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When Dr. Amee Shah’s epilepsy, long under control, returned, she faced a tough question: should she share her story? After keeping seizures a secret her whole life, she chose to open up. While many people were supportive, others were not – even requesting Amee to take down social media posts about her epilepsy. Instead of letting that hold her back, Amee turned it into fuel for advocacy, becoming a public voice for epilepsy awareness. In this episode, she shares the cultural challenges of being vulnerable and the power of owning your story.Learn more about seizure pillows that we talk about in this episode here: https://www.dannydid.org/selecting-a-device/Thank you to our Community Partner, the Epilepsy Foundation of America, and Sponsors SK life science and Neurelis for standing up to stigma with us.
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When Dr. Amee Shah’s epilepsy, long under control, returned, she faced a tough question: should she share her story? After keeping seizures a secret her whole life, she chose to open up. While many people were supportive, others were not – even requesting Amee to take down social media posts about her epilepsy. Instead of letting that hold her back, Amee turned it into fuel for advocacy, becoming a public voice for epilepsy awareness. In this episode, she shares the cultural challenges of being vulnerable and the power of owning your story.Learn more about seizure pillows that we talk about in this episode here: https://www.dannydid.org/selecting-a-device/Thank you to our Community Partner, the Epilepsy Foundation of America, and Sponsors SK life science and Neurelis for standing up to stigma with us.
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