Talking to scientists Moran Rubinstein from Tel Aviv University in Israel and Eric Krema from Universite de Montpellier in France who together work on a project into gene therapy for the rare genetic epilepsy Dravet Syndrome. They speak of their research, its exciting outcomes, and the positive impact that this could have on treatments for patients!If you haven't yet seen the first in this set of two episodes then check it out!------------------------------------------👉🏻 T-shirts: https://epilepsy-sparks.creator-spring.com ------------------------------------------More about Moran & Eric: 👇🏻https://www.torierobinson.com/epilepsy-sparks-insights/moran-rubinstein-eric-kremer-02------------------------------------------Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻https://www.epilepsysparks.com/glossary------------------------------------------Chapters 📖00:00 Intro00:37 How the therapy shall be used02:16 Therapy for children and adults03:05 Use in other epilepsies04:32 Patents and alterations05:17 Pharma companies06:11 Safety: the long journey from mice to patients07:17 Success, editing & retesting the therapy08:01 Treating the cause rather than the symptoms08:43 Where and when to inject the virus - an analogy10:42 Relating as a patient without Dravet12:02 Next steps with pharma & governments14:13 Special thanks----------------------------------------
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