In Sickness

From the mundane details of each day to moments of medical emergencies to treatment plans to COVID safety, caregivers are constantly making decisions. In this episode, Justin and Allison talk about what that looks and feels like in their daily lives and how their personalities impact their decision-making skills.

The celebration of Justin's 40th birthday led him to reflect on where he thought he would be at this time in his life versus where he is. In this episode, he and Allison talk about how becoming caregivers changed their trajectories, how they are trying to claim the role without losing themselves in it, and how to remember and focus on who they are, not just what they do.

When you are part of a rare disease or chronic illness community, there is comfort in building relationships with others whose lives look like your own, those who understand the terminology and the reality of your daily life. However, those important friendships can lead to unhelpful comparisons or even heartache as friends are lost to the disease. Listen in as Allison and Justin describe the ups and downs they've experienced in friendships with fellow caregivers and with those living with chronic and serious illnesses.

As chronic illness caregivers, Justin and Allison are used to experiencing daily challenges, but in the past weeks they've both found themselves in unexpected medical situations beyond their norm.

Allison and Justin describe the unique challenges that arise when the person you're caring for has an invisible illness.

Allison's piece mentioned in the show: The Invisible Traveler

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November is caregiver appreciation month, and to celebrate we're giving away one of Allison's Caregiver Gift Boxes along with some other treats! We'll pick a winner at the end of November, and they can either send it to a caregiver in their life, or if they are a caregiver, they can keep it for themselves. Click here to enter!

Justin and Allison discuss the ways in which caregiving impacts their physical, emotional, and mental health, what burnout feels like to them, and how supporters can help.

Allison describes the recent battles she has been fighting since learning that Sean's home health supplies are not covered under Medicare. Justin shares the dehumanizing process Sarah went through when applying for disability. Both dig in to what it feels like to fight back against a broken system.

Allison and Justin talk about the difficult reality of being a caregiver for someone with a lifelong chronic illness. They discuss how things felt at the beginning, how they keep going, as well as how people can better support those in these long term caregiving situations.

Special guest, Kyle Woody, Executive Director of Jack's Caregiver Coalition, and Justin talk about the unique challenges faced by men who are caregivers. Kyle also shares the free resources provided by Jack's to male and female caregivers alike.

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Jack's Caregiver Coalition

Man Enough to Care

After more than a year of being at home, Allison and Justin talk about the travel opportunities they have taken this summer, both with and without their spouses. They discuss what it's like to leave their partners and their caregiving responsibilities behind.