Dr. Simona Giorgi from Dravet Syndrome Foundation Spain shares their preclinical and clinical studies, epidemiological research, and their development of tools to support caregivers and people affected by Dravet! Highlighted are the needs for greater awareness among healthcare professionals about the capabilities of patient advocacy groups and the invaluable psychological support they can provide to families.

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🔗 European Dravet Syndrome Conference 2025

https://www.epilepsysparks.com/conferences/european-dravet-syndrome-conference-madrid

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🔗 Website & more about Simona: 👇🏻

https://www.torierobinson.com/epilepsy-sparks-insights/simona-giorgi-dance-dravet-epidemiology-support 

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Chapters 📖

00:00 Intro

00:00 Meet Simona & Dravet Syndrome Foundation Spain

02:48 Research Initiatives and Collaborations

06:07 Understanding Epidemiological Studies

08:58 Tools for Caregivers and Patients

11:57 Awareness and Support for Families

15:04 Future Directions

00:00 Conclusion & Thanks

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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 

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