Christina Herrin, government relations manager of health policy, interviews Amber Freed, mother, activist, and founder of SLC6A1 Connect. The prevalence of rare diseases in the U.S. is growing. Nearly 1 out of 10 Americans suffer from a rare disease. For the Freed family and Maxwell her son, time is of the essence to find a cure for SLC6A1. The discussion focuses on rare diseases, finding a cure, and obstacles to bringing new cures to market.
Social Media Handles: LinkedIn: SLC6A1 Connect, Amber Freed, Instagram: Milestones_For_Maxwell, Facebook: SLC6A1 Connect, Twitter: Maxs_Milestones
o Hashtags/References: @Amber Freed, #SLC6A1, #SLC6A1Connect, #GeneTherapy, #FightLikeAMother, #RareDisease
Donate here: https://slc6a1connect.org/donate-here/
Video of our story: https://www.youtube.com/watch?v=xbNXxMJ4xW8&feature=youtu.be
o Follow & Tag: SLC6A1 Connect
Donate here: https://slc6a1connect.org/donate-here/
Video of our story: https://www.youtube.com/watch?v=xbNXxMJ4xW8&feature=youtu.be
o Follow & Tag: Milestones_For_Maxwell
o Hashtag: #SLC6A1 #SLC6A1Connect #Ellen
o Follow & Tag: Maxs_Milestones