Gold Ribbon Conversations - The podcast that supports those fighting Childhood Cancer.

Today we are joined by parents Jonny and Laura.

Their daughter Saoirse Fearon was recently diagnosed with Adrenocortical carcinoma when she was 3 after they shared some concerns with a public health nurse visiting her new baby brother.

  

It’s an extremely rare cancer, 1 in every 6 million people in the world have been diagnosed.

There is a genetic component to this cancer and so Laura and Jonny were tested and it was discovered that Laura and Saoirse have Li-Fraumeni Syndrome (LFS) a rare hereditary disorder that increases the risk you will develop cancer - and for women there is 100% chance of breast cancer. 

This is a lot for one family to handle & while it's such an alarming story they share it with huge hope, strength & love. 

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