When chronic pain came knocking in my early 30s, little did I know that I'd be diagnosed with rheumatoid arthritis and later, palmar plantar postulosis psoriasis. I felt lost and alone in my struggles, which is why I've made it my mission to be a support system for others going through similar experiences. In this heartfelt episode, I, Jen, share my personal journey and the challenges I faced, from dealing with brain fog to failed attempts at getting help from my doctor.

But we're not alone in our battle with chronic illness! That's where Christine Miserandino's life-changing Spoon Theory comes in, helping us understand the physical, mental, and emotional fatigue faced by those with chronic illness. Together, we'll share stories, life hacks, and tips to make life as a Spoonie more manageable. If you're a fellow Spoonie Sister, I'd love to feature you on the podcast and have you connect with others over a cup of coffee or tea. Let's support each other in our shared experiences and thrive despite our chronic conditions.

https://www.instagram.com/gracefully_jen/

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GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Life with chronic illness can be a rollercoaster.

Introducing Amanda - an inspirational individual who saw an opportunity and seized it. I can't wait to share her incredible story with you!

Amanda's story is a true testament to the power of hard work and determination. She started off with a simple idea and worked tirelessly to turn it into a successful business. Her journey was not without its challenges, but she never gave up. Despite facing many obstacles along the way, Amanda remained focused on her goals, and her unwavering determination paid off in the end. Her story serves as a reminder that with passion and perseverance, anything is possible. Stay tuned for more on Amanda's incredible journey!

Whether it's physical, emotional, social, or financial pain, their premium products were made to make living with chronic illness a little easier.

Living a life with inflammatory bowel disease is best described with one word, unpredictable. Their products are designed to make the unpredictable easier to deal with.

Be sure to visit the website and snag your favorites, from infusion-friendly hoodies to urgency buckets.



https://wearebewell.com/
https://m.facebook.com/groups/992633211350961/?ref=share&mibextid=S66gvF
https://instagram.com/wearebewell?igshid=MzRlODBiNWFlZA==

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Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

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Often, depression can feel like an elephant in the room.  Breaking the Silence on mental health is an essential aspect of overall health and well-being that is often overlooked and stigmatized. However, more and more people are starting to speak out about their experiences with mental health concerns, and this is helping to break down the barriers that prevent people from seeking help.

Listen as we chat about depression, family, friends, management, and life with chronic illness mixed with depression. 

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Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

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🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com

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Wendy Garvin Mayo is a Board Certified Nurse Practitioner, Stress Solution Strategist, International Speaker, #1 Best Selling Author, and Certified John Maxwell Trainer and Coach with 20+ years in the healthcare industry; she has healthcare experience in various nursing sectors, including clinical leadership, research, academia, and pharmaceuticals. Mrs. Mayo is the CEO of The Stress Blueprint, Creator of the Stress Blueprint Academy, and Host of the Nurse Wellness Podcast. Wendy is passionate about empowering healthcare professionals, leaders, and teams to decrease stress and increase emotional intelligence so they serve purposefully. Mrs. Mayo wants every opportunity to advocate for stress management, so more people can optimize their overall well-being and serve the world purposefully.

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Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

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Andi helps women maintain JOY using holistic methodologies to advance strategic growth in health, life & business without overwhelm or burnout.

She is a Holistic Wellness Practitioner. She is passionate about helping women find their happiness!

Let's start here: between the ages of 14 and now, she was diagnosed with what she refers to as autoimmune mayhem (MS, SLE, RA, POTS, Fibro ). "Every day, there is something going haywire in my body & it's always an adventure to figure out which system is causing it."

"My life changed on March 10, 2020, when I suffered a sudden cardiac arrest at work. (I was out for 34 mins)
Recovery taught me that prior to the "incident," I was "too busy" actually to enjoy life. I wasn't making memories filled with belly laughs and true bonds. I was afraid to tell my story because I didn't want to hear the fan fav "you don't look sick." "

Today, she is grateful for the storm because now it allows her to truly admire every rainbow 🌈

https://linkin.bio/chronicallyiconiccoach?fbclid=PAAaYqVTV5ZTN86ZXrkeBQAZ0jguBZnt2xS8i6bOdBIev7q5FsPa4ip_0WU5g

https://instagram.com/chronicallyiconiccoach?igshid=YmMyMTA2M2Y=

To support this podcast, please leave a review, share it with your fellow Spoonie Sisters, or buy me a coffee. 

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Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)

Website:
https://myspooniesisters.com/

Discount Codes:

GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Have you met the lovely Chelsea?

Chelsea is 28 and runs a small business ( @juniperandwildflower ) with her mom! She was diagnosed with Rheumatoid Arthritis a little over three years ago, and then has developed scleritis/uveitis in her right eye. Since getting diagnosed with a chronic illness, life hasn’t been easy, but finding community with other spoonies on similar paths has helped Chelsea feel less alone in hers. This is why she decided to create her space on Instagram, to share her story and what she has learned through her wellness journey in hopes of helping other spoonies in theirs.

https://www.etsy.com/shop/JuniperandWildFlower?load_webview=1&bid=JGOq8xeufogvRIf9coIMs6V7tp9P

https://instagram.com/thefloresgrowhere?igshid=YmMyMTA2M2Y=

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Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)

Website:
https://myspooniesisters.com/

Discount Codes:

GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

In this episode, we bring back Megan from last season to discuss how she helps others to get fit with arthritis. Did you not catch her interview last year? Listen to season one, episode 17 today!

Get Fit with Arthritis
1:1 Online Coaching Program

Get Fit with Arthritis is a 3-6 month online coaching program GUARANTEED to help you obtain results while battling chronic joint pain!

This program will not only teach you how to strengthen your joints safely & effectively while building more muscle definition and losing fat... It will ALSO teach you everything you need to know about building a healthy, sustainable relationship with food & balancing chronic illness(es) with fitness!

https://linktr.ee/megzzfitness

https://mailchi.mp/fb60ff60d1b3/mindset-group

https://www.megzzfitness.com/product-page/get-fit-with-arthritis-e-book

https://www.tiktok.com/@megzzfitness

https://www.instagram.com/itsmegzz_fitness/

Send us a text

Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)

Website:
https://myspooniesisters.com/

Discount Codes:

GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Join Linnea & Jen as they discuss life with Rheumatoid Arthritis, Psoriasis,  & chronic pain. Did you miss the interview with Linnea in March of 2022? You can catch up on it in season one, episode 2!

You may find yourself in the middle of some laughter, tears, and even venting!

Linnea IG: https://www.instagram.com/linnea_4me/
Jen IG: https://www.instagram.com/gracefully_jen/

Send us a text

Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)

Website:
https://myspooniesisters.com/

Discount Codes:

GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Brandi, AKA 1SicB, is an MS Warrior advocating, thriving, and podcasting her way to empower, educate,  and evoke conversations that will change the narrative of what chronic illness looks like.

Pull up a chair and listen as Brandi and Jen discuss life with chronic illness.

https://instagram.com/1sicb_podcast?igshid=YmMyMTA2M2Y=
https://www.1sicb.com/
https://linktr.ee/1SicBpodcast?fbclid=PAAaaX-9i3maQ0dBYnGI_n0F_ZdxwMC8BzEBye4Q6yCqM2eg28BsG6nLu80wg

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Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)

Website:
https://myspooniesisters.com/

Discount Codes:

GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

MEET LIZ, the fitness/mind-body trainer extraordinaire. 

Liz has over a decade of experience in the health, fitness, and wellness industry. She has a Master's of Science in Exercise Science and a Bachelor's of Science in Sports Science from Northern Michigan University. She specializes in working with those with chronic conditions and in special populations (cardiovascular disease, low-back-pain, etc.) with an emphasis on helping those with autoimmune disorders learn to manage their conditions. She is a

• NASM Certified Personal Trainer
• ACSM Certified Exercise Physiologist
• NESTA Certified Sports Injury Specialist
• NESTA Certified Fitness Nutrition Coach
• Academy of Holistic Fitness Certified Mind-Body Trainer

She was born and raised in the beautiful Upper Peninsula of Michigan, where she grew up playing softball, basketball, skiing, and mountain biking!

Welcome: https://bloomhhf.godaddysites.com
Connect with Liz: https://bloomhhf.godaddysites.com/connect
IG: https://www.instagram.com/bloomhhf/

Send us a text

Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)

Website:
https://myspooniesisters.com/

Discount Codes:

GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off