Breast Cancer Conversations

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Meet Kerensa, a lively energetic young lady who captures attention everywhere she goes. A recent college grad who moves across country to marry the man of her dreams, when, unexpectedly, she is diagnosed with breast caner at the age of 22. This is part I of a series where we capture the essence of Kerensa, her character, her persona, and her diagnosis through the lens of her husband, Glenn. We celebrate Kerensa's life with the release of this series today, Feb 28th, which would have been her 26th birthday.

Socials:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

_________________________

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Attend an event https://www.survivingbreastcancer.org/events

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Chances are if you are listening to this episode, it’s because you personally have gone through radiation treatment or will be going through treatment soon. I am pleased to be connecting with Dr. Rachel Jimenez on our podcast today. She provides us with a thorough and comprehensive description of radiation therapy. What it is, why it's beneficial, and the long-term risks we should know about in order to manage our health. Stay tuned until the end because we answer your questions of why radiation increases your risk of developing lymphedema if you had your lymph nodes removed. It’s all here for you in the episode, welcome to the conversation. 

TOPICS COVERED IN THIS EPISODE
-People who refuse aspects of therapy including radiation. 
-What to expect when going in for radiation-Planning appointment
-What is radiation and why would I need it? 
-Radiation and skin care
-Proton Beam Radiation (the science behind protons; a number of clinical trials exploring proton beam radiation in the breast cancer community to minimize cardiac toxicity). 
-Risks association with radiation, but we still sign the consent. As a young breast cancer survivor, I ask Dr. Jimenez to explain the 10, 20 and 50 year plan for women who go through treatment. 

HEALTH RISKS
-Cardiac toxicity
-Field of cardio oncology partners and have mapped out the ideal 
-Herceptin and anthracyclines. After 5 years of survivorship, you should have a cardiac stress test. 
-Getting a baseline with an ultrasound of the heart so if there are changes, doctors can track them. 
-Our job (in Radiation Oncology) in follow up is to open up and make sure that referrals are made. How is your nutrition? Are you exercising? Did you schedule your next mammogram? 

QUOTES: 
"Your providers are your providers for life". "You are never a bother, it is our job and privilege to take care of you! "

Socials:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

_________________________

Subscribe to our newsletter https://www.survivingbreastcancer.org/subscribe-1

Donate to our cause https://tinyurl.com/yc9cgt4e

Attend an event https://www.survivingbreastcancer.org/events

Tell Cancer To Take A Hike this October! 

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Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars! 

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In this episode on Breast Cancer Conversations we have the pleasure of speaking with Dr. Van Londen. I know you are all going to love this conversation. It literally is your personal one on one consultation with an expert in managing life after a cancer diagnosis. 
Topics include:
-Reprioritizing -Estrogen therapies (pros and cons)
-Longer Term risks of anti-estrogen treatment
-Zometa Infusions to support bone health to minimize bone loss
-Grief
-Brain Fog
-How to make up for lost time 
-Quality of life
-Developmental phases in life. 
“Don’t let perfect be the enemy of good”

If this podcast resonates with you, please be sure to share it and tag @breastcancerconversations on social so I can read your comments and take aways! Can’t wait to see you in the comments. Welcome to the conversations. Thank you to Podigy (https://podigy.co/) for helping edit and master this episode. 

Socials:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

_________________________

Subscribe to our newsletter https://www.survivingbreastcancer.org/subscribe-1

Donate to our cause https://tinyurl.com/yc9cgt4e

Attend an event https://www.survivingbreastcancer.org/events

Tell Cancer To Take A Hike this October! 

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Listener Feedback

Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars! 

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Dr Buckanovich highlights three major areas of need within ovarian cancer. We discuss the link between ovarian cancer and breast cancer, specifically if you carry a BRCA gene mutation.   He shares exciting developments recently found in treating ovarian cancers that could potentially be an option for treating TNBC. We continued our discussion on genomic sequencing going beyond the standard of care looking at DNA and zooming in on RNA sequencing.

Topics:
8:15: Big area of need is a diagnostic test for ovarian cancer
11:00: New approaches to treatment coupling with immunotherapies 
17:01: The role of Artificial Intelligence. What best predicts ovarian cancer
21:50: What are the symptoms of Ovarian Cancer
26:40: Ovarian Cancer survival rates 
31:02: Salpingo-oophorectomy
35:30: Types of treatment utilized for ovarian cancer (PARP inhibitors, Platinum based agents)

Socials:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

_________________________

Subscribe to our newsletter https://www.survivingbreastcancer.org/subscribe-1

Donate to our cause https://tinyurl.com/yc9cgt4e

Attend an event https://www.survivingbreastcancer.org/events

Tell Cancer To Take A Hike this October! 

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Listener Feedback

Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars! 

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Recorded during our visit to the Magee-Womens Research Institute and Foundation in Pittsburgh, PA, this week’s episode marks the first in a series that will be released over the coming weeks. In today’s instalment, we take a close look at the groundbreaking research occurring at this remarkable institute by interviewing Investigators Dr. Steffi Oesterreich and Dr. Adrian Lee, and CEO Michael Annichine regarding their work there. 

Episode Highlights:
-The important role that advocacy groups play
-Clinical trials and the need to promote them
-The ever evolving use of Artificial Intelligence and Machine Learning in research
-The importance of data sharing among researchers 

Quotes:
“We’re not treating a disease, we’re treating patients.”“Let’s hear from those patients as we take that journey with them, not for them.”
“They have a passion to make a difference.”
“We need to promote things like being on clinical trials.”
“Breast cancer has been a trailblazer for new therapies, new diagnoses, new treatments, and the outcomes have improved tremendously.”
“We think when they leave the lab... that they really understand breast cancer as a whole and not just here’s the cell and the gene.”
“5 years from now things will have changed so much.”
“Let go of feeling like you need to be in control, because the science is moving so quickly, and we’re all trying to figure it out.”
“We should all share all our data…we should put it out there because others will make use of it.”
Links: Surviving Breast Cancer homepage: https://www.survivingbreastcancer.org/Magee-Womens Research Institute & Foundation: https://mageewomens.org/

Tell Cancer To Take A Hike this October! 

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Listener Feedback

Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars! 

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We discuss cold caps as a tool for perserving your hair during chemotherapy. Become a Patron: https://www.patreon.com/user?u=23671754

Summary: Caitlyn Edmonds discusses her experience with chemotherapy and radiation along with the use of cold caps during her cancer treatment. She also talks about how she has stayed involved in the cancer community post-cancer treatment. She discusses all of the support that she received during her treatment and the steps she took to keep her hair during her treatment.

Topics:
2:20 Introduction to cold caps
11:39 Caitlyn’s story of chemo and radiation
15:03 Caitlyn’s experience with cold caps
22:32 Caitlyn’s skin during chemo and radiation
24:29 Post treatment care

Resources:
34:40 Patreon https://www.patreon.com/

Quotes:
21:31 Caitlyn: “So you get cancer and like basically, it's like a glass shattered inside of you. And there's like, all these shards everywhere. And he's like, so You had chemo which is what you do first, right? Like you get a towel and you like pick up all those like huge chunks and like everything out. So that's all gone. And then you had surgery, which was like getting the broom and like sweeping it all and you're like, Okay, great. Like, it looks like totally clear. Nothing's there. And he's like, but a couple weeks later, you're walking around and there's like those teeny tiny little like things that still get you and he's like, you should have gone around with dustbuster. And like all those little last pieces, he's like, that's my job. Like, I'm the dustbuster and I'm getting everything that like everyone else can't see.”

28:00 Laura: "I think that's a normal feeling even, like, this day, like some days, I don't think about cancer at all other days, I think about it way too much. And you know what I was walking into work the other day and was just like, I'm healthy. Like, when was the last time I was like, healthy? You know? And it's like, almost surreal, because you're so used to being like the patient and managing cancer."

Socials:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

_________________________

Subscribe to our newsletter https://www.survivingbreastcancer.org/subscribe-1
Donate to our cause https://tinyurl.com/yc9cgt4e
Attend an event https://www.survivingbreastcancer.org/events

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Listener Feedback

Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars! 

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Latest News: 

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Egg Retrieval at 6am. 1st Chemo at 11am | Interview with Caitlin Edmonds, TNBC

In this episode of Breast Cancer Conversations, Caitlin Edmunds discusses her cancer diagnosis and the various challenges she had to overcome. She talks about getting a second opinion on her diagnosis, her experience with egg retrieval, and her chemotherapy treatment. Lastly, she discusses her genetic testing results. 

Topics:
3:26 Caitlin’s initial diagnosis
17:00 Getting a second opinion
24:46 Egg retrieval explanation
27:38 Port placement
30:02 Caitlin’s egg retrieval and cancer treatment
33:46 Genetic testing

Resources:
None mentioned

Quotes:
12:45 Laura: I hate the waiting period. The anxiety is like through the roof. And and then now Okay, so it's like confirmed, but you still don't have a lot of answers. Or, you know, for my experience, also, like I didn't even know what the path was right. Like you You hear about chemotherapy or you hear about surgery, like, I, when I heard the word breast cancer, I'm just like, okay, like, I don't know if I was naive or just shocked. I was just like, okay, I just don't know what that means.

15:05 Caitlin:  You know, I'm in my gown and they put on a YouTube video of what breast cancer is. And that was my first like experience and it was--a video first?--Yeah. And it was like, and I had no I didn't, nothing is pointing to my state. I didn't know what kind and I mean, literally, I was like, Am I dying tomorrow? Am I gonna be fine? Like, I didn't know. They put on a video and it's like a 65 year old woman going through menopause and breast cancer and I'm like, Okay, well, this I like this does not related to me. Like I it was awful. And then the oncologist came in, who was not my favorite person. She was pretty cold. And again, looking back I have a lot more experience now where I get that they're not gonna like sit and cry with you and but she just did not have there was no warm feelings. There was no nothing like that not great bedside manner. And so they didn't tell me honestly, even that day, a ton. It was a couple weeks later when I was on like a genetic counselor called I even found out that I was triple negative. She'd my oncologist didn't tell me that in the beginning, which maybe she assumed we knew things I don't know, I knew nothing again, I didn't know that was kinds of breast cancer and the only thing she really told me was that it was grade three, so it was aggressive. 

19:40 Laura:  I always advocate like, get as many opinions as you need until you find an oncologist that pretty much is going to be your best friend.

Socials:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

__________________________

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Donate to our cause https://tinyurl.com/yc9cgt4e

Attend an event https://www.survivingbreastcancer.org/events

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Latest News: 

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Understanding the Complexities of Genetic Testing. An Interview with Genetics Counselor, Fatima Amir, M.S., LGC.

Summary: The SBC team discusses the implications of genetic testing with Genetic Counselor Fatima Amir. The team and Fatima discuss the BRCA 1 and 2 genes, the statistics of breast cancer, and the various types of genetic testing. In addition, Fatima highlights the importance of strong communication with one’s family and how family history may or may not be indicative of a future cancer diagnosis. Lastly, Fatima illustrates the importance of broadening the demographic of genetic testing.

Topics:
6:21 Introduction to genetics
9:54 Statistics of breast cancer
10:35 BRCA 1 and 2
15:39 Lifetime risk
26:22 Additional testing
37:37 Relevance of family communication and family history
43:17 The future of genetics 
45:17 Bringing genetic testing to new demographics
1:02:23 Discussing genetic testing with patients

Resources:
None mentioned.
Quotes: 
Fatima 39:00 “Family communication thing is a big thing that can come up. And so sometimes what I'll I'll offer to do for patients is write a family letter, kind of a generic letter that I can type up that so they don't have to worry about having to have all the details or anything like that there. But I can write a generic kind of letter and then send it to our patient and then they can kind of forward it and edit it as they please to customize it, send it to their relatives, so they don't have to worry about having that conversation or anything like that.” 

Fatima 60:15 “I like to remind people don't blame yourself for having done something, if I just did this differently if I just did this differently. There's also a big percentage of cancer that happens because just nature isn't perfect. And ourselves. Exactly. Are. You think about, you know, when we talked about all that DNA in our, in each of our cells, there's billions and billions of letters and each of our cells and every time a cell is replicating, it has to copy all of those letters each time. So think about a Xerox machine. And if that's copying again, and again, it's bound to make an error at some point.”

Socials:
Say Hi on Social:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

______________________

Subscribe to our newsletter https://www.survivingbreastcancer.org/subscribe-1
Donate to our cause https://tinyurl.com/yc9cgt4e
Attend an event https://www.survivingbreastcancer.org/events

Tell Cancer To Take A Hike this October! 

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Listener Feedback

Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars! 

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Latest News: 

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Radical Mastectomy & Going Flat | Interview with Alicia Duncan (Part II) by SurvivingBreastCancer.org

Summary: In this episode, the surviving breast cancer team discusses Alicia’s struggle with her stage III breast cancer diagnosis and the loss of her breasts. The team highlights how a fast cancer diagnosis can take a toll on one’s mental health along with the PTSD that may come in the aftermath of being cured of cancer. Lastly, Alicia explains her tattoos and both Alicia and Angela discuss the strength needed to be a caregiver.

Topics:
4:51 Losing your breasts
18:33 Types of mastectomies
22:39 Rapid cancer diagnosis
30:51 Alicia’s tattoo
34:46 Being a caregiver

Resources:
1:30 Patreon https://www.patreon.com/

Quotes: 
9:45 Alicia: “You're a woman trying to date another woman who, they're gonna want you to have breasts. That's part of what makes you a woman. That's one thing anyways, you know, it's a big thing. So when you don't have them, that's a very scary thing. You know? couldn't look at myself in the mirror. How do I expect some random stranger wants to date me to look at me in the mirror? So I had a friend tell me and I will PG this. But she said, if someone doesn't want to date you because you have no breasts because you lost them due to breast cancer then F them. And I said, you know, that is 100% true. And so when I did it, Angela and I talked about it. She said, before she even knew that conversation. You know, she said, I don't care that you don't have breasts, I care that you're here and that's what matters to me. So with breasts or no breasts.” 

14:10 Laura: “Some days I felt really, really empowered, like I'm doing it. And I'm excited, I can't wait. And then there were other days to talking to people of like, well, if I did reconstruction, and they're taking either like deep flap tissue, or taking like the lat muscle from your back to do the reconstruction, I was hearing interesting stories in my research of, yeah, every time I open the spaghetti sauce jar, and use this muscle, and my breast would twitch. Because your muscle from your back is now in your front. or anytime you do weird things like in your car, moving or like, I heard these interesting stories of like the muscle didn't yet pick up on the memory that it got moved. Oh, and it was flexing.. In weird times. And I'm like, interesting. Well, at the time I practiced yoga a lot, it was really important for me to stay fit. Like, what if? What if changing these body parts were no longer natural? And I just had so many questions.”

Socials:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

_________________________

Subscribe to our newsletter https://www.survivingbreastcancer.org/subscribe-1
Donate to our cause https://tinyurl.com/yc9cgt4e
Attend an event https://www.survivingbreastcancer.org/events

Tell Cancer To Take A Hike this October! 

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Listener Feedback

Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars! 

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Latest News: 

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Diagnosed with Stage III at 27 & Thriving 8 years later | Interview with Alicia Duncan by SurvivingBreastCancer.org

Summary: The Surviving Breast Cancer team and Alicia and Angela Duncan share stories from their cancer diagnosis and treatment. The team discusses Angela’s involvement with Hip Hemp LLC and the creation of vaginal pearls to combat against vaginal dryness. In addition, Alicia shares the raw details of her emotions during her treatment and how she used comedy to cope with her diagnosis.

Topics:
6:02 Finding a new normal
17:08 Vaginal dryness
28:23 Alicia’s story
36:03 Alicia receiving her cancer diagnosis
39:44 Laura’s cancer diagnosis
44:31 Radiation tattoos
49:36 How Alicia coped with her treatment

Resources:
0:55 Patreon: https://www.patreon.com/

Quotes:
9:39 Laura: “And I talked to somebody recently to who use the words I am healing from cancer because she was also metastatic, but talking about every single day, she's like fueling her body with like nutrients and everything to say, you know what, I don't even want to acknowledge the stage that I'm in because that's irrelevant. I'm living, right and you're overcoming and your challenge, everyone should be so proud of themselves, because this isn't something that we chose, it happened to us. We are. We were, I mean, we have choices, but really it's. Do I sign the consent form and take this like terrible chemotherapy? Or do I take my chances? And like, I don't know, try some other natural paths to see what I can do. And it's all such a very personal choice. So I appreciate you kind of just diving right in and opening up that landscape right there.”

31:20 Alicia: “I used to say cancer, you know, it will take my hair, it will take my breast, but it's not going to take who I am. And that's what I told her. When I had to deal with the new norm. I thought I don't even you know, changed everything about me. But I said it's not going to take who I am inside. And it didn't you know, and that didn't change no matter what stage it was or now is.”

Socials:
Say Hi on Social:

• YouTube: https://www.youtube.com/SURVIVINGBREASTCANCER
• Facebook:https://www.facebook.com/Survivingbreastcancerorg
• Pinterest: https://www.pinterest.com/BreastCancerConversations/
• Twitter: https://twitter.com/SBC_org 
• Instagram: https://www.instagram.com/survivingbreastcancerorg/

_________________________

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Donate to our cause https://tinyurl.com/yc9cgt4e
Attend an event https://www.survivingbreastcancer.org/events 

Tell Cancer To Take A Hike this October! 

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Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars! 

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Latest News: 

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