My Spoonie Sisters

As we journey together through the challenges of chronic illness, there's a recurring phrase that rings oh-so-very true — it's okay not to be okay. You've probably heard me chant this mantra on Instagram; in this empowering podcast, I bring the same spirit to uplift my beautiful Spoonie Sisters, who battle daily with various ailments. I speak candidly about the pain, the fatigue, and the emotional toll that comes with chronic illness. However, I also emphasize that your experiences are valid, your feelings hold importance, and it's perfectly okay to acknowledge that some days are harder than others.

The secret weapon here is self-care and I'm not talking about the occasional bubble bath or chocolate treat. I'm talking about serious, intentional self-care that forms a crucial part of managing your overall well-being. It's far from being selfish; it's about giving yourself permission to rest, recharge, and put your health above all else. So, grab a cup of something warm, find your coziest blanket, and join me as we explore what living with chronic illness truly means and how you can navigate it without losing yourself. And before we wrap up, remember, don't forget your spoon.

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• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Imagine waking up to find your body in a revolt against the change in weather. Sounds crazy, right? Yet, it's a reality that we've grappled with, alongside life's unexpected roller-coaster rides and the influence of modern fashion trends. This episode is an honest, heartfelt conversation about dealing with chronic illnesses, adapting to medication, finding the right doctor, and even coping with the stress that positive changes can bring. 

Buckle in as we share some laugh-out-loud moments discussing the world of hats and the pressure to be stylish even when our bodies are in a flare. We've got some invaluable insights to share about the power of self-care, rest, and the underrated role of sleep in managing chronic illnesses. Most importantly, we address how to turn life's challenges into opportunities and find support during testing times. So sit back, relax and tune in for an episode filled with candid advice, laughter, and shared experiences.

https://www.instagram.com/perfectlyimperfectlinnea/#

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Have you ever wondered about the battles that those living with autoimmune diseases face every day? Join us as we listen to the compelling journey of Joshua, a retired army veteran who faced this reality when he was diagnosed with multiple autoimmune conditions - Myasthenia Gravis, Small Fiber Neuropathy, and Hashimoto's. Joshua offers a unique perspective on battling these conditions, from chronic fatigue and muscle spasms to debilitating migraines.

We follow Joshua as he navigates the challenging medical world, advocating for himself in the quest for a proper diagnosis. His story is a testament to resilience, as he battles chronic pain, the inability to exercise without needing multiple days of recovery, and the constant adaptation to a new reality of health. Joshua underscores the life-changing role his wife played in supporting him during these difficult times. He also offers intriguing insights into how weather changes affect his conditions and unveils helpful management strategies like regular chiropractor visits, journaling, and breathing exercises.

In the heart of our discussion, Joshua sheds light on his journey of being medically separated from the army due to his health issues, emphasizing the importance of finding a community for support and connection. He generously shares valuable resources for those dealing with autoimmune diseases, such as Military Disability Made Easy and Myasthenia Foundation of America. His story is a remarkable display of the human capacity to find positivity amidst life's biggest challenges. We invite you to join us and be inspired by Joshua's journey, and maybe even glean some insights for your own.

https://www.linkedin.com/in/joshua-thompson-veteran/

https://militarydisabilitymadeeasy.com/

https://myasthenia.org/About-Us

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Are you aware of how much power you hold in managing your Rheumatoid Arthritis? Understanding your condition, being knowledgeable about treatment options, and maintaining a robust support system can significantly impact your health journey. In our conversation today, we share our personal experiences and mention Stefanie, the Rheumatoid Arthritis Coach, and Dani from Make It Count for Dani. These wonderful individuals have helped us understand our condition better and have shown us the importance of connection and emotional support in managing Rheumatoid arthritis.

Living with a chronic illness is not easy, but prioritizing self-care can help. We'll explore techniques to adapt your movements, discuss the impact of stress on your body, and share flare-friendly exercises. We will also introduce you to the Serendipity app, a tool that offers recipes, a chat community, and more. Did you know affirmations could aid in self-care? We'll discuss the impressive benefits of stacking affirmations and how you can incorporate this into your daily routine. 

Having an open line of communication with your healthcare provider is vital to managing Rheumatoid Arthritis effectively. We'll shed light on how to express your needs, ask the right questions, and prioritize your care. Moreover, we delve into the importance of using online charts and share tips on how to communicate effectively with your healthcare provider. Lastly, we provide five essential tips to manage Rheumatoid Arthritis and stress, drawing from our personal experiences and what has worked well for us. Join us on this enlightening journey and empower yourself to take charge of your health.

https://www.instagram.com/makeitcount4dani/#
https://www.instagram.com/rheumatoidarthritiscoach/#
https://www.instagram.com/gracefully_jen/#
https://www.instagram.com/perfectlyimperfectlinnea/#
https://www.instagram.com/ourserendipity.app/#
https://www.instagram.com/wearebewell/#

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Imagine the strength it takes to not only battle multiple autoimmune conditions but to also travel across 40 countries seeking knowledge from experts and scientists. That’s exactly what Sweta did. Born with epilepsy, and later diagnosed with rare autoimmune hemolytic anemia, lupus, IVSC, Hashimoto's, and alopecia, she was determined to learn how to manage her symptoms and prevent other autoimmune conditions from developing. Her resilience and relentless pursuit of health led her to establish Healveda Health, providing others with the tools to overcome their conditions.

Sweta's story is one of victory over adversity. In this conversation, she reveals her 'Spoonie Toolkit,' a treasure trove of her top five must-haves for dealing with an autoimmune condition. You'll learn about the mindset changes and lifestyle alterations Sweta believes are key to maintaining a positive outlook amidst health challenges. She also discusses the 'Make Me Visible' campaign by Healveda Health, a movement that focuses on making visible the struggles of those with autoimmune conditions. Whether you are fighting an autoimmune condition yourself or know someone who is, this episode is filled with invaluable insights, inspiration, and practical advice. Join us as we unravel Sweta's inspiring journey and learn how to manage autoimmune conditions effectively.

https://healveda.health/make-me-visible/

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Ready to shake off the chill of November and get your blood pumping? Join me, your host Gracefully Jen, and my dear friend Dani from Make it Count 4 Dani, as we ignite the spark of "Move-Ember," a call to action for at least 20 minutes of deliberate, focused movement every day this month. This isn't a grueling challenge; it's a beacon towards a healthier, more energized lifestyle. Whether it's a brisk walk, yoga, or even a Zumba class, the choice is yours.

But there's more! Along with the benefits of self-love and a healthier lifestyle, we're also giving back to you fantastic giveaways in the first week of December from some truly incredible companies. To stand a chance of winning, it's as simple as sharing your progress with us each day, no social media expertise is required! So, my Spoonie Sisters, brace the cold, choose yourself, get moving, and let's make this the best "Move-Ember" yet! Remember, it's all about making it count 4 Dani!

https://www.instagram.com/makeitcount4dani/#
https://linktr.ee/makeitcount4dani

Send us Fan Mail

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Are you ready to decode the enigma of 'Spoon Theory'? Let's embark on a journey together, unraveling this metaphorical term coined by the notable blogger, Christine Mizerendino. We'll leverage the concept of spoons as units of daily energy, revealing the victories and challenges inherent in life with chronic illnesses or disabilities. Prepare to discover 15 signs that resonate with the 'Spoonie' life, from systematically designed daily routines to the comfort found in the empathetic companionship of fellow Spoonies.

Feeling alone in your battle? Here's a promise - you are not! The wonderful world of social media abounds with expansive communities brimming with support and understanding. Simply look up hashtags like #Spoonies, #SpoonieCommunities, and #SpoonieSupport, and you'll find a universe of resources. From Rare, Patient Voice, Reactive Rehab, and countless more, you'll never be short of encouragement. We're rooting for you, and eager to accompany you along this journey. So, why wait? Come, share your story, and remember, never forget your spoon!

https://myspooniesisters.chewack.com/

Send us Fan Mail

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

I've been marveling at the strength of Suzy, a remarkable polymyositis patient, who held her ground at work for 15 years even while battling progressive muscle loss, fatigue, and overwhelming stress. It wasn't until she finally opened up about her chronic illness and embraced support from her workplace that a profound transformation began to take place. We discuss our shared journey of navigating the often murky waters of chronic illness, focusing on the importance of sharing our experiences, finding support, and understanding our nervous system's role in chronic illness.

I recall my own experience of exploring the disability process and realizing the profound necessity of advocating for oneself when seeking medical treatment. The tricky part was learning to accept help from friends and family, and to openly communicate about my needs. I found comfort in small gestures of understanding and support, like when my mother baked me a gluten-free pumpkin pie for Thanksgiving. 

The journey through chronic illness is often fraught with unfamiliar challenges and adjustments. Yet, as I found in my journey with polymyositis, there is a silver lining to be discovered. Seeking innovative solutions to manage symptoms, researching the best options, and connecting with a community of people experiencing similar struggles can be incredibly empowering. I was particularly inspired by my friend Angelique Ingram's recovery story, which ultimately led me to start speaking about my own experience of living with a chronic illness. Join me as I share these insights, aiming to inspire and encourage you in your unique journey.

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Ever been curious about the inner workings of chronic illness from the perspective of a renowned specialist who's also a patient? Join us in a profound discussion with Dr.  Saimun Singla, a triple-board-certified physician who battles rheumatoid arthritis daily. Dr. Singla unravels her journey as she was diagnosed with the condition even while she was already a qualified rheumatologist. She brings to light the necessity of early detection, the criticality of educating oneself about chronic illnesses, and the many ways to manage the symptoms.

As we delve deeper into the conversation, Dr. Singla introduces the world of integrative medicine, its immense importance in managing chronic disease, and her personal toolkit for managing her symptoms. From the practical ways to handle a flare-up to the fundamentals of anti-inflammatory diets, physical therapy, and the power of community support, this episode is teeming with valuable information. Plus, we cover the differences between joint pain and joint stiffness, and provide insights on how to differentiate between arthralgia and arthritis.

Lastly, we address the psychological and emotional toll of living with a chronic illness. The importance of setting sensible goals, fostering resilience, and seeking support is underscored. We also discuss how to navigate through the challenges that chronic illnesses bring forth and the invaluable benefit of interacting with people who have shared experiences. As we wind up, we share practical ways to handle flares, and emphasize the necessity of having robust coping strategies when dealing with chronic illnesses. This episode will leave you equipped with a wealth of knowledge to face the battles of chronic illness head-on.

https://linktr.ee/rheumtogrowtx

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Have you ever wondered about the resilience of the human spirit in the face of chronic illness? Brace yourself as we delve into the captivating story of Kiera Chan, a steadfast advocate for disability rights and women's health who lives with adrenal insufficiency and vascular eagle syndrome. At age 20, Kiera started a health journey that would transform her world. With daily adrenal crises and a relentless pursuit for answers, her courage has been tested repeatedly - but she continues to thrive.

Kiera's life is a testament to the importance of self-advocacy in healthcare. She opens up about her experiences, from feeling minimized by healthcare professionals to the arduous task of finding the right treatment. We explore the overlooked aspects of chronic illness, including its impact on mental health and the significance of having a supportive network. Her story offers hope, inspiration, and practical advice for anyone navigating a similar path, showcasing the need for healthcare reform and patient-centric care.

Then, we venture into her daily routine, offering a glimpse into the role medical devices play in her life. From her cortisol infusion pump to her DEXCOM G6, these tools are crucial in maintaining her health. But it's not just about survival; Kiera’s journey is about redefining what living with a chronic illness means. It's about raising awareness, sharing stories, and inspiring change. So, join us as she provides an intimate, enlightening perspective on life with adrenal insufficiency - a conversation that challenges, informs, and inspires.

https://www.instagram.com/chronically_kiera/

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/