Once Upon A Gene

Eight Years of Searching: A Determined Family’s Quest to Cure an Ultra-Rare CLCN6 Mutation with Kristin & Paul Purdy

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Links & Resources:

Follow Their Journey on Social Media

  • Facebook: Paxtons Pioneers
  • Instagram: Paxtons_Pioneers

    • KCAL News Story

    • Watch the in-depth feature on their family’s advocacy here: KCAL Rare Disease Coverage
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    Once Upon A GeneBy Effie Parks
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