In this episode of The Michael J. Fox Foundation Parkinson's Podcast, we explore the intersection of race and Parkinson’s in both the lived experience of obtaining care for the disease and how that translates to research.  

Listen as our panelists have a candid conversation about the value of inclusivity to advance the field’s understanding of the disease and ultimately, more scientific breakthroughs. And learn about how the Foundation is working today to break down barriers to recruit and retain underrepresented communities to participate in research. 

Rather listen on-the-go? Subscribe to our Michael J. Fox Foundation Parkinson's Podcast on iTunes or through any podcast app on your smartphone or tablet. And if you enjoyed what you heard, share it with a friend or leave a review on iTunes. It helps listeners like you find and support our mission. 

 

EXPERT PANELISTS

Host and person with Parkinson’s Larry Gifford leads a discussion with: 

Jonathan Jackson, PhD, founding director of Community Access, Recruitment, and Engagement (CARE) Research Center at Massachusetts General Hospital and principal investigator of the Fostering Inclusivity in Research Engagement for Underrepresented Populations in Parkinson’s Disease (FIRE-UP PD) 

Bernadette Siddiqi, Associate Director of Research Partnerships at MJFF 

María L. De León, MD, movement disorder specialist, MJFF Patient Council member and policy advocate 

View a transcript of this podcast.  

EXTRA READING: 

Share Your Story -- The Michael J. Fox Foundation is seeking to grow its community by sharing diverse experiences and perspectives from all who are touched by Parkinson’s disease. If interested, please email your story to [email protected] along with the best contact information to reach you. We may share your story in future communications. 

Get Involved in Research -- Learn more about Parkinson’s clinical research, who can participate and what types of studies are available. Download MJFF’s free guide to Navigating Clinical Trials, which is available in several languages, including Spanish.  

Mentioned in this episode:

August is Make-A-Will Month, which serves as a reminder of the importance of creating and updating your will. Use this moment to take control of your future and ensure your wishes are respected. Visit michaeljfox.org/plan to learn more and get started.