of survivingbreastcancer.org
54:32 How to provide support to someone with stage 4 cancer
1:08:05 Emily’s blog and podcast

Resources:
Store my tumor https://storemytumor.com/
Emily’s website: https://emilygarnett.wordpress.com/
Podcast: The intersection of cancer in life
Podcast website: https://theintersectionofcancerandlife.libsyn.com/ 

Quotes:
35:36 Emily: “It's so sweet and I feel like kids are such great conduits for so many important conversations. And for us, it really became a point where we could go, we could really start talking about a lot of the more nuanced aspects of people can identify as women. And that that those things, those characteristics aren't necessarily like the only defining characteristics. And then that has actually been a great teaching point in that not only like raising a little boy to recognize, you know, that there is a much bigger element of gender fluidity that that we don't recognize and sometimes really in the breast cancer community too. We can, we can kind of fall short of recognizing it because It's so stereotypically a female disease and like my, my, my grandfather had had breast cancer. And so, it, it's always been very important for me to recognize that breast cancer isn't necessarily something that women get, and that people who have breast cancer don't necessarily identify as women and you don't get however, however, their presentation might be.”

Socials:
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• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

_________________________
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(Updated) I'm a Triathlete I think It's a Stress Fracture; No, It's Stage IV Breast Cancer: Interview with Deb Williams by SurvivingBreastCancer.org

Summary: In today’s episode, Deb discusses her unique cancer diagnosis with Laura. They talk about her hospital experience, the experience of being under anesthesia, laxatives, and Deb’s lifestyle. Deb’s contagious energy radiates throughout the episode and can be used to inspire listeners.

Topics:
4:10 Deb’s Introduction and diagnosis
14:15 Medicine isn’t a perfect science
15:10 Deb’s treatment
33:02 Deb’s rod in her hip breaks
40:00 Laxatives
46:30 What does Deb currently do
50:29 Breakdown situation

Resources:
Store My Tumor https://storemytumor.com/ 

Quotes: 
7:48 Deb: “He said well, you have a nine millimeter tumor and your femur is broken in three places. And it's cancer and we don't know what kind, total blank at that point. I was like, okay, I heard nothing. His mouth was moving. But nothing was going in my ears at that point. I looked over at my girlfriends that were there, they frantically took out notebooks and were writing every single word. They were scribing because I didn't know what to say. And then he's like, I'm going to give you a couple minutes, and I'm going to leave the room and come back. He goes, read the notes from your girlfriends. Because he knew I wasn't listening. I was like, I have no idea.”

Socials:
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• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

_________________________
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Tell Cancer To Take A Hike this October! 

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Listener Feedback

Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars! 

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It's In My Blood, Now That's Humor, with Blogger Jeff Neurman by SurvivingBreastCancer.org

Summary: In this episode, Laura discusses finding the humor in a cancer diagnosis with Jeff Neurman, a lawyer who decided to blog about his experience with cancer. Jeff explains his diagnosis, the various chemo drugs he was on, why he decided to begin blogging, and how oncologists discuss cancer diagnoses with patients. Laura and Jeff exchange stories and connect with each other over similarities in their cancer journey.

Topics:
6:31 When and why Jeff decided to begin blogging
13:40 Jeff’s diagnosis
20:26 Chemo drugs
26:15 Discussing your diagnosis and treatment plan with your oncologist and others
45:52 Support from family and friends during a cancer diagnosis and treatment
1:00:48 Misunderstandings in medicine
1:08:14 Jeff’s blog

Resources:
Store My Tumor https://storemytumor.com/
Jeff’s blog https://itsinmyblood.blog/ 

Quotes:
35:11 Jeff: “So, so I think as, as useful and as essential as the the doctors, our fellow patients, I think that yes, some ways provide the most, most useful resource and support.”

Socials:
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• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
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• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

_________________________
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Donate to our cause https://tinyurl.com/yc9cgt4e
Attend an event https://www.survivingbreastcancer.org/events

Tell Cancer To Take A Hike this October! 

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Listener Feedback

Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars! 

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Messages are completely anonymous.

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Latest News: 

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The New Normal & Intimacy After Cancer - With Dr. Bullis by SurvivingBreastCancer.org

Summary: In this episode, Laura and the surviving breast cancer team talk to Dr. Bullis about how to psychologically deal with a breast cancer diagnosis, treatment, and the uncertainty of recurrence after treatment. Dr. Bullis discusses how to assess how much information should be given to patients and when to begin discussing how to manage stress with patients. He also explains the difficulties in having sexual relationships after a breast cancer treatment, and how to overcome those difficulties.

Topics:
6:22 Dr. Bullis’ Introduction
9:18 Readjusting to cancer diagnosis and treatment
21:46 Common feelings after treatment
30:27 When to discuss prophylactic stress management with patients
52:38 What to say to a cancer survivor or someone diagnosed with cancer
1:03:05 Having control and fear of recurrence
1:17:44 How much information should be given to patients
1:21:57 Sexual relationships during and after a breast cancer treatment and diagnosis
1:38:01 Dr. Bullis’ unique method of analysis
1:49:12 Breakdowns and rebounds

Resources:
Store My Tumor https://storemytumor.com/ 

Quotes:
55:34 Dr. Bullis: “And I think in survivorship, what you're really trying to do is shift the narrative from this is about my cancer to this is about my coping.”

Socials:
Say Hi on Social:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
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