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Put epilepsy powerhouses together for a weekend, and what happens? Real change. Tune in for convos about everything, like taking leave from work to do a med change, eclampsia-triggered seizures (The Pitt fans, you’ll recognize this one), loopholes when insurance won’t cover meds, and moms being told there are “no other options” for their kids.
Researchers living with epilepsy themselves share what it’s like to study SUDEP and new treatments, plus the real deal on what clinical trials actually mean for people trying new epilepsy medications.
Thank you to the Epilepsy Foundation of America for letting the podcast crash the Research Ambassador Program!
Help keep "What the Ef" going! Subscribe and rate on whichever platform you listen to!
Subscribe to YouTube: @WhatTheEfPodcast
Follow on Insta: @whattheefpodcast
Shout out to the folks who help keep things real in the epilepsy community! Thank you sponsors Neurelis & SK life science AND community partners Epilepsy Foundation of America, the Danny Did Foundation & Epilepsy Alliance America!
Check out Matthew's TED Talk here: https://youtu.be/uLjnPYJiBFE?si=BENTwG_T1wRyz1qd
Hosted on Acast. See acast.com/privacy for more information.
By What the EF4.9
3737 ratings
Put epilepsy powerhouses together for a weekend, and what happens? Real change. Tune in for convos about everything, like taking leave from work to do a med change, eclampsia-triggered seizures (The Pitt fans, you’ll recognize this one), loopholes when insurance won’t cover meds, and moms being told there are “no other options” for their kids.
Researchers living with epilepsy themselves share what it’s like to study SUDEP and new treatments, plus the real deal on what clinical trials actually mean for people trying new epilepsy medications.
Thank you to the Epilepsy Foundation of America for letting the podcast crash the Research Ambassador Program!
Help keep "What the Ef" going! Subscribe and rate on whichever platform you listen to!
Subscribe to YouTube: @WhatTheEfPodcast
Follow on Insta: @whattheefpodcast
Shout out to the folks who help keep things real in the epilepsy community! Thank you sponsors Neurelis & SK life science AND community partners Epilepsy Foundation of America, the Danny Did Foundation & Epilepsy Alliance America!
Check out Matthew's TED Talk here: https://youtu.be/uLjnPYJiBFE?si=BENTwG_T1wRyz1qd
Hosted on Acast. See acast.com/privacy for more information.

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